chickpea77

So, we went to see the pediatric gi today to get C's results (Marsh 3a), and when I asked if I could get a copy of the results she said that I would have to go through the medical records department to get a copy of them because they are only put into his file, not given out. Is this common practice? I have read that I should be getting a copy for my own...

Results are in and he tested......POSITIVE!!!! So happy to have an answer now!!! I am not excited that he has Celiac Disease, but it could be a lot worse. Counting our blessings! Thank you for all of your support through the testing process, and putting up with my craziness! Xoxo! You guys are wonderful!! Thank you!!!

Fantastic!! Congratulations!!

Waiting, waiting, waiting, lol. I called the Dr's office last Friday and left a message for someone to call me back. A nurse called me back on Monday and apparently the Dr is on vacation until next Tuesday. She told me to call next Tuesday and she would probably give me the results over the phone. Things are going well here otherwise though. I just watched...

Argh.. the Dr said she should have the results approx 2 weeks from the scope.... I will call her then! As for the time being.... I am slowly going crazy, 1, 2, 3, 4, 5, 6 switch!

Thank you for your responses He has been gluten free since Wednesday and I can already see a difference in him. He has more colour in his cheeks, his face sees fuller, he has been eating a lot more, and the scale has gone up 3 pounds!! Since Wednesday!! I KNOW that he has Celiac Disease, I guess I am just so worried about not having a definitive diagnosis...

I guess the title of this thread says it all, lol. I am not very good at waiting for results, and our follow up test is almost a month away Just wondering what the likelihood of getting a negative biopsy result is in a 6 year old with this bloodwork along with visible changes during the endoscopy? He has been gluten free since Wednesday, just curious...

So, we just got back from the scope. The Dr told us they saw some slight redness, and then in recovery the nurse was reading the chart and said that they found some scalloping.... any opinions on what that might mean?

My son eats some gluten every day, but not much at all. We took him off of gluten altogether for 2 weeks over Christmas just to see how he would respond. His total demeanor changed, no more belly aches, much happier.... We decided to take him to the dr after seeing the results. We had bloodwork done and his ttg iga came back 25 (20-30 weak positive). We had...

My doctor says he always checks anyone with low iron for Celiac Disease because it is often one of the major signs.

So we went to the Ped. GI this morning and my son is booked for his scope next Monday morning. They will take 6 biopsies. I was concerned that because his only positive test (tTG iga) was only at a 37 (20 - 30 weak positive/ >30 moderate to strong positive) that the biopsies would be negative/inconclusive but the Dr didn't seem too worried about it and...

2 days until we see the Pediatric Gastroenterologist.....I don't know why I am freaking out so badly because, regardless of what s/he says the issue is, he is going gluten free.... a weak positive ttg, then a positive ttg, a tummy ache every single time he eats and they seem to be getting more painful, plus I have celiac disease too.... There is no way I...

Thank you for your suport This has bee a stressful time. Honestly I am most worried about the scope because of what happened last time he was put out (he was tongue-tied and had to go for corrective surgery at 4 years old). They practically tore him off of me while he was letting out blood curdling screams staring at me and reaching for me as they took...

So, we got the results from the repeat blood test today. His ttg iga went from a 25 (weak positive 20-30) to 37 (moderate to strong positive >30). He was still negative in his gliadin iga (he got a 4) and gliadin igg (he got a 13) {both of these are <20 negative}. His total iga was in the normal range and his EMA came back negative. Dr. said he is pretty...

Thanks for your words of support.... did i mention that i love it here?!