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megsybeth

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  1. I've been gluten free, confirmed Celiac for about eight years now. I have a feeling another AI disease might be starting. A few times in the last few months I've had an inflamed gland in one or the other armpit, aches, and a really sore spine. I often have canker sores at the same time. Right now I'm dealing with sciatica as well. My aunt and cousin both...
  2. Kareng, Thanks for that info.! I hadn't realized they were labeled gluten free. I will stock up at Costco =). I have good luck with so much luck at Trader Joe's (waffles, bread, etc.) that I was worried it might be corn in general. Cyclinglady, that was always my thinking. That if you buy the exclusively Mexican brands they wouldn't have much reason to...
  3. I do a lot of shopping at Trader Joes and have found I have celiac like pain after eating their corn products. I don't think this has happened with Mission brand chips and I don't have issues at Chipotle or Mexican restaurants that don't share fryers. So I don't think I have an allergy to corn. But I'd like to try eating corn that I know is gluten free...
  4. According to my bloodwork, I seem to be taking quite a while to heal though I've been strictly gluten free and am aware and vigilent about cross contamination (eg I don't do fries in most restaurants, don't do most restaurants actually, don't do generic oats, etc.). I think I've had celiac since I had mono at six and was 35 when diagnosed. It's now two years...
  5. I appreciate this and I am scared but trying to get in to see my doctor and do the follow-ups. The DGP did come down. I can see how I might seem defensive about the cc aspect but probably you get that when your health is uncertain and you are in the process of testing, it isn't really helpful to be told to listen to your body. I mean I'll probably listen...
  6. I scored the coveted dessert spot on 5yo DS's Thanksgiving party at school. I want to make some fun gluten free Turkey topped cupcakes because it's his rare chance to eat the "real" treat. Dont' have time for experiments so I was wondering what the best, moistest yellow cake mix is. Was thinking of going with Barbara's since I use other products and like...
  7. I live in California so there are a lot of lifestyle gluten free people, which is mostly great but I get a lot of: -"So I hear you're going gluten free?".."Actually I done GONE. I don't really have a choice" -"You know if you have nice sour dough bread it cancels out the gluten" -"It's only the GMO wheat that you have to worry about" -"I'm trying to...
  8. ...this is actually what I'm most worried about. I know celiac is serious but if it's "just" from gluten exposure I wouldn't be worried. It's that combined with the low blood cells. My levels were low last time she did a cbc as well. I just realized I wrote elevated white blood cells (my son had elevated platelets and I got mixed up), it was low that flagged...
  9. I've never cheated, I think I'm pretty knowledgeable about what I eat. I'm not super strict about possible CC outside the home, for example at chipotle I don't usually ask them to change gloves, because I've found my son (more sensitive) and I both are symptom free. But I limit how often I eat out and only have a certain list of places, I kind of go with...
  10. It sounds tough for all of you. I totally agree that it's normal to be sooo picky at that age, but to actually refuse food all day is a bit more intense and suggests he cares about this a lot. There are feeding therapists and group programs. It could be a combination of things, where he associates some food with pain or has motor issues from the celiac. But...
  11. I'm about ten months post-dx and gluten free and lately I keep getting sooooo bloated. It looks and feels like I gained fifteen pounds but I barely eat. Right now I'm so bloated my back hurts. I'm going to eliminate dairy to see if it helps but I thought lactose intolerance was usually early in the recovery, not later. Levels in blood work being tested tomorrow...
  12. Last year we used the Discount School Supply play dough at home and at DS's school. I don't belive we've had any reactions. But I noticed when I needed to reorder that they don't list gluten free on their website. So to be safe I tried another officially gluten free brand. I'm not happy and am sending it back (Scented "wonder Dough", sticky, sticky, stains...
  13. Something keeps giving me stomach cramps and DS diarrhea. His babysitter swears it's the M&Ms because she thinks he has diarrhea every time he gets them. I give them every day as a reward for going #2 on the toilet. But I don't notice that he gets D directly after. Mars lists them as gluten free. In general I would say we're not extraordinarily sensitive...
  14. I think you could suggest to them that they label them "wheat free". For me, this is clearer that they are going for health-conscious people. Peet's Coffee carries a wheat free muffin and when you ask them about it, same thing, shared facility, bumping all around with gluten products. But there is a market that just wants to avoid wheat, so I get that it...
  15. I feel like I'm really careful but lately a couple times a week I'm getting pain and brain fog and he's getting D and grumpiness. I know I need to go back to basics but a couple things that I thought might be causing issues, though it's hard to say when we get triggered: -Think Think Bars, I have one a day and try not to let ds have them but he always nags...
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