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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Posterboy
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To All, I was going to post this in Ennis_Tx blog about missing teeth post but it it seemed better to post it here. I had bad teeth problems all my life ... so I is has always been an interest of mine to see what (if any thing else) caused my poor dental health. http://www.healthygutbugs.com/bacterial-infections-cause-tooth-decay-and-cavities...
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When is DH not DH? When it's seborrheic keratosis
Posterboy replied to weebl's topic in Dermatitis Herpetiformis
Awol Cast Iron Stomach, This research might help your children. ... your story sounds similar to mine. ...my mom always had GI problems and several of my siblings all had GI problems from our birth. I hope it is helpful but it is not medical advice ... I usually try and over explain things but I think the research will be self explanatory enough... -
Bones and celiac disease
Posterboy replied to Zodako's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Zodako, Pikakegirl, has given you good advice. .. the good news your Vitamin D and Vitamin K levels usually get better after a year of going gluten free. Here is research in children about this topic. https://www.celiac.com/celiac-disease/celiac-disease-gluten-intolerance-research/celiac-disease-vitamin-d-and-k-levels-influence-bone-mineral-density... -
Ennis_Tx, "I have followed poster boys idea and significantly cut back my nexium and sticking to ranidine. NO effect at all... " The idea is to get off the Nexium competely . .. then you can stair step down (the Rantidine) probably 10mg at a time every two to three weeks maybe even a month bet between step downs (if needed). You are right to...
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Neuropathy vent/whine...why, brown rice?
Posterboy replied to selectivefocus's topic in Coping with Celiac Disease
selectivefocus, I was just trying to provide a quick answer and PA is a common cause of Neuropathy. Beri Beri is commonly diagnosed in those who consume alot of rice in their diet can also cause similar symptom's. A lot of things can ... really. I went for the easy answer. If you had PA you probably also have elevated Homocysteine levels the... -
Vitamin and Mineral Interactions
Posterboy replied to Ennis-TX's topic in Related Issues & Disorders
Ennistx and Cyclinglady, Ennis_Tx thank you for posting that link it was very helpful. It explains well why it is hard to supplement properly/correctly. because no Vitamin/Mineral exists in a "Vacuum". Dr. Heaney explained this well in his series on Vitamins. http://blogs.creighton.edu/heaney/2013/06/25/some-rules-for-studies-evaluating... -
When is DH not DH? When it's seborrheic keratosis
Posterboy replied to weebl's topic in Dermatitis Herpetiformis
weebl, You can search for celiac.com and see what other threads say about this topic. A very good thread about DH is this thread. https://www.celiac.com/forums/topic/115445-relief-and-it-isnt-dapsone/ I also developed Pellagra (undiganosed) as part of my Celiac diagnosis. You can search for the posterboy on celiac.com and read my... -
Chuck and Lyfan, Chuck, Cyclinglady gave you a good link ...in case you haven't had the chance to read it. I know I post links alot (it seems) thinking others will read them . ... but we often only have time to scan the responses. It just takes too long to read them sometimes. But basically IEL's are/is like (a) precursor's to Villi Blunting...
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Chuck, They have all given you good advice. Often eating gluten free alone is enough to cause your liver enzymes to go down. Mine was elevated before my celiac diagnosis but went down in time. Here is a celiac.com article about high transaminase levels in celiac's. /celiac-disease/celiac-disease-amp-related-diseases-and-disorders...
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Nausea after working out
Posterboy replied to Joepilk's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Beverage, I also meant to quote this old archive article/research from Webmd about PPIs and Asthma. I tried helping my friend at work . . .and why he is tapering back his PPIs ... he is still not off them yet. https://www.webmd.com/asthma/news/20090408/millions-with-asthma-dont-need-ppis#1 they explain it well . . .just like your experience... -
Neuropathy vent/whine...why, brown rice?
Posterboy replied to selectivefocus's topic in Coping with Celiac Disease
selectivefocus, It sounds like you might have Pernicious Anemia (PA). I used to have the same problems. Get you some sublingual B-12 and see if it doesn't help your tingling limbs. It did mine! This is is not medical advice but I hope it is helpful. Here is a nice overview from Webmd on tingling in hands of feet. I will quote their... -
Nausea after working out
Posterboy replied to Joepilk's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Beverage, Thank you for sharing your experience. I had or my friends had similar problems (asthma etc.) with low stomach acid being misdiagnosed. I shared my experience my posterboy blog post about how I figured out how (too) low stomach was my root cause. I am glad to see someone else reach the same conclusion with similar results. ... -
Allergy Nasal Sprays?
