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mmcc54

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Everything posted by mmcc54

  1. mmcc54
    Hi everyone my 16 month old had a pos blood test 6 months ago followed by a neg biopsy shes been gluten free for 5 months...she was doing well gaining weight happy ect. Her GI said it would be "interesting" to put her back on a gluten diet but eliminated fructose?! Yesterday I let her have a taste of her sisters apple cider donut last night she had diareah...
  2. mmcc54
    We had the first blood test done when she lost weight around 12 months her IGG was pos sending us to the GI...what sucks is he is the only pedi GI around us so I cant go local for another opinion! I didn't know if this whole gluten challend was a normal part of the diagnosing process or not! Just seems weird to me exp since shes gaining weight now finally...
  3. mmcc54
    Hi everyone! Went and saw the GI today LO had a pos IgG test and neg biopsy a few months ago shes been gluten free since and feeling great still really slow at gaining weight though but feeling much better and happier! The GI suggested keeping her gluten-free for another month and doing bi weekly weight checks then doing a gluten challenge to see if she gets...
  4. mmcc54
    I meany her IgG came back positive...and I should add she is already 16 months and hasn't gained so it is a long stretch for a child her age to not be gaining weight!!!!
  5. mmcc54
    So at a year old our daughter was marked failure to thrive for not gaining since 6 months old. They did some blood work her IIg came back positive at 16 a month later we did the biopsy which came back negative. Her GI said to try gluten free so her and I (nursing still) have been gluten free for alittle over 4 months. I have seen some inprovment as far as...
  6. mmcc54
    Hi!! My little was diagnosed 2 months ago im still nursing too so im gluten free as well...Ive noticed if I even have a small bit of gluten it will pass to her as well and she has a flare up! Even the shampoo at the salon did it too her ( I had my hair washed)
  7. mmcc54
    My daughter was diagnosed 2 months ago..she is just soo tiny..at birth she was 8.14lbs shes 14 months today and 18.6lbs she hasn't gained much weight since 6 months old (at 6 months she was 17.6lbs) she goes for bi weekly weigh ins at the drs sometimes she loses weight sometimes its the same..its been such a battle. Shes been gluten free for 2 months and...
  8. mmcc54
    so a quick history...my one year old was failure to thrive her pedi sent her for a blood panel which was positive...only TTG IgG was positive at 16 (anything over 9 pos) she had a neg biopsy, when I asked the GI why her blood work would be pos and that neg he said well her blood was only slightly pos but to go gluten free for 3 months and come back for a...
  9. mmcc54
    First congrats on the baby!!!! Im waiting to get tested myself but my one year old had a positive and it was only at 16...she went through the biopsy it was neg...her GI said go gluten free and see if symptoms improve...So my point is we basically did the biopsy and still got the diagnose to go gluten free regardless of the results weathe rit was pos or neg...
  10. mmcc54
    My one year old had a positive IgG test it was 16 (anything over 9 pos) she had a neg biopsy last week and the drs said go gluten free and come back in 3 months...I asked if that ment she had celiacs and they just said we don't know its hard to say since she only had a slight positive...what else could cause her to have elevated Igg if its not celiacs?
  11. mmcc54
    My one year old had a pos blood test only IgG was positive..her IgA levels were normal. Her IgG was a 19 (anything over 9 pos) she also had a whole mess of thing in her blood work that were high/low...she had her biopsy and its pretty normal?! Dr said he saw some spots but it wasn't enough to diagnose celiacs, but that we should go gluten free!? Im confused...
  12. mmcc54
    Hi Sorry sorry about your baby my one year old just had an endo Tuesday...her GI said on kids young you cant really see damage and that if their is damage its microscopic..so even before she went back he told us that and he said everything looked fine after just like he expected...she had a pos blood test so we did the endo to find out for sure...good luck...
  13. mmcc54
    Her Dr called me back he doesn't seem to think its related to the procedure its self but maybe she had a bit for a nasty reaction to the medication they gave to to go to sleep..we will monitor it and call back if it gets worse ect..
  14. mmcc54
    Hey so she had the biopsy yesterday!! Now waiting on results...and a call back from the dr she woke up covered in watery stool this morning...and shes been having them ever since her discharge paper work says vomiting is common but nothing about this..Im pretty concerned!
  15. mmcc54
    Thank you! Still waiting on a dr call back but still not feeling so great
  16. mmcc54
    My one year old had her biopsy yesterday..she was pretty sleepy most of the day..you could tell her throat was sore since her cry was hoarse sounding...last night you could hear her breathing it didn't sound like she was having trouble but it was loud breathing..this morning she woke up covered in very watery stool..it was all over..and she is coughing quite...
  17. mmcc54
    Anyone else have a child have a biopsy? Im pretty nervous to have my baby sedated! Her IgG was pos and her IgA was normal...so im confused and a bit nervous about weather or not they will find anything! I hope im doing the right thing by going through with this? What are the chance she has celiacs with only the ttg IgG being positive?
  18. mmcc54
    Hi again! I know we have been talking but wanted to comment after seeing the results! My daughters is about the same positive TGG-IGG how her dr worded it was they look at these like pregnancy test..a positive is a positive no matter how small and requires further investigating. Good Luck again! (hugs)
  19. mmcc54
    Thank you so much everyone! This board has been so helpful to us! We really appreciate all of your answers! It makes this seem much less scary!
  20. mmcc54
    Hey sorry the first was a typo on my part it is in fact over 9 is pos!
  21. mmcc54
    Im not too sure if they did a total Ill go ahead and type what the results say... Tiss Transglutam AB, IgG 16.1 (over 9 pos) Tissuse transglutaminase IGA AB <1.2 Fat Qual, Stl Tissue transglutaminase IGG and IGA (see comments) Comment says: Below find your daughters recent blood work results the main significant finding was that the tissue transglutaminase...
  22. mmcc54
    We had the GI apt yesterday for our one year old...she had a pos IgG and a neg IgA I was under the impression that a positive was a positive and ment celiacs but he said he wasn't confident yet that she had celiacs since the blood test was was 50/50..her IgG was 16.1 which he said wasn't too high but high for a baby who just started eating solids 3 months...
  23. mmcc54
    HI! So the GI said he wasn't 100 percent convinced she has celiacs..because only her IgG test was pos and her IgA was normal...I thought a positive was a positive? Idk! Shes scheduled for a biopsy on Tuesday...he also said her blood work results weren't awful at all and I shouldn't be too worried...if he said he wasn't convinced she had celiacs..why would...
  24. mmcc54
  25. mmcc54
    her RDW was 39.0 range of 37-39
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