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BELMO33

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Everything posted by BELMO33

  1. BELMO33
    What was your score on that DGP IgA Test? I scored a 20 on by DGP IgA with nothing else positive, 6 months later I decided to do the blood test again with a different GI and it was a 16, all other ttGs and the IgG were similar or lower than the first test, the DGP IgG which was 12 the first time was 6. The 2nd GI I saw was more specialized in celiac and...
  2. BELMO33
    I anticipate initially this vaccine is going to create problems because people are going to think its the equivalent of lactose intolerants take that completely allows the body to break down lactose and will go completely off their gluten-free diets. From what I'm reading or understand this is just a 1st step in that it basically prevents cross contamination...
  3. BELMO33
    I've tried to find what % of knowing celiacs follow the diet. The only stat I could find was one site that stated anywhetre from 50-70%, not sure if anyone else here as seen numbers on that. When I first got the diagnosis I certainly said some dumb stuff and said I'd rather have a few other conditions than this. I know people with Crohn's and UC...
  4. BELMO33
    I am awaiting biopsy in 7 weeks but I have read some discouraging stuff the last few weeks since my blood results researching the condition. I've seen anything from numerous people claiming the gluten-free diet actually made them diabetic to only 50% of people are healed after 5-10 years since cross contamination simply occurs way too often to get back to...
  5. BELMO33
    I'm awaiting biopsy but am testing gluten free foods. I tried Vans frozen waffles and blehhh did not like, bought some nature's path waffles and those were much better to me, alot closer to eggos. Any other brands out there? I did not see any others in Whole Foods or Trader Joe's. I also cannot find gluten free pancakes at either store at all though I...
  6. BELMO33
    To answer the endoscopy quesiton, it can often be "negative" in people with positive blood results because a large majority of gastroentorologists do NOT take enough samples, there have been studies showing most are surprisingly unaware how many samples they really need to be taking. In someone who may have only had celiac for 2 or 3 years its entirely possible...
  7. BELMO33
    I've always had "streaky" night sweats where I can go months at a time sometimes even a year or two with no problem and then I repeteadly wake up sweating most nights in a span of a week or two, never could really connect it to anything but remarkably when its happening it can do so even with brief sleep periods, I've gone to bed at 2am and woke up sweating...
  8. BELMO33
    I expressed my desires about the blood test and was sort of rebuffed. Doc claims that the borderline IgA and negative EMA in no way is a guarantee the disease is recent at all, said someone with the disease for 18 years can have a 21 IgA and negative EMA while someone only having it for 18 months can have a 40 IgA and 600 EMA...no guarantee that the #s suggest...
  9. BELMO33
    No, didn't have the follow up yet so no specific one on one conversation. I've come across some research that shows surprisingly these are not exactly the breakdowns you want to see as a potential celiac. Although most argue a non positive EMA that falls decently within normal range means less intestinal damage and the likelihood you've caught the condition...
  10. BELMO33
    Just got the results of my tests. This reeks of very recent development of celiac disease to me. Any ideas? With the marginally positive IgA and somewhat high negative IgG, also note the borderline negative transglutiminas IgA at 3. Of other note all bloodwork at my general physician in Decmember was normal including RBC, hemoglobin, iron, calcium, and...
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