Jump to content

ArPlasma

Advanced Members
 View Profile  See their activity

  • Posts

    44

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ArPlasma

  1. ArPlasma
    Hello! Welcome! I am very new to this all thing myself( I do not have Celiac disease and no history of it on my side of the family). My DS1 who is 6 just had his biopsy done 2 weeks ago and we will know the results by the end of this week( finally!!!). He tested positive on the TTG- IgA and igg tests as well as EMA. He had been complaining about his tummy...
  2. ArPlasma
    Yes, I think it is about 10%( did not check). I do not question the number itself because I am sure it is based on a wide data set but in the case of my husband family they surely beat the odds.( I should have said that better). Of his father's family, his Dad is the only non- Celiac( 4 siblings diagnosed). He has also never been tested and is partisan of...
  3. ArPlasma
    We've decided to have the house gluten free, it will be easier to monitor what DS1 eats. My husband still has his bread, crackers, beer at least until his endo in a couple of weeks. After that, all non- celiac will eat gluten outside for a while. Since DS2 is at home with me for now, he will be gluten-free for a while and we will cautious when introducing...
  4. ArPlasma
    Update: Results for DS2 came back negative for both the deaminated gliadin IgG and IgA ( results were 3 for both which is less than 20 to be positive). His rash is still here, I thought it had gone away on Thursday( it did for a day and half, longest it's ever been) and thought it might have been related to bananas( I'm lost at this point and really don...
  5. ArPlasma
    Yes, Kix is a cereal which is one of my son's 2 favorite ones( other one is Chex which has a gluten-free version, including the generic version from our local store). He is feeling a bit better this evening. At least no tummy ache which is a big deal.
  6. ArPlasma
    I've heard of side effects of going gluten- free and was wondering how common it is. DS has a terrible headache today and am wondering whether he is reacting to something( DH fed him some KIX this morning, he thought it was gluten-free, do others react to it?) or if it is part of withdrawal symptoms. He has not had any stomach pain since last Friday( unheard...
  7. ArPlasma
    Cara I wish more doctors would look deeper into it. I asked for further testing for my younger son and his pediatrician was not keen on it at all. We have started the gluten-free diet with our older son since we're passed biopsy stage. We plan on remaining on it no matter what the results of the biopsy are. The GI said he sticks by 'gold standard' so no obvious...
  8. ArPlasma
    Huh! Thanks for the link. My husband has started collecting the receipts for gluten-free food. He is on a mission to do something similar this year, if only to know how much more we spend on food and in the hope that it might be useful.
  9. ArPlasma
    Green beanie, I thought about latex too. It is the first time she reacted to band aid. It has still not gone away which from what I 've read indicate more if a reaction to the adhesive, even in the latex fee ones. I am keeping an eye on that( and a billion other things oh my). She tends to see them as a 'fashion accessory' so we will definitely have to monitor...
  10. ArPlasma
    Thanks for the article!
  11. ArPlasma
    Just got the scripts for DD and DS! Going for tTG ones for DD and DGP ones for DS. I was hoping to get the DGP one as well for DD but that's what the secretary had, the pediatrician was not at the practice today.
  12. ArPlasma
    Thank you so much for this reply! We were not even thinking about testing DD again, thinking she had the right ones done already. I feel like I live in the land of unexplained hives and tummy aches with our children. I will call their doctor to get a DGP IgA and IgG script. We have been thinking of switching doctor for a while ( other incidents) we were...
  13. ArPlasma
    For reference, we are awaiting biopsy results for older son with positive blood results for celiac disease,also strong family history of diagnosed celiac disease and gluten sensitivity. We tested our 2 younger children, both came back negative but we are still concerned about younger son in particular who has had ongoing urticaria hives since end of Ugust...
  14. ArPlasma
    My son has sensory issues( loud noise , water on his face, itchiness of some clothing). We just started the gluten- free diet, so I can't really tell you much about it's impact yet. I am really hoping not to see too much of gluten- withdrawal effects at this point.
  15. ArPlasma
    Thank you for the link to the report nvsmom. I'vebeen reading through it( in addition to your reference on page 12 for the differ serologic tests accuracy) and I will definitely keep it handy for future reference. We have started our son on the gluten- free diet and sorted out/ cleaned out things in the kitchen. I think for now, it might be easier to keep...
  16. ArPlasma
    Thanks for the encouragement. We are taking it one day at a time, trying not to think too much about the consequences/ meaning of a negative/ inconclusive biopsy. My husband and I have decided to keep our son on at least 6 months trial of the gluten-free diet even if the biopsy is negative. If positive, it will obviously be a lifetime commitment.
  17. ArPlasma
    Thanks. The GI clearly said he would not give a Celiac diagnosis without damage, he is adamant about the 'golden standard'. My son's teacher and a few family members have noticed these stares. Funny because that's something my husband and FIL do from time to time as they lose track of the conversation for a bit. They sometimes start a sentence then pause...
  18. ArPlasma
    Thank you both for the replies. We had our first gluten free dinner tonight( at least I hope so as I have not done a deep kitchen cleaning/ sorting out session yet). One of my husband's aunts sent us a gluten free care package with a bunch of her favorite products. It was very nice and very much welcome as I am a bit on the overwhelmed side of things. I...
  19. ArPlasma
    Greetings, I am new to the forum. My 6- year-old son just had his biopsy done today and we will not have the results until his next GI appointment( jan 31). Talking to the GI who did the biopsy stressed me out a bit about the probability of a negative result. Then what? He said they suggest staying on gluten and testing blood levels again in 6 months...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.