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musikate

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    Diagnosed (by various doctors) with: IBS, narcolepsy, sleep apnea, asthma, depression, acid reflux, hemorrhiods, fibromyalgia, adenomyosis, and being a total pain in the ass.<br /><br />One GI diagnosed me with Ulcerative Colitis (after a colonoscopy), but two other GIs did subsequent colonoscopies and said they were normal.<br /><br />Positive tissue transglutaminase test 2003 (but the doctor just told me about it in August 2005), but since the biopsy was normal, he says I don't have CD.<br /><br />sons<br />Charlie, 5, probable CD<br />Jack, 9, Asperger's Syndrome, possible CD <br /><br />Hernia repair, 2000; Total Abdominal Hysterectomy, June 2005<br /><br />GF since early August, 2005

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  1. musikate

    Happy birthday and may God bless you today!

  2. musikate
    Ladies and gents, the only substitute for sex is...well, there is none. And it's ALWAYS gluten-free (or can you get traces of gluten if you swallow?)...
  3. musikate
    Maureen, True food allergies manifest with typical symptoms of anaphylaxis, eg, hives, constricted throat, wheezing, etc. You would know if you had them. celiac disease is not a food allergy. Kate
  4. musikate
    "So for me, gambling some money on some well-researched or doctor-recommended unproven treatment that won't hurt me, but might help me feel better is a well-placed bet. You win some and you lose some. But if it won't hurt then why the heck not? Well, maybe I shouldn't have spoken up because I'm new, but this, on a board for a disease that some doctors...
  5. musikate
    celiac3270, Dahlink, please send me a copy...tcherkate@yahoo.com
  6. musikate
    Here's a good article on the subject, which lists LEAP testing specifically as a dubious claim. It is also listed as "investigative" on Blue Cross's policy manual (just curious: did your insurance pay for these tests?). Open Original Shared Link
  7. musikate
    I repeat my assertion, It would seem that in order to design a truly blind clinical study, there would need to be three test groups. One would be a control group that did not change anything. Another would be the test group, which would follow the LEAP Program. A third, and most important group, would be given all the tests, given a list of ingredients that...
  8. musikate
    Do you have a Trader Joe's? They have great gluten-free salsas and other condiments!
  9. musikate
    Hi, We with unremitting symptoms are quite vulnerable to dubious claims. I do not know if this program is legitimate, but it certainly has a list of creditialed physicians on board. I do not, however, see a lot of clinical studies that support it. There are testimonials galore, but you can find testimonials for just about anything out there, from snake...
  10. musikate
    Do you have a website? Can you give me your address? I live about 1hr and 20 min away from Bethlehem.
  11. musikate
    Where are you located? I want to go eat there, then hug you!
  12. musikate
    Hi, celiac3270, I've read a lot of your posts and respect your opinion; it's hard to believe you're only 15! Regarding your malrotated intestines, I had a doctor diagnose me with volvulus of the splenic large intestine once. He didn't suggest that there should be anything done about it, though. From what I understand from reading and from other doctors...
  13. musikate
    I think it's been almost a month since I went gluten-free. I had a positive tissue transglutaminase antibody test, but a normal biopsy. So my GI sent me a letter saying he personally did not believe I have celiac disease, but that it wouldn't hurt to try the diet. I have been vigilant about avoiding gluten. However, my family doctor did a blood test last...
  14. musikate
    I want you to know you're not alone. I also have narcolepsy and celiac disease. When my pain and diarrhea are bad, I will sleep through the entire day. Sometimes I have to drive in the morning, and I am terrified I will fall asleep. I take Provigil, but it hasn't helped me much. Coffee makes it worse because it exacerbates the diarrhea. I just hope that...
  15. musikate
    My favorite simple dinner: chicken breasts or fish fillets, dipped in beaten egg, rolled in a mixture of cornflake crumbs and nut meal (almond or walnut is available at Trader Joe's) with salt, pepper, and spices. Fry it till it's golden brown and drain on paper towels. Takes about 20 minutes from start to finish. Serve with veggies, salad, or mashed...
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