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Nebraskamommy

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Everything posted by Nebraskamommy

  1. Nebraskamommy
    We are traveling to the Iberostar in Cozumel in a few weeks. Wondering if anyone has been there and what their gluten-free options were like? Thank you
  2. Nebraskamommy
    has anyone seen a geneticist to confirm a diagnosis for their child? We have seen 4 drs. 2 said our test results say Celiacs and 2 drs said they do not show Celiacs. we never did a biopsy and he has been gluten-free for 2 yrs now. He does have one of the Celiac genes, however as i understand so does 40% of the population. since other automoimmune conditions...
  3. Nebraskamommy
    My son just started playing soccer and of course, treats and drinks are brought after each game. i offered to bring treats and drinks for every game but other parents are offering to bring them too. All the parents know that my son cannot have gluten. How does everyone else handle this? should i reach out to the parents who have offered to bring treats and...
  4. Nebraskamommy
    I just realized that our daycare, since they participate in the federal lunch program, must provide gluten-free meals for my son. I am sooooo happy! I thought he was destined to eat cold lunch from a bag for the rest of his daycare and school days! Not to mention the amount of time and money this will save me. So my question is, for those of you who's kids...
  5. Nebraskamommy
    I would find a holestic dr to run additional testing, including looking for vitamin and mineral defincies. My 3 year old was dianosed by a holestic dr in Jan and we have since seen 2 Ped GI drs, and the holestic dr knew more about Celiac then the GI drs did. Just because her tests came back negative doesn't mean she's not sensitive to gluten. Poor girl. DO...
  6. Nebraskamommy
    I know how frustrating it can be to not have a 100% clear cut diagnosis. Let your mommy instinct be your guide. If you know she can't handle gluten, then switch to a gluten-free diet and keep track of her symptoms. You don't need a dr to tell you to change her diet. My son was just diagnosed in January and we went to 3 drs. Two said yes Celicas and one said...
  7. Nebraskamommy
    I've done a little Google searching on this topic and i've found that other food allergies can also cause damaged villi. Is is possible that Celiac is on the rise because Drs are using the scope as the gold standard to diagnose but their damange is actually caused by corn, dairy or soy? Thoughts?
  8. Nebraskamommy
    we did the ELISA test. I was told it tests for intolerances not true allergies.
  9. Nebraskamommy
    my son had celiac panel and got a weak positive on the ttg igg. TTg iga <2 ( range 0-3 negative, 4-10 weak positive, >10 positive) TTg igg 8 (range 0-5 negative, 6-9 weak positive, > 9 positive) immunoglobulin a, an, serum is 43 ( range 44-189) however he also did a food allergy igg test and it came back high for the following. yogurt, wheat...
  10. Nebraskamommy
    Is it true that part of the general population has high igg levels to wheat/gluten but they are not celiac nor have any gluten sensitivities? If the only thing high on your celiac panel is igg ( ema negative, tTg iga normal) would that be cause for concern alone?
  11. Nebraskamommy
    This dr even went so far as to say on the recap sheet that he gave us that we can reintroduce gluten, dairy and eggs, after I told him my son is was doing better being off those things. I feel like he sort of wrote us off the moment we got there and mentioned that we had went to a holestic dr for the blood allgery tests. He was very taken back when I said...
  12. Nebraskamommy
    My thoughts exactly Lisa. I felt like I knew more just from reading this board then he knew and he's supposedley a specialst. I feel bad for the kids he sees whose parents take his word as the truth. When we walked in his office and showed him the IGG food allergy tests that our holestic dr ran he basically said "how do i say this nicely.....these tests are...
  13. Nebraskamommy
    I talked to the Dr at Childrens over lunch and he said they consider kids IGA deficient if they have total IGA levels less then 10, since my son's level was just over 40 he said he's not IGA def and therefore said the IGA results are accurate. He said IGG levels are not reliable, ever. He said they are crap. He said given the negative results of the IGA labs...
  14. Nebraskamommy
    Tests were done in Dec when he was on a full gluten diet. He was gluten, dariy and egg free Jan 3-Jan 23 because we didn't think we were going to do scope. He's now back on a little gluten, maybe a few crackers a day or a slice of bread, but still off the dairy and eggs. His behavior and moods were better from Jan 3-23, however i don't know if that...
  15. Nebraskamommy
    Thank you. That is a good plan. I just want to know 100% if it's celiacs or just a gluten intolerance, as if Celiacs i plan to also get the rest of the family tested.
  16. Nebraskamommy
    My son has suffered from constipation for 2 years now. He's 3. We did allergy testing which came back high for wheat, gluten, dairy, eggs, beans. Also did celiac panel that came back with these results: TTg iga <2 ( range 0-3 negative, 4-10 weak positive, >10 positive) TTg igg 8 (range 0-5 negative, 6-9 weak positive, > 9 positive) immunoglobulin...
  17. Nebraskamommy
    I called the lab that ran the results and they said the DGP is included in the tTg. So now what? Also, the GI at children's told me that IGG tests are not accurate for diagnosing food allergies, he basically told me that the food panel (igg blood test) the holistic dr ran was useless, so I’m wondering why IGG results would be relied on for a Celiac diagnose i...
  18. Nebraskamommy
    Since his immunoglobulin a, qn, serum is 43 ( range 44-189), just one point below the range, is he truly iga deficient?
  19. Nebraskamommy
    The holistic dr is the one who ordered the igg blood allergy test. I think these are often Referred to as food intolerances versus food allergies as he doesn't have an immediate reaction when he consumes these foods. He is a very picky eater and was displaying some symptoms that lead me to Believe yeast overgrowth, that is why we went to the holestic dr...
  20. Nebraskamommy
    My 3 yr old has always been on the small side and has suffered from constipation for 2 yrs. we did blood food allergy test and celiac test in dec. allergy test said he's allergic to gluten, barley, milk and eggs. Our holistic dr and a pediatric GI said they are 95% sure he's celiac based on test results. We saw a dr at Children's Digestive Institute today...
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