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About spirit_walk

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  1. Hello - Are you still active on this forum? Very interested in your situation from 2014. Is it possible to get an update? I am experiencing some of the same symptoms that you explained and am lost. Thanks.

  2. This is a question that I have had as well. I went from eating any and everything I wanted with no problems (although I has upset stomachs a lot growing up). Then I started having mild pain in my hands over the course of 2-3 years (tingling and sensitive), and then in March of 2012 it went full-blown crazy. My hands were hurting terribly, then it moved to my wrists, knees, hips, and other parts of the body. It was then that I realized that the food I was eating was causing much of this pain. After removing dairy, gluten, nightshades, corn, and eggs, along with other foods that came up in a IGG blood test, my pain got better. To this day, I am not sure about the blood test, but I do know that food is causing my problems. I had an upper endoscopy done last summer, and my villi were normal (I'd been off gluten for about 7 months). This makes me think that the other foods I'm eating are causing damage to the villi. However, my stomach lining was reddish and explained as gastritis. So perhaps the foods I am eating are causing inflammation in the lining of my GI tract even though it isn't necessarily damaging my villi? I don't know. I am eating as healthy as possible, and trying to gain weight (which isn't happening). I have a malabsorption issue and wonder if some of the foods I'm still eating are playing a role in preventing healing.
  3. pghkid33, Just curious, but do you weight loss as well? I was taking Creon and Zenpep for a few months, b/c my doctor discovered I wasn't absorbing fat. It didn't help me gain weight, and I stopped taking them b/c the prescriptions were expensive.
  4. Thanks nvsmom and janpell. I usually feel my best when I haven't eaten for several hours. I'm on a mission to gain weight though, so I've been eating as often as possible. Usually when I finish a meal, I feel it in the wrists first. Some days are better than others, but the popping is always there even on the good days. I've gotten to the point that I don't expect answers, but I still hope for them.
  5. They haven't been able to explain it which is why I'm reaching out to this community. However Irish, they didn't say it wasn't a rheumatic condition. Well, SOME (I've seen four different ones) have said I don't have arthritis. One said I have inflammatory arthritis and that he could feel inflammation in my joints. The initial rheumatologist I saw said that nothing was showing up in my tests at the time and encouraged me to check into a research hospital or the Mayo Clinic. To be clear, two of those rheumatologists simply reviewed previous blood tests. That is why I went to Mayo. My GI doctor knows that I'm not absorbing fat through fecal tests and said it's certainly possible that I am not getting other nutrients do to malabsorption. They put me on Creon and Zenpep (two pancreatic enzymes) and those didn't change the absorption issues. An odd thing happened earlier this week. My rheumatologist who I hadn't seen since last spring called to check in on me. He asked if any new symptoms have emerged (rashes, swelling, etc). When I told him that the GI doc found that I wasn't absorbing fat and that my stomach lining was reddish (found during upper endoscopy), he said he'd like to be added to their system so he could see my medical records. He said different GI issues are related to joint issues and that it was more pieces to the puzzle. Irish, I've had six straight days of Vinyasa yoga classes, and I feel pretty good. Yoga has been great, and I will continue doing it daily through the summer. I'm still trying to find the culprit to the joint popping. Since removing gluten and changing my diet, most of my symptoms, from the extreme joint pain, to the neuropathy, to the mouth ulcers, seasonal allergies, and energy levels (at least in the mornings) have all improved (although I do have setbacks at times). The one thing that has gotten progressively worse has been the snapping and popping in the joints. What started in the wrists/shoulders moved to the jaw, hips, knees, and now neck. It migrates from hips to knees. I've started feeling my back pop as well, and it's definitely not cool.
  6. I never said neither of those things. I said I had difficulty lecturing when I was experiencing the jaw popping, and I never said it wasn't a big deal.
