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kellysensei

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kellysensei

  1. kellysensei
    My doctors think I have acid reflux, too, and have tried to put me on PPIs. I tried Omeprozole for 30 days last year, and it was one of the worst months of my life - acid reflux got worse, plus I got nausea, headaches, diarrhea, fatigue, sinus infections...ugh. Now every time I tell a doctor I think maybe I have *low* stomach acid, they scoff or get defensive...
  2. kellysensei
    My blood test last February came back negative for Celiac, but I switched to a gluten-free diet anyway because I'd been having some bad joint pain in my hands and wrists. Lo and behold, the pain went away within three days of being gluten-free. Twice since then I've unknowingly eaten gluten, and both times I ended up with joint pain again that lasted up to...
  3. kellysensei
    This was the company's response: "From the guidelines set by the Food & Drug Administration and the World Health Organization, the Alive product line, with the exceptions of Alive! Once Daily Men’s , Alive! Once Daily Men’s 50+, Alive! Ultra-Shake Pea Protein Chocolate, Alive! Ultra-Shake Soy Protein Chocolate as these formulas contain oat bran , a...
  4. kellysensei
    I just contacted the vitamin manufacturer now. We'll see if they respond. I still don't know what to think about gluten. My cough was totally fine during my whole gluten challenge this winter, and I wasn't having nearly as many knee pains and leg cramps as I am now. So either I'm consuming more gluten than I think, or gluten is not my problem. I just...
  5. kellysensei
    I just found out that the multi-vitamin I've been taking for a month has wheat grass and maltodextrin in it. I thought I was so good at reading labels, but somehow I missed that one. So angry. Three months of buying gluten-free bread and eating only grilled chicken at restaurants down the drain. :-(
  6. kellysensei
    Hi, I haven't posted in a few months. Long story short, I went gluten-free temporarily last fall in an attempt to get rid of a chronic cough. It seemed to work - although I also did a juice fast and went low-carb for a bit, so I'm not sure what actually helped the cough. I decided I wanted to get tested for Celiac, so I did a two-month gluten challenge. My...
  7. kellysensei
    My kids have already been tested - negative. I'm not making my family go gluten-free, just me, although I do all the cooking at home, so home meals will be gluten-free unless I heat up a frozen pizza or some mac n' cheese for them. I'd rather not do a biopsy at this point. Seems like every time a doctor touches me in the past couple years, something...
  8. kellysensei
    I completed an 8-week gluten challenge and had bloodwork done last week. The lab contacted me today and said my results were negative - no Celiac. However, my results from EnteroLab last month indicated a gluten sensitivity, and I know that gluten affects me. For example, by week seven of my gluten challenge, I was having terrible joint pain in my left hand...
  9. kellysensei
    Nope, no breathing problems, no nausea, dizziness, breathlessness, numbness, or anything like that. Exercise doesn't bother me. That's what makes all these pains so weird...
  10. kellysensei
    At my follow-up appointment yesterday, my doctor continued to insist it's not my heart, because of the normal tests. She can't say what IS causing my pain, though. She prescribed me an anti-inflammatory drug called Naproxen. Until I have time to pick it up, I'm taking Ibuprofen a few times a day (starting today; I'd really only taken it twice in the last...
  11. kellysensei
    I was diagnosed with acid reflux in September, but that's not what this is. I've had a lot of bad heartburn this fall, and the pain I'm having now is not heartburn, nor is it stomach pain. The sharp pains I'm having are directly behind my left breast, and the throbbing pains are directly under and also to the left of that breast.
  12. kellysensei
    This fall, I went gluten-free for seven weeks but then went back to gluten on Dec. 9 to do blood work (which I'll have done next week). An EnteroLab stool test recently came back positive for gluten sensitivity. About four weeks ago, I started having pains in my left chest. Sometimes they're sharp pains; sometimes it's a dull ache. Sometimes it feels...
