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Simone52

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Everything posted by Simone52

  1. Simone52
    This site is my happy place!
  2. Simone52
    Thanks AGAIN!! I love Glutino products. I have been eating Udi's but I am going back to Glutino. I know it is a mystery. The only thing I can think is some sort of CC from a restaurant. Even so, why am I still itchy? I'm pretty sure though that the flares are less intense now and leaving faster. I wonder if the fact that I was eating much...
  3. Simone52
    Thanks! I am trying so hard to remove anything iodized. This is full-time job! I wish I could find a gluten-free bread without eggs or salt. Right now my diet is so restricted it's ridiculous! Pretty soon I'll just eat air! On another note, I am new here and am loving it but I find that I can't remember where the articles were when I want to re-visit...
  4. Simone52
    Does anyone know if Morton's Kosher salt is safe for a low-iodine diet?
  5. Simone52
    Dear Kim Yes! I promise. And it will be miraculous. You will have to be very diligent and disciplined and probably within six weeks (yes, maybe that soon) to 3 months. I was misdiagnosed from the time I was an infant (60 years ago). You already know the symptoms. I had them all including an auto-immune, collagen-vascular disease that was misdiagnosed...
  6. Simone52
    Dear Itchy You sound like my twin! I am doing the same thing. Only I have to confess I am even more obsessive about food. I am doing a pretty restrictive elimination diet. I am still not positive that this rash is gluten-related. I have been so disciplined for about 20 years and I haven't been able to see a true DH rash. Mine moves all over. Waxes...
  7. Simone52
    Oh Shoot!
  8. Simone52
    You poor, brave thing.... I am nervous about taking it because I had a bad reaction to Septra which is sulfa based. The doctor told me to try it and if I reacted we would stop. I am attempting the low-iodine diet first. You need a break. I will say an extra prayer for you. You have really had more than your fair share. Good luck and thank you for responding...
  9. Simone52
    Oh, well this makes me happy! I went to Whole Foods today and loaded up! Tons of veggies (no spinach, no kale), fruit, almond milk! This will be an adventure. If there are no results within two week, I will go ahead with the Dapsone (maybe). Thank you again for all of your support and advice. Honestly, this rash is full-time job. Wish me luck!
  10. Simone52
    well, I understand we are all different. I know there are sure no guarantees with anything. I am hoping for the best. If it doesn't help me I will buy a big bag of potato chips and start the Dapsone. Thanks again for all your encouragement.
  11. Simone52
    Okay. I ordered the low iodine cookbook and tomorrow will go to the grocery to begin. I can do this for a few weeks. Fingers crossed for me! Too bad about the chips but at least I can still have my wine!! I will let you know how it goes. How long did it take before you felt results? This itch is unbelievable.
  12. Simone52
    Thanks again, Pricklypear! I am not going to try the Dapsone yet at all. I am allergic to sulfa and that's why I am nervous. The doctor just said to try it and if I react badly to stop. I don't like that option. So, again, I will try the low iodine diet. Question about that: is all salt out? Or just iodized table salt? What about Kosher or Sea Salt...
  13. Simone52
    I have just researched the iodine diet. I am anxious to get going and will let you know how it goes. Thank you again for you input.
  14. Simone52
    Thank you so much for your fast reply. I think I will research the Iodine diet. Honestly, before this is done there will be nothing I can eat! Have you taken the Dapsone? I am really nervous about it as I tend to react to medications. If you have, did you have any negative reactions or did it work? I will definitely check out the Iodine issue.
  15. Simone52
    I have suffered the horrible affects of celiac disease my entire life. I was misdiagnosed until I was forty. I had the severe intestinal issues and subsequent secondary autoimmune connective tissue disease. A strict gluten-free diet has been a blessing. Here is my question: is it possible to develop DH having been so strictly gluten free for so many years...
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