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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Posterboy
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vvicin02, Try reading this thread I think it will help you. https://www.celiac.com/forums/topic/119240-diagnosed-with-ttg-iga-level-of-128-three-days-ago-trying-to-conceive-or-should-i-hold-off/?tab=comments#comment-981475 I could try and explain it again but it takes too long (and too many words). ..so I will try and be brief (at least for...
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To All, I was curious when DH became associated with Celiac disease in the research and found that it happened around 1967. But I was also surprised to find DH was being treated as DH without connection to Celiac disease 20+ years before that date. So I was curious what was used/studied to treat DH before it became a celiac associated disease...
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NK Cell leukemia and celiac disease
Posterboy replied to gary006's topic in Related Issues & Disorders
Gary, After some googling I found some research that might help answer your question(s). The short answer is yes but I would also have your doctor's check for undiagnosed EBVs infection. Here is the research . ....it generally happens in older people though. . . or someone with untreated and/or silent celiac disease. https://www.ncbi.nlm... -
Rakdan, I see in my haste I actually left off the link. google for microvilli and baking soda and these links/research will come up. . . .if you want to research it more for yourself. https://medicalxpress.com/news/2018-04-soda-inexpensive-safe-combat-autoimmune.html https://phys.org/news/2017-02-food-additive-candy-gum-digestive.html ...
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Rakdan, I don't know if it is a cover up or intentional . .it just don't fit their dogma. See this HHMI article about it. https://www.hhmi.org/news/excessive-growth-bacteria-may-also-be-major-cause-stomach-ulcers sometime if your paradigm is not right . . .it is hard to see if/when you might be wrong.....I experienced this recently for myself...
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New (for me) celiac disease categories
Posterboy replied to trents's topic in Related Issues & Disorders
Cyclinglady, I came across some more research and one article that linked the research that might help you. Here is the article that explains it. https://universityhealthnews.com/daily/digestive-health/low-stomach-acid-the-surprising-cause-of-many-indigestion-symptoms/ Here is the research that explains explains your symptom's of dyspesia... -
In tears....:(
Posterboy replied to Laurel F's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Laurel, Your wits end comment could describe many people with DH. There is actually in the DH forum a thread by that name. Here is some threads that might help you. Also check out this old research on DH before it was known to be associated with Celiac disease it might help you. https://core.ac.uk/download/pdf/82674034.pdf If... -
Scott, I actually saw this article....it summarizes it well. ....I just wish dentist were more believing of us (Celiac's) when we tell them we are brushing our teeth! I tried to explain to my dentist's the de-mineralization was from my undiagnosed celiac disease and low Vitamin D levels. ... all these years. ... But too this day .... I can...
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Laura90, That is good to hear ...if your energy levels don't pick up soon try some Magnesium Glycinate. Magnesium is important for our bodies to make energy. Taking Magnesium first as Magnesium Citrate then Magnesium Glycinate really helped my fatigue issues! Here is some links that might help you ..... EBV was recently linked to Celiac disease...
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If not it should be featured as an article on celiac.com soon .... For some reason .... press releases/news article seem to be Region specific like NA, Europe or Asia. I saw this on an European/Indian news site ....so it might be a few days/weeks before it shows up on/in the NA news cycle. https://medicalxpress.com/news/2019-02-coeliac-disease...
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New (for me) celiac disease categories
Posterboy replied to trents's topic in Related Issues & Disorders
Cyclinglady, You may have already read this . ..if so maybe it will help the next person with AMAG. Here is a nice current study about it entitled "Autoimmune atrophic gastritis: current perspectives". https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5304992/ If you are having trouble with Iron you need to have your stomach acid levels checked... -
GFinDC, I don't think a 1000 IU a day is enough to get you in trouble....I have done the same thing. My specialist is now retesting my Vitamin D levels to see if it is back at normal levels. ...I am curious to see if it has done the trick. But in higher IU amounts Vitamin D should be taken with either beta-carotene (which can help Iron absorption...
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Eab12, This is a blog post. . . .you might not get much response here. You might want to start this as a thread in the forum section. Eating low carb .. .might of been low enough in gluten to lower your antibodies levels but enough to still attack your villi. . ... and villi don't heal right way anyway. Most people follow up on biopsy...
