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mmcc54

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mmcc54

  1. mmcc54
    we have actually been doing 6 month of gluten-free then blood work...she has only been on gluten for 3 months now because im assuming they want to do more testing tomorrow when we go it...I also have a huge note book with about 2 yrs worth of food notes/symtoms notes ect..its been a LONG hard road to get a diagnoses...this is the only pediatric GI dr within...
  2. mmcc54
    Our 2 year old has been dealing with this forever..quickly ill give you a run down..stopped gaining weight at 6m at 9m ttg igg blood work pos. at 18. endoscopy neg. Did a gluten challenge at 1.5yrs blood work ttg igg pos at over 150..endoscopy neg. GI doctor said she can eat gluten and follow up in a year...her follow up apt is tomorrow...EVERYDAY she says...
  3. mmcc54
    Thank you!!! I thought her IGA was in normal range but her TT AB IGG was the high one? Her Gi dr says that alone isn't enough to rule celiacs exp with 2 neg biopsys
  4. mmcc54
    Here are Emmas lab results..shes had 2 endoscopys both negative..shes been eating gluten with no reaction..her GI doesn't think its celiacs since 2 biospsy have been normal. They ordered an ultrasound this Tuesday to look for tumors ;/ Platetes 502 (140-350) neutrophils relative 11 (13-33) lymphocytes relative 86 (46-76) lymphocytes absolute 8600 ...
  5. mmcc54
    My Daughters second biopsy was negative! My self and her peditrictian don't understand how shes getting such high igg blood levels but neg biopsy :/ her GI doctor told us yesterday she has no evidence of celiacs and she can eat gluten! That she needed to be tested for other automimmune disorders?!? Her pedi said he would do some research and figre out the...
  6. mmcc54
    I knew what you ment dang auto correct lol Yes shes a bit grumpy but considering shes doing pretty well! No weird poop yet today so hopefully it was just from the medication to sedate or something. Yes I don't plan on stopping nursing anytime soon exp in a kiddo with digestive issues...its easy for her to digest
  7. mmcc54
    That's kind of what I was thinking also..not normal for her but I don't remember it doing this the first time so wanted to ask here if it was something that was super alarming!
  8. mmcc54
    Sorry this is tmi...21 month old had her second biopsy yesterday...she didn't eat much after yesterday only nursed. Today she has had a few bright lime green loose stools?? Normal? Not? I called the Dr no call back yet!
  9. mmcc54
    Thank you! I got her blood work today her tiss. transflutam ab, igg was >100 and her tissue transglutaminase iga ab was 2.5 and her TSH was 4.90 but that was ll they tested for
  10. mmcc54
    Thank you..im not sure exactly which the ran im hoping to go get the results today so I will post that info too....all they said over the phone was everything was super high positive, and another biopsy wasi n order, and if it was neg they would run more tests...so im just afraid if it is neg what else would they do? what do they test for with results like...
  11. mmcc54
    My 21 month old goes in Tuesday for her second biopsy..first was neg..went on gluten challenge blood workd showed igg at over 100 and iga at 86...im nervous this biopsy would be neg too. Dr said if it was further testing would be in order..but what would they test for? what causes the elevation other then celiacs?
  12. mmcc54
    id def make sure he is eating gluten and retest..even in celiacs numbers can vary with time. Emma at 12m had an igg of 16 (anything over 4 pos) and a neg biopsy went gluten-free did great. Dr wanted to challenge so went on gluten for 8 weeks her test just came back igg is over 150 waiting to have a biopsy done
  13. mmcc54
    Thank you I did in fact call and raise hell this morning with them, the nurse who I spoke with was very sweet and im still waiting for the dr to call. But she said most likely a biopsy should be redone. Yes they said to still keep giving her alittle bit of gluten daily
  14. mmcc54
    ove the course of 8 months yes soooo many tests done by in regards to celiacs just the first panel that had only her igg pos at 16, another panle which was done while gluten-free which was neg, and then this test after the gluten challenge which her igg was greater then 100 and iga was 75
  15. mmcc54
    Thank you everyone!!! At this point we think we will make the journey to boston which isn't too far away to see a specialist there and get a firm diagnose for her sadly I don't want to bring her back to this gi doctor. Im curious if they would do another biopsy to confirm?
  16. mmcc54
    Emma's first pos was her igg at 12m was 16 (over 4 pos) iga neg...biopsy was neg..went gluten-free pedi gi said their was no evidence of celiacs and wanted to see her back in two yrs and that she could eat gluten just fine. She had gluten became ill her primary Dr redid her blood work after a 6 week challenge igg is over 100 and iga is 75 she's 19months old...
  17. mmcc54
    Test is waaayyy positive igg is greater then 100 iga 75
  18. mmcc54
    Our daughter was marked failure to thrive and her IGG blood test came back pos when she was 12m at 13m she went in for a biopsy that came back neg...her GI said to try a gluten-free diet we did..she slowly gained weight. we had an apt her with GI in Dec (she was 20 months) still slowly growing but small he said he didn't think it was celiacs at all, said...
  19. mmcc54
    So our daughter was in the 95th percentile from birth till around 7ths when she started eating solids she started falling off the chart. She would eat TONS of food but wasn't gaining or growing in length at all! By her 1st birthday she was marked failure to thrive...even though she was nursing like crazy and eating more food then my 3 yr old. Her pedi did...
  20. mmcc54
    she has an allergist apt on the 14th! I will update this after so anyone with future issues will see the outcome Thank you all!
  21. mmcc54
    Hey momma this sounds very similar to my situation! Our second daughter was happy healthy good sleeper and in the 90th percentile from birth till 9 months we started solids she started not sleeping, not growing and constantly had rashes her pedi dismissed everything said she was more active now, I was swaddleing her over dressing her so she had heat rash...
  22. mmcc54
    Hey!! SEND ME A PIC Open Original Shared Link My daughter now 17 months was diagnosed celiac at 12months she would (before diagnoses) get a rash that was localized on her back always looked like little pimples...Drs always said heat rash, viral rash ect...she stopped growing with constant dia. blood work came back pos for celiac she went to GI who confirmed...
  23. mmcc54
    Thanks everyone for the input! This was a sippy she would drink water out of for awhile same cup no different soap so I don't think that's it...she sleeps swaddled tight still so she doesn't rub her face. The rash started with milk 4 weeks ago...its now gone after no milk for 2 days! Its hard to tell if anything else has been bothering her since she doesn...
  24. mmcc54
    Hi everyone so my 18 month old was diagnosed with celiacs right after her first birthday shes stil breast fed but withing the past month shes been drinking more whole milk out of a sippy...since then shes had a red rash around her mouth it looks very much like the rash she gets on her back from gluten...I KNOW shes not getting gluten so that's not an issue...
  25. mmcc54
    Thank you guys! I just gave her some more gluten this morning the rash came right back!!!!! Waiting on a phone call from the drs now
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