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Simone52

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Latest Celiac Disease News & Research:

Everything posted by Simone52

  1. Simone52
    Dear RFJ I am curious to know why a gluten-free diet is impossible for you? Just curious. How can we help?
  2. Simone52
    Hi Brookiebaby! Sorry you have joined the world of Celiac. Not a fun club. But a glute-free diet is going to make you feel new again. Some of us are more sensitive to gluten than others. Some of us cannot lick an envelope. Some of us can. It will take some time for you to sort out what you can and cannot do/eat/use/take. I assume that since...
  3. Simone52
    I wonder if HRT could be the culprit in my case. I am not eating anything with yeast right now. I AM drinking red wine. But that doesn't contain yeast. I know I have a reaction to Kiwi. Itchy ears, mouth. Also, some anchovies. It seems that the better ones don't bother me. But I haven't touched either of these for a few months.
  4. Simone52
    Also, I am still loving straight ACV on a cotton ball applied directly.
  5. Simone52
    Stress!?? What stress?? Let's see, my mother died last November after I had to basically kidnap her to bring her across the country to place her in assisted living. Why kidnap? Chartered jet and all? Because my nephew had been financially exploiting her for about ten years. About 1/2 million gone. Let's see, stress? then my husband and I separated after...
  6. Simone52
    Well, you ARE thinking! I take my "dog" to a groomer. NO perfume. She doesn't use it at all on anyone. I'll ask about shampoo and other products but it just seems far-fetched. Also, my groomer is very into organic and pure. Ten years with her. Also, she doesn't play with with dogs at all! Really, she's just too little. 6 pounds. Too dangerous even...
  7. Simone52
    With the first go-round of this he (derm #1) misdiagnosed me with folliculitis. Prescribed Septra and then Prednisone. That was in early May this year. I had been able to take Septra before. No problem. Big problem this time. My immune system is having a HUGE party!!! I'm going to try to find a good allergist/immunologist. Meanwhile, I am trying not...
  8. Simone52
    Beginning uti. Drinking cranberry tea, TONS of water, cranberry pills. Hopefully, I caught it. Don't want another round of antibiotics. Can't do tetracycline either. I am a delicate flower, after all. We are ALL delicate flowers! I'm supposed to see the derm Monday. I don't know. Why should I bother? Really, really, frustrating. I need Dr. House...
  9. Simone52
    Oh, also, each little pustule blanches when pressed.
  10. Simone52
    Thanks for the hugs. I need them. Honestly, I have changed my laundry detergent, my hair and body products, I have sent all of my pillows to the dry cleaner, I have changed my diet. I check labels obsessively. I don't eat any pre-packaged anything. I even gave up bacon for goodness sake. Is there such a thing as a good derm?? My PCP said all they...
  11. Simone52
    I'm about ready to throw in the towel. I am so frustrated. Just when I think it's leaving and I have a day or two of serious relief a new crop appears. And now I have the beginning of a bladder infection. But Septra is out. **** I have been sticking to the low iodine diet faithfully. And of course gluten-free. I don't eat out. I am starting to...
  12. Simone52
    Ohhh...thank you so much! Also check out www.glutenfreemakeupgal.com. She does the work for us! I found a line of hair products there guaranteed 100% gluten free called Surface. I'm gonna go make my lemon chicken thighs now. Recipe from Ina Garten's, "How Easy Is That?" She makes it with chicken breasts but I like the thighs too. Make sure...
  13. Simone52
    Toast...Squirmingitch recommended Glutino Genius. Just egg whites and non-idodized salt. I don't think it's as good as Udi's but toasted well it's pretty good. My rash seems to be really settling down. I have the spot here and there. I have been LI for about 2 weeks. I will wait another week before I try anything. I am off to my PCP in about ...
  14. Simone52
    I have the same job!! I also make my own ketchup. Oh, homemade pickles are the best. I hadn't thought about that. I was thinking that it was the pickle itself that was iodized. But I guess you're right. It would be the salt. Shoot! Why didn't I think of that. There is another website out there I like to use. I can't remember the name right now, but...
  15. Simone52
    okay, I'm going to try the Epsom bath! Lord have mercy! Do NOT tell ANYONE I moved from Hellman's to anything with the word "vegan" in it!! But I have not done anything with soy in it for years. Soy affects me as well. Like you said, "if it's not this it's that..." What I would do for a big ole' BLT! I can handle Udi's or Rudi's or Schar's or Glutino...
  16. Simone52
    I'm going to agree with Squirmingitch. I would say your entire family is, at the very least, gluten-intolerant. Celiac is not all that uncommon. The general thought way back when I was a child was that it was too rare to even be considered. There was an Italian doctor in the 70's ( I can't remember his name offhand)who had a wife and child with Celiac...
  17. Simone52
    Spooky!!! It's like........you're watching and listening to me!! Okay, what am I doing right NOW! The doc I am seeing tomorrow is my PCP. She hasn't seen me at all for this. I am going in armed with a diary of the rash, the different meds I have been on and all of the various lotions, creams and emollients I have tried. I am sure she will run a...
  18. Simone52
    I am getting only black screens as well. But from what you have said re you and your family, I'd bet the farm on you having celiac. No need to go through hospital if it is cost prohibitive for you. Get 100% gluten free. Most probably for forever. Not difficult these days. If you show improvement with all of your symptoms, you have your answer. If you...
  19. Simone52
    Am I doing better, or am I getting used to it? I have been on a low-iodine diet for a week and a half. I am still itching. But it seems to be fewer and far between. Or am I simply adapting? Never mind water boarding. Just give terrorists DH with no help. No scratching, no lotions, no help. We'll win. No contest.
  20. Simone52
    Hi All I'm going to jump in here and offer my two cents worth. Re lotions and creams: I love Medline's Remedy Skin Repair Cream. I found it when my mom was in hospice. Made with Olivamine. And the first ingredient is NOT water! For itch I like Derma-e. I am trying to stick to as many natural products as possible. Those which I find help are...
  21. Simone52
    oops..I meant Tortillas. Still....pretty decent. But since I can't have any of the filling ..... I am SO tired of this evil, evil rash. Using apple cider vinegar now in addition to everything else. I really don't want to resort to the Dapsone. But I'm getting desperate. Seeing my PCP Wednesday. I'm sure she will run more tests. CBC. Anything...
  22. Simone52
    Oohhhhhh yeah! Chinese. BTW Rudi's makes a decent Pita now. How far South? My daughter is in Dallas. She loves it.
  23. Simone52
    Okay, so I have a couple of questions you can answer or not. Some may be none of my business. How long have you been doing the low-iodine? Have you noticed any improvement or change at all? You're "working". And at night. What do you do. (that's a none-of-my-business question ) Have you ever had a gluten-eating dream? You know, where you...
  24. Simone52
    You are my sister!! No tomatoes because I was thinking that if it isn't DH it could be a reaction to something else (we are all delicate flowers, after all!) So I am trying a serious elimination diet! I miss my dairy... I miss my BLT's.....I miss my tuna salad! But I am determined. I called the suicide scratch. Then got onto this site and...
  25. Simone52
    Hi Squirmy (may I call you that?) Let me give a (hopefully) quick synopsis. Because this is truly a mystery. I was born in 1952. According to my mother I had severe digestion problems from the moment I began solid food. She actually saved all of my records and I saw that at age 3 months the pediatrician was writing "try kaopectate" My mother...
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