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Gcbec

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gcbec

  1. Gcbec
    Thanks Kendra, I know it is so scary and shocking. I think its a good time to ask this question, How many people here go to dr with complaints and symptoms that they see at home, but when they are in Dr office they are not visable. In this I mean, stomache aches, headhaches ect. What sympotoms does everyone tell the dr their children are having, and...
  2. Gcbec
    I am trying to get into Columbia, thats where I should have went to begin with. The test was done last september do you think it could still be sent?
  3. Gcbec
    What was your sisters outcome? I dont know if there is a support group on my area. But I know that everyone here has been wonderful. Thankyou I know what you mean, reading everyones responses I cant choke the tears back either. I have been saying I thought it was celiac since last September when they ruled out cancer, I just knew it would...
  4. Gcbec
    You are correct I think 95% of everyone here could be in the same situation if they had seen the wrong dr. Unfortunatly for me we did. BUt I am seeing light in my dark tunnel thanks to the supporrt from everyone here. We are not able to get him to dr for this nor are we allowed to suggest this in any way unless a dr actually will diagnose him. I dont...
  5. Gcbec
    That is a very good idea. My hopes were to get him in to be checked at Columbia but that doesnt seem very possible. So what would be the next best thing I suppose would be to get involved with expert wittness or expert dr in the feild that can review all his medical charts and if anything give the probability of my son having Celiac. I know it wouldnt...
  6. Gcbec
    I agree the only Dr name I used was Dr Green no personal dr names were mentioned not even the accusing dr name was mentioned as far as I see.
  7. Gcbec
    Yes we had 2 court appearances, the first one we recieved petition. The second time we were denied any contact with my children they even placed an order of protection against my husband and I. They claim if we see the children we might phychologically make them sick. We are dealing with a Dr and a judge that are trying to get another notch in there belt...
  8. Gcbec
    Hi Tavi, My son was also on Adderall, and when he was taken they stopped this medication. As far as his headaches and fevers they have stopped. As far as his poops and belly aches they have not. The problem is we have no contact and cant be for sure of how things really are. My parents were there and wittnessed his severe poopy episode after he had...
  9. Gcbec
    No there were no "charges" but allegations. They claim I have Munchausen Syndrome By Proxy which is that I lied about my sons symptoms to get attention from Dr's. Basically I took him to to many dr's for attention and as a result of my "lies" my son recieved unnessisary and potential harmful medical tests. Now as everyone here knows, Celiac is so hard...
  10. Gcbec
    Again, I must say I am overwhelmed with everyones responses. For weeks my husband and I have been trying to figure out what to do. I am going to try to answer as many questions as I can. Dr Greene was sent a message by his administrator at Columbia, she said there is a long waiting list and because my son was not a patient and becasue of the situation...
  11. Gcbec
    You are absolutly right OMG I feel like coming here was the best thing I could have ever done Thankyou.. How would I get in touch with them? Yes I think getting this to media would be great but my attorney feels we should not until a ruling or find can be made. He thinks that the judge would have to cover up for mistakes and find someting else to charge...
  12. Gcbec
    I am sitting here with tears rolling down my face reading everyones response. My heart aches for my children, every breath I take hurts. My attorney is very good, he is also helping another mother accused of the same thing from the same dr. The only way to get my son tested and seen by Columbia is to get court order. When I spoke to Columbia this morning...
  13. Gcbec
    Well, we spoke to Columbia and they told me this am that they need to see him. But they are willing to review his blood work and based on history blood work and me having it they are trying to see if they can send a letter to comirfm. I would think that if they have any (which they dont) morals at all they would IMEDIATLY realease my children. I can tell...
  14. Gcbec
    Hello, My name is CIndy and last August I was diagnosed with Celiac disease. At the time I didnt think much about it but looking back I should have done alot of things differntly. I am a mom of 2 children 9 and 6. Last year while I was being diagnosed with Celiac my son began having difficulties as well, and he had problems since birth with severe reflux...
  15. Gcbec
    Thankyou all so much for the information. I am gonna start the diet as soon as I can. I still am left wondering if anyone here has had lots of dammage and besides diet was anything else done? And has anyone here ever moved on to late stages like cancer? I am going to a specialist in NYC Dr Peter Greene so hopefully that will help. Thanks again and I...
  16. Gcbec
    No Dr just told me yesterday. I have been in denial for some time, didnt expect this at all. She said I should start imediatly. I dont know where to start, she set up appointment with nutrisionist on tuesday.
  17. Gcbec
    Ok here I got, Hello my name is Cindy. I am 36 and was just told yesterday that I have celiac disease. This has been going on for several years really, I also have Lupus Hypothyroid, SVT, and a blood clotting disorder oh yeah and anemia. It really started 7 years ago when my daughter was born 3 months premature, I had blood clot in my lung then a few...
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