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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by MissyShelle
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ARCHIVED Just Got Home From Surprise Endoscopy
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you everyone. He was awesome. I was so impressed. Now it's just the fun of waiting around, lol. -
ARCHIVED Just Got Home From Surprise Endoscopy
MissyShelle posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I went in this morning for my colonscopy. While there, he asked about my symptoms and we decided to go ahead and do the endoscopy. He got about 6-8 samples and said I should have results within 2 weeks. I was so pleased. I didn't have to fight for it or anything. So, I can now go gluten free with confidence. I feel overwhelmed by it but glad to... -
ARCHIVED How Do You Afford It?
MissyShelle replied to MissyShelle's topic in Coping with Celiac Disease
Thank you! I'm thinking I'm actually good to go for the most part. No cast iron or teflon. I'll get rid of my wooden spoons. I do have glass measuring bowls/cups. I have two blenders. One I have used just for my smoothies: nothing gluten there. I'll just replace as I can. And quite a bit of my bakeware is glass, thank goodness. Thank you, everyone... -
ARCHIVED How Do You Afford It?
MissyShelle replied to MissyShelle's topic in Coping with Celiac Disease
Thank you! That is a bit more reassuring. When I first mentioned it to my daughter, she was like "Uh, that's going to be expensive. Can't we just clean it really well?" I am also hoping to not get withdrawals! I am in the final weeks of classes at school and so do not want to get sick on top of it. Guess time will tell. And the way I figure it, I've already... -
So, tomorrow is my "Go Gluten-Free" day. I have read and read for a few weeks on all the steps I need to take to avoid CC. However, one thing is a huge issue: my cookware. I do not have the funds to afford replacement. I just don't, not right now. The toaster will be easy for a while since I won't be using it since I'm not eating any of the marketed gluten...
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ARCHIVED Blood Work Done: Going Gluten Free?
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's a good idea, thank you. I'll do it that way as well. I will ask my dr. about it Monday when she calls to see if I should be doing anything else. But I think I'll just stick to the smallest amount I can until the endoscopy, if they do it after I get my blood results. -
ARCHIVED Doctor Says I Should Take Anti-Anxiety Meds...................
MissyShelle replied to nosy parker's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with this completely! I went through this years ago when I had a hysterectomy at 24. I had just quit nursing 2 weeks before it and my hormones were already nuts. I went to dr complaining on hot flashes, dryness, etc. He wanted to put me on depression meds. I told him no, found a new dr and had testing done that proved I was in menopause! My dr now... -
ARCHIVED Blood Work Done: Going Gluten Free?
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I so know what you mean. The mouth sores bothered me, too, but luckily, aren't contagious. If I get the blister on my lips, they go away fast and I'm sure no one notices. At, least no one has said anything. -
ARCHIVED Coffee
MissyShelle replied to solitaire-master's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm the same way. If I have my coffee black (my preference), no issues at all. But my daughter brought home a flavored creamer (non-dairy, she has severe milk allergies), I felt horrible! So I just stick with what i like and what doesn't make me sick. -
ARCHIVED Blood Work Done: Going Gluten Free?
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Smylinacha, For me, the rash is my scalp (so uncomfortable, so started a new shampoo, not helping!), little on face, neck, chest, back and arms. Exact same places every single time. That was one thing that also made my doctor take notice. I have a man... -
ARCHIVED Blood Work Done: Going Gluten Free?
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It was, thank you. I know, in the past, once I see my G.I. doc, I'm usually scheduled for the colonscopy within a week due to my history, so I don't think 2 weeks gluten free will mess up anything if they do the endoscopy. I'm going to start Monday and see how I feel from that point on. thank you. -
ARCHIVED Blood Work Done: Going Gluten Free?
