nosy parker

Congratulations! I think that you are doing all you can by going gluten free now, and it`s very wise to do so. It is certainly highly probable that you have celiac so I would assume that at this point, even if you do the endo later for confirmation. Speak to your doctor about nutritional deficiencies that are possible because of this and they can test...

Just wondering, since the blood tests don't seem to me to be a great detector of celiac (of course this is just my impression). How likely are they to be useful for kids? I decided after my ongoing saga to go ahead and test my boys. They are doing the TTG-IgA and IgG, as the other tests you all reference don't seem to be available here. They are ...

Well, I'm in Canada so the health insurance aspect doesn't apply to me. But as for life insurance or disability etc, that could be a real burden or problem. Imagine your kids are grown, start a family and have problems obtaining a mortgage because they don't qualify for mortgage insurance. Or can't get basic life insurance coverage to protect their family...

Gemini, everything you said is exactly how I feel. I already told my GI that IBS is just a big catch-all for "I don't know what's wrong with you". I don't understand that the can obviously see something in there that shouldn't be there and they just dismiss it. I mean if scalloping isn't supposed to be there, doesn't it warrant an explanation as to why...

I'm in Canada so insurance isn't involved. The paper I have says "Final pathology report". I have no idea if there are other reports prior to that. This one does indicate the number of biopsies (11 of one section and 5 of the other) and the size range, and also what they were sent in. But nothing other than that. What do you mean "how they are presented...

I was speaking to a pediatrician today about my never-ending celiac saga. Although my endo showed some evidence, biopsy was negative. I explained that my real concern is for my kids and this is what worries me. She advised me to go and get gene tests to at least see if I have those. But what really surprised me was that she told me NOT to get my kids...

I doubt they will do any procedure that involves sedation on a sick child. My son had his adenoids removed and tube inserted in his ears several years ago, and we had to re-schedule the morning of the operation (we were already admitted and he was in a gown on the bed) because he had a bit of congestion from a cold and they heard him cough once. But...

Thank you Gemini. I only had the initial blood work done (ttg-iga), but discovered then that I was IgA deficient so the test was useless. My GI did the endo because I also have low ferritin and many other symptoms so he figured we'd just go in and look. I haven't had any other blood work done. I doubt they will do any now that the results are negative...

So I was finally able to obtain both my endoscopy report issued by my doctor after the procedure and the pathology report. It doesn't seem very detailed and I'm a bit surprised by what's written. Endo report (with photos) Findings: Normal esophagus. Normal stomach (#2). Rather clear scalloping of D1/D2 both biopsied aggressively to r/o celiac...

Thanks to everyone for your kind support. I've spent the last 2 days pretty upset about the whole thing. But I need to get on with things and take my health into my own hands, regardless. I do believe gluten is an issue, celiac or not. To be totally honest, I wanted the vindication of being able to say "see, I'm not crazy and making this up!". But that...

Just got back from my follow-up appointment. Seems everything is normal. GI said he took 11 samples and that everything came back as "normal". Very disappointed. Suppose I should be happy, but I can't say I am. Still no real answer as to why I feel like this. I cannot believe that it's normal to have regular stomach pain. Not discomfort, real pain...

I agree with kareng. Celiac can cause extensive damage and I would want to know what my insides had suffered. I assume some baseline might be useful if you want to establish how healing has progressed in the future. I'm actually quite surprised that doctors diagnose celiac and then don't do a thorough evaluation of a person's health inside and out...

Miss-Marie, just to add my experience. I had both a colonoscopy and endo done and oddly enough the colonoscopy didn't worry me but the endo was freaking me out. And I was just outside the room as the previous patient was doing his endo without any sedative. Believe me those choking sounds didn't help! Anyway, they gave me a bit of sedative for the colonoscopy...

I soooo agree. I am really angry! Wait until I speak to them! Don't they realize that this is going to worry someone to no end!!?? Actually I think if they have something bad to tell you they sure as heck aren't going to do it over the phone, right? So what else can they do but call you asap and set up an appointment, without saying anything at all?...

Ok, I'm trying to breathe...... I just googled low ferritin and kidney cancer and that REALLY didn't help. Sometimes I hate the internet (or myself for being such an info junkie) I don't know how I will make it to next Wednesday. Why would I need to see anyone if they found kidney stones?? If that's what it is, I sure don't feel anything. Do they...