Dozey

Hi Diana, yes I always look forward to the evening around 7pm. I suddenly feel less discomfort, more like me, and relaxed. Then I tend to nod off around 9.30pm ! It all disappears the next morning though. I think I am running out of allowable posts now, so thank you for your reply on my post.

Jo

I always felt like hell all day long and I had anxiety and a bit of agoraphobia myself develop when I was quite ill before diagnosis (and I am not  shy or anxious by nature at all ). 

 

It's entirely possible that you are feeling this way  from malabsoprtion and vitamin deficiencies.

These symptoms (including panic attacks) are consistent with celiac/ gluten

intolerance.

 

the good news is, they disappear off gluten (in everyone I know that experienced this sensation)

 

Take deep, slow breaths, tell yourself you are safe and calm--- and hold onto someone's arm.

You can do this!

 

Positive test or not, you may well be better off --off gluten  IMHO

Thankyou, you're all so kind and the reassurance is much appreciated. I am not normally shy or anxious either, and blood tests have never bothered me in the past. Well it's not so much the test as getting there, and the waiting. Last time I practically passed out and the staff had to take me in the staff room, and get me seen by a doctor before I couldd have the actual test. Once I was getting it done, there was no problem.

I was definitely worse in the morning.  I hope you get some answers soon so that you can get better.

Thankyou, it's horrible to feel ill all the time, as I am sure everyone here knows.

Sudden unexplained weight loss sounds like it needs investigation.

Three things which spring to mind are thyroid, celiac and diabetes.

I am sure others will have suggestions.

Thankyou. I have seen a gastro ( last November)who was satisfied my weight loss was due to anxiety and lack of appetite. Due to the extreme anxiety at the time and agoraphobia, ( the hospital is 23 miles away) i couldn't have the endoscopy and couldn't cope with that now. I am working on the agoraphobia with the help of my husband and son, and was due to start CBT a couple of weeks ago but it got cancelled at the last minute due to the therapist being nervous about visiting in a new area!

Oops, that was supposed to be I have lost 4 stone in weight over the last year!

Hello everyone. I may not be celiac at all but I hope you don't mind me posting. I have my blood test in the morning, if I can make it to the surgery. Mornings are my worst time, I usually feel quite ill, sick, fatigue, and generally just very unwell. Since being so unwell I have developed agoraphobia and find going out very difficult so it is a double whammy for me. I try to be strong and not give into the passing out sensations and shaking but it is so hard. Does anyone else suffer in this way ? Thank you.

Thanks lisa. I thought that was probably the case.

I notice my personal details are shown in my profile. Will these be visible to everyone and if so how do I hide them? Thank you.

Thank you pricklypear. I hope this doc is more on the ball than the last surgery I was at. They waited two and a half months before telling me I had a very low b12 level, and only then because I was so ill My husband had to call a doctor.

I am a bit torn at the moment. Obviously I don 't want celiac, but if I have it at least I will know what's wrong with me and why I feel so ill and tired all the time.

Thank you. I don't know if it's Hashimoto's.. I was just told I had an underactive thyroid all those years ago. The new doctor said it was because of the hypothyroidism that he wanted to test for celiac. I will have to ask him when I go for the results.

Thank you for your quick reply. I forgot to say I am 60 years old and have suffered with hypothyroidism for many years. I lost a stone in weight over the last year through lack of appetite, and despite a slightly better appetite I can't seem to put weight back on.

Dozey

Hello, I have been feeling ill since the begining of last year, which I put down to bereavement stress. i was waking every morning with vomiting white foam, for around three hours, and axiety/ panic attacks. I got steadily worse and had a blood test for anaemia in March.I was told the results were normal, but by November was bed bound, almost passing out whenever I stood up. I had also been having periods of intense lower abdominal pain and diaohrea, usually late at night or in the early hours, also some nausea. A doctor was called who reviewed my notes and said I had very low b12 level. I had my loading doses and one top up injection. I was also diagnosed with pernicious anaemia. I haven't felt much better and have spent all my time bed/sofa bound with just brief walks out when able. I have anxiety and agoraphobia. I feel very fatigued, and have bone pain, and general malaise. There has also been tingling, burning in my hands and feet, and some numbness which now seems to be clearing. However I feel very spacey, almost unreal a lot of the time. My stomach is constantly grumbling and I feel uncomfortable.

I recently saw a different doctor who said with my b12 level now raised I should be feeling better and I have to have tests for vitamin D deficiency and celiac disease next Monday. I had a Tissue Transglutamin test last November which was - negative. - If pretest probability coeliac disease.

Could anyone tell me what that means please. I know the negative means not coeliac but not what the rest means. I also understand that a negative result can be false, but I really can't face an endoscopy. Are there other tests that could be done? Thank you