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KristinIrwin

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by KristinIrwin

  1. KristinIrwin
    Hi all! I have been gluten free since May 1st and I finally feel almost 100% back to my healthy self, thank goodness. I also gave up dairy as recommended by my doctor. I was wondering how soon you guys were able to have dairy again after you gave it up? I know the only way to see if I can tolerate it again is to try eating it, but I'm just feeling...
  2. KristinIrwin
    Try Ensure Plus once or twice a day! It has worked incredibly well for me
  3. KristinIrwin
    Notme! The same thing happened to me! So freaky
  4. KristinIrwin
    RMay, I know what you mean by feeling like there is a knot in your intestines! Before I was diagnosed I almost always felt discomfort in my intestines like that. I also had constipation as well as a first symptom. I had a lot of pressure and pain my upper abdomen. All those symptoms are gone now that I am gluten free. I know I can't say whether...
  5. KristinIrwin
    I was recently diagnosed and I really want to go out for sushi, and i know that most simple sushi (except most crab) is often gluten free. Koi Sushi & Thai is very close by and I was wondering if anyway has any experience with their sushi that they can share? The woman on the phone said that they have sushi that is gluten free but I'd like to hear...
  6. KristinIrwin
    Ah, never thought of food coloring. I have rarely eaten foods with food coloring since I switched to gluten free so maybe that's it! I'll definitely not try them again. Thanks guys!
  7. KristinIrwin
    Okay so I know that Post claims that their fruity pebbles are gluten free. But I ate them the other day and had AWFUL stomach cramping. I didn't really see the connection then, so I ate them again this morning and I'm having bad symptoms again. Fruity pebbles are the only new thing I have added to my diet in the past week. I was only diagnosed about...
  8. KristinIrwin
    My very first celiac symptom was chronic constipation. For months that was my only symptom- no pain, just never being able to go! I know it's the worst feeling and I'm sorry you've been dealing with it for so long I hope if you talk with your doctor he will be willing to do a blood test. I know the IBS diagnosis can be an annoying one to get. But DON...
  9. KristinIrwin
    I had a positive ttg and then had a biopsy. I was told on the phone that I had a negative biopsy and then when I looked at the pathology report WEEKS later it said I had slight gerd and an increase in intraepithilial lymphocytes and that a full celiac panel was needed to truly exclude celiac disease. (My first doctor was awful) Then, my celiac panel was positive...
  10. KristinIrwin
    Thanks everyone. This disease is just such a bummer! Did you guys have a lot of absorption and food digestion issues too?
  11. KristinIrwin
    Okay so I'm newly diagnosed (a few weeks ago). I've only been truly gluten free for just under a month, so I know I am still healing and need to be patient. I'm still having abdominal pain occasionally and my BM definitely aren't normal by any means. I still have weird symptoms (cramps, gas, discomfort) and keep getting worried that something else is going...
  12. KristinIrwin
    That happens to me too! It's really creepy. I don't know why it happens but I thought I'd let you know it happens to someone else Kristin
  13. KristinIrwin
    Thanks Michelle1234 and nvsmom! I already have a good probiotic. I will look into both of the things you guys mentioned. How often did you guys take them when you were first healing? I know it's probably different for everyone, but did you guys take them at every meal, once a day, or what? Thanks! Kristin
  14. KristinIrwin
    Hi guys! I finally got an official diagnosis from a new doctor today. Not to say that I'm happy I have celiac disease.. But am happy to finally have a diagnosis Anyway, My doctor mentioned taking digestive enzymes and I was wondering if anybody could tell me what has worked best for them? Thanks! Kristin
  15. KristinIrwin
    Thanks guys! All of these links were extremely helpful. I want to slam this on my old doctor's desk and maybe he'll realize how little he knows about celiac testing, but obviously I never want to see him again! Thanks again guys, I'm definitely going to show my PCP all of my tests results and hopefully he'll realize that three positive blood tests and...
  16. KristinIrwin
    My doctor acted the same way! Anyways, I had those symptoms for about two and a half months- every single day. After being 100% gluten free it only took about three weeks for those symptoms to go away completely! I was so relieved. Three weeks may seem like a while, but I'm sure since you've been sick for so long that three weeks seems like three minutes...
  17. KristinIrwin
    I'm sorry you're having trouble! I also had the lower right pressure and pain as well as movement when I would lay down at night in the past. It was so disturbing! It scared me so much. I also always felt like I still needed to go to the bathroom, despite going every morning. If celiac or gluten intolerance is what you actually do have, I just wanted...
  18. KristinIrwin
    Thank you all so much! I think it's so obvious that I have celiac disease, and hopefully my PCP can diagnose me officially. I hope nobody else ever has as bad of a doctor as I did! Another question: Nothing else can cause a positive EMA except celiac right? Kristin
  19. KristinIrwin
    Yes I'm back. My story is getting ridiculous. Okay, I had a ttg blood test done in February and my result was 7.9 with a reference of < 4 So my doctor performed a biopsy on March 13 and the pathology report reads: "Benign duodenal tissue with preserved villois architecture. Patchy mild nonspecific increase in intraepithelial lymphocyte. Correlation...
  20. KristinIrwin
    Okay so I feel like I am always posting on here but I have another question. My doc ran a ttg on February 22nd. Mine was 7 with 4 being normal. I was advised to go gluten free, so I did for a little under a week. But then they called back and said to go back on gluten so I can get a biopsy. So he did a biopsy on March 13th and my villi structure was...
  21. KristinIrwin
    Hi all! I've posted on here before and have gotten really great responses so I was hoping someone could help me out! My story is super long so I won't go into too many details... I had a slightly elevated ttg blood test in february ( 4 normal, mine was 7) after getting the test because of constipation, weight loss, pain, and bloating for a couple...
  22. KristinIrwin
    Hi all. My doctor finally called (well, his nurse). She said that they saw "some patchy spots" that look like they could be celiac in my small intestines. But she said that since the biopsy was negative they can't be sure.My doctor says I shouldn't worry and to come back for my April 5th appointment and that we'll talk more then. She also said that...
  23. KristinIrwin
    Thanks everyone! The doctor's nurse is suppose to call me today and let me know what he wants the next step to be. I will definitely ask for electronic copies of all of my results. Takala, The ONLY tests he has done are blood test: ttg, CBC, and something for my thryoid. And obviously the upper endoscopy. However, they took 4 tubes of blood, so I guess...
  24. KristinIrwin
    Diana, Thank you for the reply and all of your kind wishes! I have not been tested for nutritional deficiences. My doctor mentioned that it was a possibilty when I told him about my weight loss, but he didn't do any tests to look for it. Maybe I need a new doctor.. Anyway, I think I am going to try a strict gluten free diet and see how it makes...
  25. KristinIrwin
    Hi! I'm Kristin. Okay, so i started having GI symptoms in October 2012 (Mostly constipation, bloated, gas, cramps- the works). I have also lost about 12 pounds since october. I went to the GI on February 22, he told be I had IBS and did some blood work. They called me a few days later and said my blood work was "elevated for celiac and to try a gluten...
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