Posterboy replied to LilyR's topic in Gluten-Free Foods, Products, Shopping & Medications
LillyR, Thank you for the information at about flonase possibly having corn as one of it's ingredients my sister had a bad reaction to flonase once and that might explain it. I am going to be sure to share this information/thread with her. Also it might be your have low Nitric Oxide levels. ... try summmm humming. see this recent research... -
Plumbago, I don't remember what you said about your Potassium levels? Are they Low? (I tried looking in your test results) but I guess I overloooked them. Sometime people using a diuretic can get low in Potassium. Low Potassium Levels have also been tied to sleep quality. It is how my friend was diagnosed with his OSA. Here is some research...
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kareng, I am not advising them either way. .... I am not a doctor and can't offer medical advice. I was personally glad to take them for a season of time until other side effects of the medicine made it clear that .... they were making my anxiety and depression worse. https://www.livestrong.com/article/266958-can-depression-meds-cause-anger...
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ch88, I agree it is controversial. .. and more studies are needed. I have taken antidepressants myself and often had to switch from one to another once the side effects became too much to bear. Or take more than one to accomplish the same effects. My mental state got better after I addressed my nutritional deficiencies. Vitamin D...
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Ch88, Some SSRI's can cause Villi associated Atrophy. Here is a thread about it. https://www.celiac.com/forums/topic/117685-atrophy-associated-with-ppis-nsaids-and-ssris/ Knitty Kitty who is a good researcher first posted this research. It is fairly new research less than 2 years old so it is understandably nobody has heard about...
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Joe, Both Cyclinglady and Ennis_Tx have given you good advice. The only thing I would add is being (abnormally) anxious is a separate condition from depression though they often occur together. What you are describing (Not wanting to leave the house) is more than being anti-social it is condition called agoraphobia. I used to have similar...
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Mono Diagnosis and Microabscess on Tonsils
Posterboy replied to powerofpositivethinking's topic in Coping with Celiac Disease
PowerofPositiveThinking, Here is a thread that might help you. https://www.celiac.com/forums/topic/122593-tonsillectomy/?tab=comments#comment-997652 Often taking the amino acid lysine will help mouth sores and swilling with salt water also can help if you can bear it. Don't swallow the salt water only swill it and spit it back out after 3... -
Seizures and celiac
Posterboy replied to Kristen Bennett's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Healthysquirrel, I don't know if you was able to read my other post on the "best" magnesium form to take in response to ch88 or not in my response on the sleep apnea thread but most Magnesium Complex's have Oxides or even Calcium/Magnesium/Zinc complexes in them only have Magnesium Oxides and are are not well absorbed by the body. Find a Citrate... -
Ch88, the studies show approx. this number. I was quoting from memory. see this link that explains how many are thought to be low in Magnesium in the US. but I will quote the relevant statistics form this link and the NIH shortly. https://www.dietvsdisease.org/best-magnesium-supplement/ quoting "However, survey studies show...
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Esophagus
Posterboy replied to Waleed's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Ruth, Many "itis" disease overlap. .. meaning simply inflammation . .in medical terms. You might have EoE and Nutcracker or Eoe develops into Barrett's or Nutcraker. did you say you are now taking a PPIs? You might try transitioning to an H2 inhibitor if you are .. ..like Ratindine (Or other "Idine") class of drugs. see here how... -
Seizures and celiac
Posterboy replied to Kristen Bennett's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Healthysquirrel, Thanks for your kind words. When you don't know what it is . ... it is always good to go back and reset (retrace) your path/steps. What have you don't differently lately? Are you taking a lot of medicines. Are you on any thing for depression some depression medicines can cause tremors. I was taking Wellbutrin and... -
CeliacMommaX2, It is not well known but Milk can trigger some of the same issues especially in children that later goes on to be diagnosed as celiac disease ie. stunted/blunted villi. Your children being young as they are still (at an age where lactose) can still be a problem for them Milk should be eliminated in their diet to see if Caseins are...
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Questions from recent diagnosed celiac
Posterboy replied to Joepilk's topic in Introduce Yourself / Share Stuff
Joe, Cyclinglady has given you good advice. see this livetrong article on the some of the issues to look out for when taking antidepressants. They can ironically cause or make worse some of the symptom's you were trying to address by taking them. https://www.livestrong.com/article/266958-can-depression-meds-cause-anger-issues/ see...