Jump to content

crazyitch

Advanced Members
 View Profile  See their activity

  • Posts

    36

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by crazyitch

  1. crazyitch
    In regards to the post from Stephanie, "Those tests have no valid scientific backing, are expensive and often severely limit a persons diet unnecessarily. An elimination diet with slow reintroduction is the only true way to get to the bottom of food issues, esp. suspected intolerances" I am not an expert on these issues, I am just saying what worked...
  2. crazyitch
    Hi Scotty, I have also had a rash for almost an year and came to this forum with the thought that I had celiac disease. Its a long story of how I finally got help (4 or 5 doctors 2 dermatologists and 2 hospital visits, tons of steroid cream anti histamines blood tests skin biopsies etc) but in the end it has been a naturopath who pinpointed what I have....
  3. crazyitch
    Hi, I have been dealing with a rash for almost a year now and ended up on this forum suspecting I had a gluten intolerance. I have seen several doctors and 2 dermatologists with no real answers so as a last resort I went to see a naturopath. She recommended I have blood testing done (ELISA=Enzyme Linked ImmunoSorbant Assay) to check for food sensitivities...
  4. crazyitch
    I haven't been tested for celiac....my regular doctor has no clue and the dermatologist is convinced it is eczema (she keeps mentioning stress as the culprit for the eczema)....so frustrating! I will definitely know for sure if I see improvement again after eating a clean diet. I just have to stay strong around flour products....im a carb hound (not always...
  5. crazyitch
    Ruth I can totally see the difference, you really look much healthier in the second picture! I am hoping for similar results: I am not swollen, in the face anyway, but my rash is bad. I will keep you all posted as to my progress. Take care and thanks so much for your support!!
  6. crazyitch
    I haven't had any blood work done for celiac, I had a hard enough time convincing my doc that I didn't have scabies!! He was convinced I had that lol. I am not sure if I even care about it at this point. If I can control this by myself with diet I will be a happy girl. I have been off the gluten for 3 days and even though that isn't long, I don't want to...
  7. crazyitch
    Hello Squirm, I have just been so busy that I haven't had time to come back...weird how you make time when your itch is raging lol. I went back to eating everything...gluten included after the derm said it was the cream and antihistamines that was improving the rash. I think I have been in a bit of denial that I could have this so I latched onto her words...
  8. crazyitch
    I have another appointment booked for the middle of may, (she is on vacation for the month of april....go figure!!) so I am going to stick to the hypo diet now until she comes back. I have taken pics of my newly raging rash to show her just how her cream worked . I will tell her that I am now totally gluten free and advise her to open her mind. Not all...
  9. crazyitch
    Thank you Ruth for your support...I have a question, since you have been gluten free for 4 yrs has your rash cleared up? Elaine
  10. crazyitch
    I am back after a few weeks hiatus from the forum and I just want to say screw the diagnosis!! I am sticking with the gluten free diet now whether the dermatologist thinks 'gluten intolerance' is just a new fad disease that is cool to have, or not. Yes that was what she said when I told her that I thought I was gluten intolerant. She looked at my rash...
  11. crazyitch
    My rash is basically the same on my legs and arm, but it has flared on my tummy again and this after severely restricting my diet. I have not started using the steroid cream as the pharmacy has to send out for a compound, it is betamethasone mixed with aveeno or something like that. I am taking doxepin, an antihistamine that I think, takes the itch from...
  12. crazyitch
    Has Prickly posted about her experience with the naturopath? I am just wondering how I would find those posts.....I am not too savvy on finding specific info on this forum. My husband thinks the naturopath with the blood panels specifically targeting food sensitivity is the route to go so we may try that. I am curious as to what the derm will say...
  13. crazyitch
    Hi I am back and no definite answers, The dermatologist says she thinks it looks eczematic. I had pictures of my tummy and back to show her from when I stopped the prednisone (it was really bad then) just to show her what the flare up looked like. I told her I had seen similar rashes that were caused from gluten sensitivity and was trying the gluten free...
  14. crazyitch
    Hi Squirming, I am talking about a skin biopsy and maybe blood tests if they do them. I am not sure if I have new lesions, the rash is spreading on my arms and legs and I seem to get the sores from scratching. I dont even know if the itch would break out into sores if I didnt scratch them. Once I have the scabs they get scratched and rescratched because they...
  15. crazyitch
    Thank you for the information. I am not even sure I have DH, I have had a nasty rash for almost 6 months that sent me to the internet doing my own research which is how I ended up here. I've had 7 dr's appts and 4 different diagnosis' (3 of the appts only netted me baffled looks from the gps and prescriptions for cream and antihistamines). I have started...
  16. crazyitch
    I just have a quick question for anybody here who may have an answer or some information. I am wondering how long it takes of being gluten free for the gluten not to show up in skin/blood tests done by a dermatologist? I have read much in here about gluten challenges and they say you have to be on gluten for minimum 2 months for it to be detected in testing...
  17. crazyitch
    I don't have anything that oozes at all, my skin just get incredibly itchy, so much so that I cant help myself and have to scratch and as soon as I scratch the whole area comes up in those awful red bumps that then start to bleed. If I don't scratch it just continues to itch burn and prickle. I don't know what would happen if I resisted the urge to scratch...
  18. crazyitch
    Becky I am right there with you on the necklace! I had to stop wearing mine also...I thought I had maybe developed an allergy to the metal so I have stopped wearing it. We seem to have the same issues for sure. I also find that when I get out of the shower or bath I have to put my hair up because the weight of wet hair on my neck makes it itch. I...
  19. crazyitch
    I hate wearing the bra, I live in a onsie (pronounced wonzee) pajama when I am at home...not bra no undies just the onsie with a trap door on the bum area to facilitate going to the toilet I wear sports bras with no wires in them or lace (lace is scratchy!!). Where I live it is cold here right now so I have to wear boots but they drive me crazy when I...
  20. crazyitch
    Hi Becky, thank you for your quick response. I am not sure if you have looked back at this thread since you first started it but I posted some pics of my legs. It is on my arms also and my tummy and my back etc. I am wondering if the rash looks at all similar to yours? I ate 3 candies at the mechanics today and I am worried now because I don't know what...
  21. crazyitch
    Hi Becky, I am just wondering how your gluten free diet is going and if the improvement is continuing to progress. I have been gluten free for 5 or 6 days and so far I cant say that I am any better. The rash seems to be spreading still but maybe I am not quite as itchy as I was. I still have times in the day where it is raging but I think (and it could...
  22. crazyitch
    Hi I have another question in regards to gluten sensitivity. Is an allergy to gluten the same as being sensitive to it? What I am trying to ask is, if your allergy test comes up negative in regards to gluten does that rule out being a celiac? could you test positive for celiac but go to the allergist and show a negative reaction to the skin prick test...
  23. crazyitch
    Good morning and thank you for all the information! The doxepin seemed to work okay but when I woke up, so did the itch. It seems to go in waves where I will be unbearably itchy for a few hours and then it seems to calm down for a period of time; I am always aware of it but there are times when it is at least bearable. I also find that my arms may be super...
  24. crazyitch
    Well I am pretty sure I either have dh or pn as my rash and symptoms resemble both diseases. Those articles show that both are linked to gluten so it is a coin toss for me as to which it is! The fallout is that today is day1 of my gluten free diet :D. I am not sure where to begin with soaps lotions shampoos etc so I am starting with the food. I will be...
  25. crazyitch
    Was combing through another forum and I came across these links...very interesting! Open Original Shared Link Open Original Shared Link Open Original Shared Link
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.