ABQ-Celiac

Hi Colleen! I've been on the forum for about 20 months and I can't tell you how many times I've picked up life-altering suggestions on all manner of Celiac conundrum. I'm so grateful this community exists. And, I really thank you for your thoughts below. These are all great suggestions that I'm going to spend some time on. As for the probiotics,...

What about anyone else. Does anyone suffer from depression because of celiac? How do you get out of a terrible day?

I thank you so much for the ideas. I have had the thyroid tests and been tested for vitamin deficiencies. I also have intolerances for soy and dairy but completely avoid them. All I eat are eggs, ham, rice, chicken, and hello.

Hi. Thanks for all the thoughts. I had antibody tests and endoscopy to confirm diagnosis. My antibody's went from >225 to 10 and have remained. I'm awfully sure I'm not getting glutened as I'm a neat freak and a nut about keeping things separate, but of course it's a possibility. Veggies don't do well with my stomach, causing flatulence and bathroom...

I'm 21 months past my diagnosis. The first few months saw great improvement, but now almost 2 years later I still have terrible fits of crippling nausea. All I can do is lay down and wait for it to pass. I have diarrhea 2-5 times a month, all through the night, clammy, sometimes cold sweats. I've had to miss some work because of this. And during the bad...

When I was first diagnosed, I found such a great amount of comfort on this forum. Lately, I've noticed - not just in this thread - this self-satisfied notion among "long time" celiacs and a real condescension to anyone who hasn't been at it as long. It's turned me right off. Minimizing the experience of "newer" celiacs will drive them away. Like me...

It's so funny how different we all are. After almost 9 months off from all dairy and gluten, the only thing that enters my dreams, the only thing I get physical cravings for - bread. I can't imagine that I'll never enjoy bread again. It fills me with a really profound sadness. Pizza. Okay I can live. Bagels. I miss them but its okay. Donuts, all right...

Hi Bart. I've only been gluten free for 8 months. I have to heartily disagree on the bread thing. I've been through every gluten-free bread imaginable, even dropping a lot of money at one of the most talked about gluten free bakeries in the country (Revolution in Santa Fe), and nothing - for me at least - comes close to regular bread. I appreciate your perspective...

Hi! Yes, I wasn't diagnosed until I was in my 50s, so the amount of damage was fairly extensive. I still have bad nausea days, sometimes from cross-contamination, sometimes - as my doctors say - because my stomach is just doing the best it can. We had an RV years ago, though, and are thinking of getting one again. Cheers!

I think I'd try it because I find it difficult to eat gluten free everywhere, travel, out for an evening, etc. I simply miss bread. I hate to be such a weenie, but for me, there's nothing like real bread. If the testing goes well, I'll be in line to try the drug.

After eating gluten and dairy free for 9 months, I made my first long car trip. I used to love road trips: pizza, Chinese food, and fast food all day! But this year I packed my rice cooker, toaster, and a cooler with ham, frozen chicken, ketchup, bacon, eggs, soy sauce, and then a bag of the life-saving Mi-Del cookies and Glutino crackers and nutrition...

Good luck! I travel with a rice cooker and in a pinch, mix in plain Wendy's burger patties or Burger King tenderloin chicken patties. If you REALLY talk to the counter people and explain you just need one of their patties cooked by itself, it's not impossible. And I travel with Glutino snack bars. They are not delicious, but they do give me some energy for...

For those newish celiacs with secondary lactose intolerance, like me, I wanted to give a shout-out of encouragement. When I was first diagnosed in October 2012, one of the hardest pills to swallow was my secondary lactose intolerance. I couldn't imagine living without dairy. I read on this forum and many others that secondary lactose intolerance often...

I'm a 50+ year old man. For more than 4 months I suffered severe nausea and diarrhea. After countless tests of various types, I scored >225 on both antibody tests. Before we did an endoscopy, I switched to a gluten free, dairy free diet. The first 10 days were terrific. I felt a lot better immediately. But then for 2 months I had good and bad times...

I appreciate your input! I am keeping a good food diary and indeed too much fiber makes me worse, too much fruit, for example. Pork and beans is hard on my stomach. My go-to food is rice. It can be fixed a number of ways and it never seems to bug me. I love this forum. I've learned so much.