  13. kellysensei
    Well, I was off gluten for seven weeks. Since I've been back on gluten, I've noticed that I'm much more tired, I use the bathroom more, and the vision in my left eye is worse. So I do plan to avoid gluten after the next blood test, but I still hope that I don't have Celiac, of course, so I don't have to freak out if I eat something with a little bit of soy...
  14. kellysensei
    So I got my gluten sensitivity stool test results back today: Fecal Anti-gliadin IgA 36 Units (Normal Range is less than 10 Units) According to them, this means I need to avoid gluten. I'm not really surprised at the results. But they don't distinguish between gluten sensitivity and full-blown Celiac disease. Do stool test numbers correspond...
  15. kellysensei
    I was off gluten for seven weeks; now I've been back on for about a week. Unless my recent blood tests come back positive (doubtful), I plan on ordering the Enterolab stool test within a week or two. I don't think they distinguish between gluten sensitivity and full-blown Celiac disease, though, so it may not be right for some people. But it seems valid enough...
  16. kellysensei
    My liver enzymes are really high, too, even though the blood work was done six weeks after being off gluten. I got retested yesterday and am waiting for those results. I've heard that herbal supplements and painkillers like Tylenol can elevate liver enzymes. That may be my problem, since I took Tylenol the day before my first blood test (and unfortunately...
  17. kellysensei
    I figured my tests wouldn't be valid, since I hadn't been eating gluten for a month at the time of the blood draw. But are my IgA numbers low *because* I hadn't been eating gluten? Would my numbers supposedly be higher on a gluten diet, even if I wasn't Celiac? I'm not convinced quite yet that I have Celiac or even a gluten sensitivity...I just don't...
  18. kellysensei
    I just got an email from the lab saying "We cannot interpret your celiac disease blood test because of the low IgA level." Apparently, the range they consider normal is 91-414, and mine was 61. What does that mean, that my IgA was low? My liver enzymes were also significantly elevated, so I have to redo the blood test next week.
  19. kellysensei
    Coffee didn't sit well with me the first few weeks I was gluten-free, but I've had it four times in the last week and seem to be fine with it now! So maybe it's just a temporary reaction while the gut is healing...
  20. kellysensei
    Yeah, my whole family has been sick with a stomach bug in the past 10 days. It's true that you might get worse before you get better. I'm not a diagnosed Celiac, either, but the first few weeks I was off gluten, I suddenly had a lot of heartburn. I discovered that coconut products don't agree with me. Now, six weeks after going gluten-free, I'm fine....
  21. kellysensei
    I accidentally had gluten on Thanksgiving and I got no symptoms...hmmm. I'm going to do the Entero Lab stool test - you don't need to do a gluten challenge for it, though I do plan to eat gluten for at least a few days in December to see how I feel. I'd rather avoid a prolonged gluten challenge and the endoscopy/biopsy I've got scheduled, if I can.
  22. kellysensei
    I came across this web site last night: Open Original Shared Link And the doctor mentions a lab in Texas that offers stool tests to test not only for Celiac but for gluten sensitivity. Best part is, if you've been off gluten for a while, you don't need to get back on it (gluten challenge) for the test to be accurate. Open Original Shared Link...
  23. kellysensei
    I'm worried about this, too. I started gluten-free a month ago and now want to be tested. I have an endoscopy/biopsy scheduled for Dec. 31 and have to be eating gluten for 2-4 weeks by that time. So I'm going back to gluten on December 10 for three weeks. Excited to try out some recipes but nervous how I will feel, especially over the holidays.
  24. kellysensei
    I haven't been diagnosed with Celiac yet, but I've been gluten-free for a month because I've found it helps my cough and headaches. My husband and I went to lunch at a place called Wildfire in Eden Prairie, MN, today, and the server immediately brought corn bread to our table. I told her I was gluten-free, and imagine our surprise when she brought out a gluten...
  25. kellysensei
    Quick question - if you've tested negative for any wheat allergy, is it still possible to have Celiac disease?
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