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elbar

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by elbar

  1. elbar
    I would like ideas on what to eat for lunch. I work three days a week and eat lunch at work. I can manage when I am at home but it's those 3 days that are a problem. Does anyone have any suggestions? I don't have any gluten-free bread in the house, and judging by past experience, don't expect to buy any soon. I do like the rice crackers so that helps...
  2. elbar
    Thank you everyone for responding. To answer some questions, I am currently seeing an allergist and he's trying to figure out what's wrong with me. He said that even if I had celiac disease 56 years ago, it's possible to not have it show up now. He's doing loads of tests so if I hadn't had all the necessary tests previously, I have now. I have had several...
  3. elbar
    Thank you for your responses. I haven't been gluten free for 56 years but have had the rash that I believe is Dermatitis Herpetiformis for as long as I can remember. It's because I know once you are a celiac, you are always a celiac. That is the main reason I keep feeling I have the disease in spite of what all the doctors and tests say. This website...
  4. elbar
    I have had just about every available test for celiac disease and they have all come out negative. However, I believe I have all the symptoms and because I had celiac disease from the age of 8 months old to eight years old, I deeply believe that I still have it. All the doctors that I have seen say they are complexed about it and that I am "Unique". My...
  5. elbar
    I'm sorry my question wasn't as clear as it could be. The reason I started thinking about celiac disease again after all these years was that my dermatologist diagnosed DH the first time I went to her with this weird skin rash. When my history was taken, she seemed quite definite about the diagnosis. Then, I went through all these tests and even though...
  6. elbar
    I have had every test possible for celiac and/or DH and they have all come back negative. These include endoscopies, blood tests, biopsies, etc. I was diagnosed 58 years ago with celiac disease and, therefore, am concerned that if I can't be cured, as they once thought I was after 8 years on a special diet (they didn't know about gluten then - I just couldn...
  7. elbar
    Good Morning everyone, I have been dealing with the possible diagnosis of DH and hope someone in this forum can answer my question. I have recently had all blood work, given stool samples, had an endoscopy and colonoscopy for the diagnosis of celiac disease and they have all been negative. However, since I was diagnosed with Celiac Disease at the age...
  8. elbar
    Has anyone ever tried this? The information is from the Celiac.com website and sounds very promising. I have tested negative on both the endoscopy and blood test, however, have reason to believe both tests weren't correct in their response. I had Celiac Disease for the first 8 years of my life and find it hard to believe, in view of everything that I have...
  9. elbar
    I need help with staying on a gluten-free diet. In August, I was advised that I had DH and had to have a gluten-free diet. I started immediately and for the first three weeks felt great. I hadn't had any intestinal problems and if it was celiac disease, it was only manifesting itself in the skin. (I was diagnosed with celiac disease 62 years ago and have...
  10. elbar

    ARCHIVED Dh

    elbar posted a topic in Dermatitis Herpetiformis

    I have had an endoscopy, internal biopsy and the IgA antibody test and all reports are negative for celiac disease. However, I think I have DH (I am getting a skin biopsy tomorrow for the final piece of the puzzle) and have a question. Could I still have DH with everything else, including blood work (my IgA was 3) being negative for celiac disease? ...
  11. elbar
    Is it possible to have Celiac Disease when all endoscopy, internal biopsies and celiac blood test say otherwise? I think I may have DH and I'm having a skin biopsy at the end of this week but I am concerned about it and would like to find out more about the chances of having Celiac Disease and not having any tests confirm it. I was diagnosed with Celiac...
  12. elbar
    Hi, I have always been told that I was diagnosed with celiac disease at approximately 7-8 months old and was on a special diet for 8 years. During that time, the only food that I could have a lot of were bananas and I had terrible diarrhea during that time. My parents were told I was cured, but as I got older, and the Internet became available, I went...
  13. elbar
    I need advice and am hoping to get it here. I was diagnosed with celiac disease 62 years ago and after 8 years on a special diet, my family was informed that I was cured. Apparently, according to Canadian medical journals, if it can be caught before a year, it can be cured, or so I always believed! Now, 54 years after the "cure", I went to a dermatologist...
  14. elbar
    I had an endoscopy and biopsy last week and am now awaiting the results. The doctor said initially, after doing the endoscopy, that he didn't see any evidence of celiac disease. What I would like to know is, will the biopsy show anything that the endoscopy doesn't show? Just what does a biopsy look for and how long do you have to have been on a gluten...
  15. elbar
    I am looking for an answer to a question that I have been wondering about for a while. I was diagnosed with celiac disease as a baby 62 years ago and my family was told that I was "cured" after 8 years on the special diet. Now I have found out that, while I didn't get any G.I. symptoms over these 54 years, apparently I did have DH symptoms and that was...
  16. elbar

    ARCHIVED Dh

    elbar replied to elbar's topic in Dermatitis Herpetiformis

    I was recently diagnosed with DH but had no digestive problems. If you are glutened, what happens - do you start itching? I've been glutened accidently a few times and I not only get the itching and blisters back but also GI problems. Does anyone else get that also? Thanks for your responses. elbar
  17. elbar
    Anyone out there in the Greenfield, MA area? I've been re-diagnosed after thinking I was cured for 54 years. I never wanted to believe any of the health professionals or the material I ever read that said you can't be cured. I guess I wanted to believe I truly was cured! Anyway, now I have DH and am trying to follow a gluten-free diet which almost seems...
  18. elbar
    Does anyone know if Revlon lipsticks are gluten-free? Thanks. elbar
  19. elbar
    Do you remember the brand name of these Asian crackers because I had some for lunch and I'm now feeling like I've been glutened. The ones I had were made by the Asian Gourmet company. Thanks. Elbar
  20. elbar
    I'm trying to find gluten-free hand lotions and shampoos locally and am not sure of my favorite brands. I currently use Garnier Fructise shampoo and hair spray but I have several different kinds of hand lotion, Equate (from Walmart) St. Ives and Creative Scentsations. Does anyone have any answers on the above products or information on other items that...
  21. elbar
    Does anyone know if the Cincinnati Chili seasoning packet contains gluten? After reading the ingredients carefully, I think it doesn't but I want to be sure before I make it. Thanks for your help. elbar
  22. elbar

    ARCHIVED Dh

    elbar replied to elbar's topic in Dermatitis Herpetiformis

    My itching stopped almost immediately after going gluten-free. I have read on these message boards that it can take quite a while, I guess I was just lucky to have such quick results. Hopefully his miracle will happen soon. Elaine
  23. elbar

    ARCHIVED Dh

    elbar posted a topic in Dermatitis Herpetiformis

    I have been diagnosed with DH and have been on a gluten-free diet for a month. I licked an envelope this morning by mistake and by 11:00 a.m., my stomach was protesting very vividly! I didn't get diarrhea when eating gluten in the past, however, the itching was unbelievable. I'm wondering if having a small amount of gluten now, after being gluten-free...
  24. elbar
    Hi Claire, Your rice pizza crust sounds good - I'm still looking for a good substitute for pizza crust and would like to receive your recipe. Thanks, Elaine elbar63@comcast.net
  25. elbar
    Hormel Turkey Pepperoni is gluten free. The information is printed on the back of the packet, along with the ingredients and it's very good!
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