MissyShelle posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As I stated in a previous post, I had my blood work done Wednesday this past week. I discussed with the doctor about going ahead and going gluten free. She was supportive of it, regardless of my results due to my symptoms. But I also told her I am worried about doing it in case they do an endoscopy at the same time as my colonscopy and that being gluten-free... -
ARCHIVED Blood Test Today: Such A Great Doctor
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry, I'm in MO. I lucked out finding her. -
ARCHIVED Blood Test Today: Such A Great Doctor
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you! Her and I did talk at length and decided that with my G.I. background being so worrisome, even if the tests come back negative, it wouldn't hurt me to go gluten free. So I'm going to consider it regardless. However, I know myself very well and without a positive dx, it'll be easier to cheat. Sigh, I always admire those with willpower. -
ARCHIVED Blood Test Today: Such A Great Doctor
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you. It really puts my mind at ease to have a doctor so willing to listen and to order testing and be so proactive. I adore her. She is also going to work with my G.I. to take the necessary steps to get my insurance to cover a specific genetic test to check for markers re: my history of precancerous polyps since I was a child. So yeah, lots of... -
ARCHIVED Blood Test Today: Such A Great Doctor
MissyShelle posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I finally saw my doctor today. She was amazing. I told her my symptoms and she was right on top of it and actually suggested the Celiac Panel (or whatever it is called ha!) before I mentioned it. Also, with my history, I'm seeing the GI doctor on the 2nd of April. A fecal occult test came up positive, which isn't surprising since I have had colon polyps since... -
ARCHIVED Crazy Update; Waiting On Tests For My Daughter Now
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The thing is, the doctor said her overall blood work looked good, it was just her hemoglobin that was so low. So we are heading to hospital tomorrow for more tests and possible transfusion. Man, it's been a long 2 weeks in my household. -
ARCHIVED Crazy Update; Waiting On Tests For My Daughter Now
MissyShelle posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, got insurance settled and I head to the doctor first thing Monday morning. However, today has been a rollercoaster. My oldest twin wakes up screaming that her legs hurt. Head to doctor. They do a routine blood panel (but N.P. throws in a few extra tests on a hunch) and we just suspect maybe a low potassium level. Get an urgent call 2 hours later... -
ARCHIVED Why Are Drs So Hesitant To Test?
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree 1desperateladysaved. Even years ago when my G.I. brought it up, it never occurred to me since I attributed my symptoms to polyps and the symptoms I am having now were not present. So I went about my life and just figured, as a woman, bloating and other symptoms were part of it and just be careful what I ate. I was hanging out with girlfriends... -
ARCHIVED Why Are Drs So Hesitant To Test?
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Butterflychaser, thank you for the answers. I do agree with what you said. I know when my Mom was sick many years ago, doctor after doctor kept pushing her around to a different doctor with a new set of medications. My sister worked for an amazing OB/GYN, made one call and got my Mom in and we found out she has very advanced cancer. It didn't end there. One... -
ARCHIVED Why Are Drs So Hesitant To Test?
MissyShelle posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have been reading through these forums as if I was studying for a final and one thing jumps out at me: How many posters state that they have to convince their doctors to test them. Why is this? If we go in with the money to pay for it or insurance, why not do the test to put us at ease or possibly (as was the case for many) finally provide a definite diagnosis... -
I get dizzy too, really bad. I'm glad to find out if may be connected to Gluten since the doctor's had no idea why I had it. I'm waiting on blood tests. Once I'm done with testing, I'm looking forward to going gluten free to see if it helps with all of my symptoms.
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ARCHIVED New Here
MissyShelle replied to MissyShelle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, the rash was even worse yesterday so I went in to be seen. They gave me some anti-histamines and a shot to relieve symptoms. It's helped a little, mainly I just slept for 14 hours, ha! I did have a bit of gluten at breakfast this morning and already feel more itchy as well as nauseous and bloated. So I think that I'll be gluten-free the rest of the... -
ARCHIVED What Ails Me?
MissyShelle replied to solitaire-master's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm right there with you and also in the process of getting answers. One thing that will (sadly) help me get testing done without a fight is my long history of colon problems. MY GI specialist even asked a few years back if I had specific symptoms related to Celiac. At that time, I was not. I also take vitamins but made sure to check that they were gluten... -
ARCHIVED How Long Before You Get Sick, After Eating A Reacting Food?
MissyShelle replied to bekkaz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For me, it's usually not long before I am very bloated and just ugh feeling. It's usually within a few hours or the next day that I am having D. I hope you find answers soon!