  7. karen, I've seen numerous doctors and have been a pin cushion for blood work. I've had a joint scan and bone scan. Those were both done a while back though, and this all started two years ago. So I'm not sure what an x-ray would show today on the different joints. The last time I asked about it, there were a few people who gave some good feedback. One person in particular I have PM'd. She doesn't post on the board much and hadn't posted for months though. I guess the idea was to simply see if some new eyes may see my post who have similar issues. I never saw the dentist about TMJ. The popping in the jaw lasted only a few weeks and I feel it every once in a while if I eat things that required a lot chewing (for example whole almonds). The rheumatologists I've seen can't explain the joint popping. One said it was likely due to inflammation in the joints, but I've never experienced swelling. I've more than a handful of doctors who have told me my symptoms are rare and are likely caused by an autoimmune response from the gut. The internist medical doctor I saw at the Mayo Clinic was probably the most helpful of the bunch, and he said there are just a lot of questions about the GI tract don't yet understand. I've abused my body for years with food, so I realize healing takes time. Many of my symptoms have improved. The popping hasn't. It continues to get worse. Ftr, I appreciate all the feedback. I've had several discussions with Irish through PM, so she's more familiar with my symptoms. She's been a great resource.
  8. I move all the time. I teach fourth grade and I am constantly on my feet and moving. I've also been in a great deal of pain over the last two years while working and wondered if I can continue as my symptoms progress. It's very difficult to stop stressing when you're in pain all the time and symptoms are getting worse. I've been doing yoga daily for the last week since out for the summer break. I've been doing a lot to stay stress free. I've been eating well even though I'm not sure how much my body is taking in with the malabsorption issues.
  9. Thanks for the John Hopkins link. Have seen it many times, and it is not describing my particular condition. This is not normal popping that comes from lack of motion. Irish I'm not sure how many times I need to explain this or if I'm simply not explaining it clearly. My bones SNAP. This isn't crackling like when you rise out of bed. My wrist want to lock up, my hips have movement that is painful, and there are times when I've had to use the elevator at my job, b/c my knees hurt so bad from the popping. Another example is that when I'm driving my shoulders snap on a consistent basis simply by turning my steering wheel. I'm forty years old and was on a mountain bike almost daily 3 years ago. I've been active in sports my entire life. I've dislocated my kneecap playing football, broken a wrist in tumbling, and have never had issues with joints until fairly recently. When I started experiencing severe joint pain two years ago, there still was no popping. It started a few months later in my wrists and shoulders and has migrated to other parts of the body. And it is magnified with specific foods, weather, and if I am stressed. So it's not some issue that stems from age, wear and tear, or osteoarthritis. And as I've stated it's extremely difficult to carry on happy-go-lucky when my body is readily available to remind me there is something not right going on. This is the SECOND thread I have posted on this site in over a year asking specifically about joint popping. The first time I posted a thread about it there was one person who responded who seemed to have similar issues. I am curious if there are others. Thanks again.
  10. There is pain associated with the popping. I had difficulty lecturing to my class when the jaw popping went on. My hips hurt almost daily from the clicking in them, and when the knee popping gets bad, it is painful. When my wrists pop, they don't generally hurt, but in feels uncomfortable and they feel as if they are locking up at times. Sometimes with a harder snap, it is painful. Same with the shoulders. I don't have noticeable visual swelling, but there is definitely pain involved. It's not typical, get out of bed popping in the joints that I am experiencing. This is movement in the ligament/tendon issues that was never there 2 years ago and has quickly progressed to different areas of the body.
  11. I posted about my issues with joint popping a while back, but I wanted to try and again to see if I would get any more responses. Does anyone have chronic joint popping? It started with my wrists and shoulders. I had it a while in my jaw but it went away. However, it never stops in the wrists and shoulders and progressed to my knees, hips, and now neck. Once in a while I can feel my back pop as well. I am curious if there are others experiencing this, how their symptoms have progressed over time, and if they have found a way to address it. I have been off gluten now for about a year and a half. My joint pain in my hands, wrists, and knees is pretty much gone since going gluten free. But, the popping is the one constant. My hip joints hurt because of the popping and if I eat some foods. I've also begun experiencing muscle spasms/twitching in my thighs and arms over the last couple of weeks. I'm wondering if this is a vitamin deficiency or just another unexplained symptom like my popping. Thanks.
  12. Those two protein powders are the ones mentioned in Esposito's book. She claims to have used them to help healing.
  13. Try this one nvsmom. http://www.orthomolecularproducts.com/ProductDetails.aspx?id=f787892f-e6e3-47f4-854a-986653021fe2
  14. http://www.metasavvy..._7_oz_p/uix.htm http://www.orthomolecularproducts.com/ProductDetails.aspx?id=b0c1e737-8ee7-443d-a639-0d3c5354187e Anyone take either of these and have any advice on them? Have you found that products like these are beneficial for healing?