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New (for me) celiac disease categories
Posterboy replied to trents's topic in Related Issues & Disorders
Cyclinglady, Here is research that explains the types and frequency of chronic gastritis in celiac's. https://journals.sagepub.com/doi/full/10.1177/2050640616684698 Have you tried some antibiotics for your GERD this research from Howard Hughes Medical (HHMI) indicates that a round of antibiotics might help your GERD. https://www.hhmi.org... -
New (for me) celiac disease categories
Posterboy replied to trents's topic in Related Issues & Disorders
Trents, I am not up on this topic either but according to the article. . . "Patients with less than 20 percent of the abnormal lymphocytes have Type I refractory celiac disease, and those with more than 20 percent, Type II" If you don't have abnormal lympocytes then you are just a "non-responsive" celiac. but I think like you it is fascinating... -
Ansti, I have broken my response up to your question(s) into two responses because they are two issues really. .. and to keep any one response from getting too long hopefully. Many of your sons symptom's can be related to low stomach acid. ....I could of been your son ..I had GI problems from a very small kid (as long as I can remember) see...
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- dark sticky stool
- sandy stool
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Ansti, Some of the questions you bring up about "seasonal" factors is a good one. ...we are finding the more we study celiac disease that it is not all black and white ...sometimes it can be grey. Here is some research that might answer some of your questions. https://www.sciencedaily.com/releases/2015/11/151102100302.htm https://www.news...
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- dark sticky stool
- sandy stool
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(and 1 more)
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Laura, Here is some good research to be reading up on until your tests in April. It should answer most of your questions. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4230654/ It is not medical advice but I hope it is helpful. Good luck on your continued journey. Posterboy,
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Blood pressure meds causing refractory celiac!
Posterboy replied to 1desperateladysaved's topic in Related Issues & Disorders
1DesperateLadySaved, It actually can be all the "Artan" class of BP medicine's not just olmesartan. I had a similar experience with Losartan. See this thread about this topic. https://www.celiac.com/forums/topic/119462-what-else-can-cause-villi-blunting-has-any-body-had-expereince-with-losartan-and-villi-blunting/ and here is the... -
skc, Cyclinglady has given you good advice. You might also cut out dairy if you haven't already and see if you feel better... a lot of Celiac's do better at least temporarily getting off dairy for a while. Here is the research on dairy.... https://www.tandfonline.com/doi/full/10.1080/09540100400003204 If you wan to study more about...
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Does this look like d.h.?
Posterboy replied to Laurel F's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Laurel, We can't diagnosis or treat you but here is some research that might help you decide what is best for you. ..it explains very well how it is diagnosed entitled 'Dermatitis herpetiformis: pathophysiology, clinical presentation, diagnosis and treatment*" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4230654/ what struck me about this research... -
I'm so frustrated
Posterboy replied to Lissa283's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Lissa, Once you start taking an acid reducer . .. your biofeedback system breaks down and inflammation spreads through your whole GI tract first and finally other organs in time. your husband is right to think you have an inflammation problem.. . the(se) research pieces are finally starting to may a complete clinical picture. I usually try... -
Ennis_Tx, "I also have regained a good deal of nerve response....annoyingly so. Used to be I could cut myself, burn myself, drinking something hot, or something else and not be bothered by it". I think it is a sign the amyloidosis symptom's from 99% Blocking of Stomach is getting better now that you are only blocking 80% of it H2 blockers. . .and...
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I'm so frustrated
Posterboy replied to Lissa283's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Lissa, Here is some research that might help you. This first article discusses the pros and cons of taking acid blockers. .. . the 2nd is hard research explaining why the conventional idea of blocking stomach acid doesn't work long term. https://consumer.healthday.com/infectious-disease-information-21/antibiotics-news-30/study-reducing-stomach... -
Feeling Worse 1 Month Gf
Posterboy replied to Sueps's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sueps, The dry eyes might be helped by taking Vitamin D. It is one of the Vitamin/Minerals that can become low while taking acid reducers. Vitamin D also plays a role as an immune system modulator. .. .and it might explain the Sjorgens. Here is the research. Good luck on your continued journey. https://www.ncbi.nlm.nih.gov/pubmed...