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CoachAng

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CoachAng

  1. CoachAng
    Thank you! I am going to go read the post you provided. ?
  2. CoachAng
    I am sorry you had such a rough time, but it is reassuring to hear that things can get better and balance out again. I am almost 5’9” and when I graduated high school I was lucky to be 110 pounds. I remember going to my family doc and begged for something to gain weight. Back then, I was made fun of for being so small. I ate anything and everything and...
  3. CoachAng
    Wow - it just blows my mind to think this is something we’ve all had struggles with since childhood and never knew. I remember being slightly anxious as a child and was a nail biter. Was told it was a bad habit. I have learned it is partly due to gluten. When I eat large quantities of it, I feel the urge to pick at my nails. Being so thin that people t...
  4. CoachAng
    Thank you, thank you, thank you! I do have the energy to jog again. It’s hard now that I am so much heavier. If I start trying again, does this just add more inflammation or would it actually be good for my body? I don’t want to cause more issues. I will definitely look into the autoimmune paleo diet. Thanks so much!
  5. CoachAng
    Thank you so much for this feedback. I was not aware that it would take 6 months to a year to feel better. I personally would rather not have an official diagnoses. I never thought about insurance ramifications. Knowing my brother has it and I am showing signs of some autoimmunity, but yet to be diagnosed, I think removing gluten and maybe all grain would...
  6. CoachAng
    Have your neurological symptoms improved by going gluten free?
  7. CoachAng
    I should add that my Integrative doctor recently provided me with a lab slip to have my HLADQ2 and HLA DQ8 genes tested. She said that if I tested positive, I should remove gluten from my diet forever even if I were not symptomatic. However, I called my insurance and they will not pay for the test as it is considered exploratory. They quoted me around $...
  8. CoachAng
    I had 3 of those tests done, the anti-Gliadin antibodies, anti-tissue transglutaminase, and total serum iga. I was told all was okay. I am trying to get copies of the bloodwork and I can share my numbers. I did go gluten free for 2 months, but did not see much change. I was also dairy free, as well. It’s possible that I did not give it enough t...
  9. CoachAng
    I do know autoimmune disease runs rampant on my moms due of the family. She has diabetes and now psoriasis, something with her thyroid and really bad arthritis. Her sister was a type 1 diabetic and died when she was 47. My cousin died while on a jog at age 48. No one has lived past 72 on her side of the family. No one except my brother and I believe...
  10. CoachAng
    Thank you so much. No doctor would refer me to a gastro doctor, so I made an appointment myself without referral. I took all my copies of bloodworkwith me and begged for help. I explained my situation. He was one of the best in my town. I was told to throw all my integrative tests in the trash and to gain 20 pounds and I would feel better. At the time...
  11. CoachAng
    Hello, I am not new to this forum but may be my first post. I am feeling somewhat lost and at wits end. I started having symptoms back in 2012 and I have been fighting for answers ever since. Let me start by saying my brother has celiac disease diagnosed by bloodwork and then confirmed via having a scope done. He has it bad, just having bread touch his...
  12. CoachAng
    Thank you, Lisa! Funny you say small changes. I have had less night sweats (not totally gone yet), my finger nails are already stronger (did not think I could see a change in my nails in 2 weeks!), and minor improvement in overall 'feel' of hair. Ends are still dry, probably due to lack of vitamins over the years. I will definitely keep watching the small...
  13. CoachAng
    Hi! My name is Angie! I would be interested in learning more about the symptoms you've experienced. My 'obvious' symptoms just started back in May 2012, but now looking back, I am thinking I have had less obvious symptoms for years!!! My recent issues in May were bladder-related, but thought it was UTI issues or something. I have now been through countless...
  14. CoachAng
    Very interesting material. I am going to copy these links to my desktop for reference. Interestingly, I checked my bloodwork from last fall (2011) and my white cell count was WAY LOW and I was also very low on potassium. My doc said everything looked okay and since I was in great physical shape, it was nothing to worry about (the WCC and low potassium...
  15. CoachAng
    THANK YOU!!!! Trying not to worry needlessly about the bladder. The urologist did various CT scans, bloodwork, urinalysis, etc. All were fine, except scaint traces of blood in urine (microscopic). He did not feel the need to test further on the bladder, so no scope or anything done. I, deep in my heart, believe the pain is stemming from the stomach/bowels...
  16. CoachAng
    Thank you for the link. Going to review it now! I appreciate any help/info provided!
  17. CoachAng
    So, what is your treatment for the Candida? Sorry to ask so many questions. I am new to all this. I have been a relatively healthy person and rarely take any kinds of meds. I am a workout nut and always thought I was super healthy.....until this happened in May 2012. I tried the IC diet, too, but did not get lots of relief. Did not try it for too long...
  18. CoachAng
    Bladder spasms are the WORST. It is crippling and people do not understand how it feels, nor can they be sympathetic to the pain. How long did you have IC before being diagnosed with celiac? How are your symptoms today? I just started having the bladder symptoms early May 2012. My urologist thought it was IC, but decided not to do the potassium challenge...
  19. CoachAng
    OMG - I COULD CRY RIGHT NOW!!!!!!!!!!!! I am SO GLAD I found this forum!!!!!!! I hope you don't mind if I ask questions along the way. I am scared, yet I will be relieved if it is relative to gluten. I hope my bladder is not damaged due to the gluten.
  20. CoachAng
    Okay, I reviewed my lab order for tomorrow. He is testing for vitamin deficiencies as well as thyroid AND he is running a celiac panel (it looks like it includes Gliadin IgA, and Gliadin IgG). Not sure what this all means, but hoping I get answers. Since the tests will be run in the next 24 hours and the fact that I ate some gluten with breakfast, I am...
  21. CoachAng
    THANK YOU for your responses!!! The integrative MD has me doing the saliva and stool testing right now (just shipped the vials yesterday). He has ordered up some tests for thyroid - I am calling the office to verify if gluten/celiac is one of the tests they ordered. I think it is. Did any of you ever have night sweats or heart palpitations when...
  22. CoachAng
    I tried to get my GP to run the bloodwork panel again. When he ran it 3 years ago, since it was elective on my part, it cost me $1200 out of pocket. Roll forward to two months ago - I was having serious bladder issues, to the point, I could not stand up or walk. Uncontrollable spasms, shock pains, frequency - all symptoms led to bladder issues according...
  23. CoachAng
    Hi! I am new to the forums, but found this one and wanted to post. I recently began experiencing symptoms within the abdominal area (thought it was urinary tract related) and saw my OB/GYN. Long story short, I have now seen several doctors, countless x-rays, bloodwork, and more. I have also been going to therapy for my abdomen (lots of abdominal tension...
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