Jump to content

tinpins

Advanced Members
 View Profile  See their activity

  • Posts

    85

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by tinpins

  1. tinpins
    And here's the third video by Joe Rignola ... "putting out the fire ... how to take an active role in healing". Open Original Shared Link
  2. tinpins
    And the third video which gives on overview of how to have an active role in healing and "put out the fire" ... Open Original Shared Link
  3. tinpins
    Another excellent video by Joe Rinolda: Open Original Shared Link
  4. tinpins
    Here's another excellent video by Joe Rignola: Open Original Shared Link
  5. tinpins
    I think I need to clarify my statement in post # 162 from my perspective. I've nursed in three different countries and I don't live in the US. It has taken me 40 years to get a diagnosis. I have simply shared my journey and my experience/findings.
  6. tinpins
    As one of the guests pointed out in the Second Opinion video I posted above ... this is the chameleon of diseases. And it manifests itself in many different ways. We are lucky if we find a doctor who has the time to explain things and I always, always get copies of my medical notes from each visit. I keep a file of my own medical history. That comes from...
  7. tinpins
    And here's another one that is very worthwhile watching: Second Opinion: Celiac Disease
  8. tinpins
    Thank you ... and here's another video that is worthwhile watching. I'll post this over on the other forum too. Second Opinion: Celiac Disease
  9. tinpins
    Thanks
  10. tinpins
    Can you do that please and thank you : ) You know where it belongs : )
  11. tinpins
    This is well worth watching ... "Gluten and Autoimmunity Explained in 20 Minutes"
  12. tinpins
    Really helpful ... I usually do a lot of baking/cooking but have been away from it for a while (wonder why? : ) and I've just been cooking simple stews and soups and eating lots of apple sauce and bananas. I'll be ready to tackle baking again soon and the smaller pans idea is great! Tks
  13. tinpins
    Don't worry ... milk is far from my mind still. I want to be feeling much better before I even think about the kefir or yogourt. Now it's time to empty out all the cabinets and see what else is hiding there! And then figure out what to replace it with : ) Thanks for the info about the shampoo. I'm just so relieved I figured out what it is! What a trip!...
  14. tinpins
    Thank you Squirmy and Prickly ... I would never have believed it until it happened over and over in the last five weeks (and obviously over the heavens knows how many years before!). You don't have to apologize ... and I believe it was one of you that told me to keep a food diary and that is what helped to to connect the dots....I wasn't ingesting anything...
  15. tinpins
    Jyn, Read my post from this morning! https://www.celiac.com/forums/topic/101694-dermatitis-herpetiformis-my-journey/?p=874537
  16. tinpins
    Along with the gut pain that reared it's ugly head a couple of days ago, (in retrospect I realize right after I washed my hair) I was again getting an eruption of lesions on my upper back again! Oh the despair you feel when symptoms start to reappear .... I keep a food diary and note my symptoms in it too. I was baffled, I'm eating a very clean diet...
  17. tinpins
    Hope you're feeling a bit better squirmy.
  18. tinpins
    And I just found this paper which is current (April 2013) and very informative:
  19. tinpins
    And another link to a blog by an MD with celiac disease: My DH symptoms have lessened considerably over five weeks but my gut is another story .... it's a day-by-day, no meal-by-meal journey for now. There's much to learn!
  20. tinpins
    Here's something I read last night that was posted on April 25, 2013 Intestional biopsy no longer required for diagnosis! Dr Jean Layton Open Original Shared Link Published today in the BMC Gastroenterology, finally a conclusion that might help people get to an understanding of their reaction. This review study gathered information from 40 different...
  21. tinpins
    I've been following this discussion too and just spent a bit of time searching through some of the links I posted on my discussion thread without success. Obviously something that I want to find out too. Squirmy ... get better soon
  22. tinpins
    Yes and Yes ... My head was so itchy for a period of 10 days and that started before the DH became the all over body issue 15 months ago. It was so bothersome that I would regularly get my husband to look and see it there was anything living there And I have intermittently had a rash that is "sandpaper like" best way I can describe it ... not itchy...
  23. tinpins
    This may be their typical routine with CTs, and if it is that is wonderful. You get your report and you can get on with your life. I have worried waiting for tests ... it's not a nice place to be. When's your appointment?
  24. tinpins
    Please let us know what you find out from your CT scan ... that's a very nasty symptom to have to deal with. In retrospect mine was totally related to the DH and the consumption of gluten. Towards the end there, before I got a diagnosis and knew what was going on, I depressingly believed I was from a family line that was short lived and that it had something...
  25. tinpins
    Starting to feel better I was even able to go out on a really fun day trip yesterday and enjoy it. It was an annual field day trip for garlic growers (we grow it for personal consumption only : ) and I simply took along my own lunch ... a thermos with my chicken and vegie soup and when I got tired I just went and stretched out in the car and snoozed. ...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.