
Slr38
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Everything posted by Slr38
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ARCHIVED Finally Got A Diagnosis....and It Is Not Celiac Disease!
Slr38 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Everyone, I was on this forum a lot in the fall trying to figure out the terrible symptoms I had been dealing with over the last 20 years or so. Like many of you I had been tested for so many different diseases and had some pretty awful doctors visits. I had so many of the celiac disease symptoms and was certain that is what I had. I finally... -
ARCHIVED Positive Home Test, Negative Lab Test - Manufacturer's Response
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The only tests that I had were Tissue Transgluaminase Iga and Immunoglobulin A. I was under the impression that they were going to do the whole panel. Apparently the labs here in Calgary only run the other tests if the TTg Iga come back positive. This really does not make sense to me! I would think that they would especially run the other tests if... -
ARCHIVED Positive Home Test, Negative Lab Test - Manufacturer's Response
Slr38 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Everyone, A few weeks ago I received a positive result from a Biocard home celiac test. I then received a negative lab result (they only ran one test). I emailed the company to ask them about the different results. This is the response I received: In clinical studies in the EU where the Biocard has been used and there has been a discrepancy... -
ARCHIVED Negative Bloodwork
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello again, I just looked up the Celiac tests on the lab website and this is what it says: "Initial test of Celiac Disease Screen includes TTG and IgA. Additional reflexive assays will be ordered as required and may include Anti-Endomysial Antibodies (AENDAB) and TTG IgG. " I guess since my TTG Iga was normal they did not go ahead with the other... -
ARCHIVED Negative Bloodwork
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I typed a long reply but it does not seem to be here?! So, to make a long story short; I emailed 2gpharmas to inquire about my results. They have now sent my questions to the manufacturer. I will let you know what they say. The resident did not have much to say and had never heard of the home test. He only said that the test I had was all that... -
ARCHIVED Negative Bloodwork
Slr38 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So after almost two weeks of waiting I finally got my results back. Turns out they only did the screening for TTG Iga! Here is what the report says: Tissue Transgluaminase Iga 1.1 kU/L Ref. Range 0.0 - 20.0 Immunoglobulin A 1.78 g/L Ref. Range 0.60 - 4.20 I saw a Resident as my family doctor was away. He said I did not have Celiac Disease... -
I just wish I was at Yankee Stadium, food or no food!
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Thank you for your quick reply!
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Hello Everyone, Lactose seems to be giving me a lot of trouble lately. I had my blood work for Celiac Disease this morning and will find out next week if it is positive or not and if I will require an endoscopy. I know I have to stay on gluten but is there any reason at all to continue on Lactose? Thank you for your advice!
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ARCHIVED Blood Work Tomorrow
Slr38 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Everyone, I had an appointment with my doctor today. I told her that I had not started the antibiotics for Lyme Disease because I believe I could have Celiac Disease. I told her my symptoms (again) and how they are also symptoms of Celiac Disease. I told her that I had taken the home celiac test and received a very faint positive result. She... -
ARCHIVED What Do You Miss The Most?
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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Thank you both for your replies, they were very helpful. I will be sure to have a list of symptoms with me. There is also a letter for the doctor that the Biocard people supply if you get a positive result. I will be brave! Thanks!
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ARCHIVED What Do You Miss The Most?
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh no! I think I will be gaining a few pounds in the next couple of weeks! I did not even think of the rye bread... I wonder if my mom could ( and would) make her German Christmas Stollen with a different flour. Are any gluten-free beers any good? No gluten in red wine, right? RIGHT?! -
ARCHIVED Home Test
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Nicole, Thanks for your suggestions. I actually put that book on hold for me at the library. It should be there by tomorrow. I will see what else I can find too. I will also check out Planet Organic tomorrow when my eldest is in kindergarten. PO is two minutes away and I have never been inside! I read that Amaranth has a Celiac registry and... -
Geez, after reading these posts I am so nervous for my appointment next week! I will be asking my doctor to send me for blood work to test for Celiac Disease. I am so worried that I may get a stupid reply from my doctor! I am not very good at sticking up for myself.
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ARCHIVED What Do You Miss The Most?
Slr38 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello Everyone, I have tested positive on a home Biocard Test and am having a lab test next week. I figure regardless of my blood work results I will be going Gluten Free. Since I have to stay on gluten until all the tests are complete, I might as well treat myself to everything I won't be able to eat after I cut out the gluten. Is there anything... -
ARCHIVED Home Test
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Home Test
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Any advice for someone who can't stop Googling about Celiac Disease? My appointment is not until next week and then I will probably have to wait until the following week for the blood test results. I don't know how to take my mind off of it! -
ARCHIVED Home Test
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow, we are neighbours! Thank you once again for the info. I am going to try and lie low and stop Googling until after my blood tests. I am driving myself crazy! I will keep you posted. -
ARCHIVED Home Test
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Do you know if you can still claim the tax credit for buying Gluten Free foods without having the endoscopy? Can the dr. give a medical certificate declaring celiac disease on Bloodwork alone? Thanks. P.S. I'm in Varsity so we are very close! Small world... -
ARCHIVED Home Test
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Maybe there are companies that ship to the US! If it does not mention any shipping restrictions then you should be okay. I called the pharmacy at my local London Drugs directly... -
ARCHIVED Home Test
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I ordered mine through the pharmacy at London Drugs. I ordered Thursday and it arrived today. They don't tack on shipping charges. A few other websites I looked at said 2 - 5 business days. Are you in Canada? The websites I saw said they only ship to addresses in Canada. -
ARCHIVED Home Test
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the reply. I too read that any line, even very faint, is considered positive. I was just doubting it because so far I have tested negative for every single test I have been ever tested for ( except pregnancy! ). I made an appointment with my doctor (again) but can only get in to see her next Wednesday. I was proactive though and... -
ARCHIVED Home Test
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, I think that was nsvmom. Thanks. We'll see what the lab says. I think I am finally narrowing in on what is wrong with me after all of these years! -
ARCHIVED Home Test
Slr38 replied to Slr38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for your reply. So a faint positive result on a home test could come out negative from a lab I guess.