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brit16

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Everything posted by brit16

  1. brit16
    MitziG - thanks for the reply. The reason I haven't updated is because we are in the middle of our gluten challenge. We are having more blood test ran at te end of Jan, and feb 6 we have an endoscopy and colonoscopy scheduled. Our first GI pretty much went straight to getting the biopsy, after the ttg igG was positive from our ped. He didn't even run any...
  2. brit16
    Thank you so much for the input. The things you are saying (too young to be growing that slowly, the test results not being "normal", are the reasons I still feel concerned.) I guess it is hard to trust your instincts when you have so many people (including doctors) saying everything is fine, we will just wait and see. When I express my concerns to others...
  3. brit16
    Wow, every clinic should be ran that way! I know Texas Children's is supposed to be a great hospital, but that is part of my complaint, they don't seem to be getting the whole picture. When he told me about the low IgA he basically said that he didn't know much about it and that I may want to see an immunologist. But couldn't even tell me if I needed a...
  4. brit16
    Thank you. I hear people talk about the "Mayo Clinic" all the time, but I guess I really don't know what it is or where it is located. I will look into that. We are currently going to "Texas Children's" which is a hospital that people come to from all over, but honestly I have not been impressed with my particular doctor. You are the first person that...
  5. brit16
    When you say explore additional food intolerances what exactly are you referring to? Thanks! He has not had any allergy testing done, is that something we should be looking into?
  6. brit16
    Thank you for the links..... I read through each one of them. Just wish I knew if I was "reading into things" or if there is a real reason to be concerned. Everyone seems to think that he is happy and looks "normal" so he must be fine, but I am not a paranoid mom at all, and I feel like there is something going on.
  7. brit16
    I posted a few months ago, concerned about my then 18 month old. He was having chronic diarrhea and did not seem to be gaining weight. We went through a lot of testing, with no real answers.... Test completed: IgG ttg --- 7.5 below 6 was negative (considered slightly elevated) total IGA --- low (can not use IgA based test) reducing substances...
  8. brit16
    Who would I asked for these test? The GI or ped? The GI has said he has ran everything he can run, now we just wait ad see. We already took him off gluten, but it has only been a day and a half.
  9. brit16
    I don't think so, I know there was a white blood cell count, the total iga (which I asked for), the celiac DNA test, and numerous stool test looking for malabsorption. What do these test tell you, sorry for the ignorance?
  10. brit16
    The GI will not repeat the biopsy for six more months. For us as parents, six months just seemed like a long time to do nothing. We were also thinking if there was an obvious change maybe he could be diagnosed without having to go through another biopsy.
  11. brit16
    No, no explanation. He just says that test isn't specific, and it could be just an infection.... If he had some bad infection shouldn't it be treated? I just don't get why he is blowing off that result?
  12. brit16
    Thank you so much for your thorough response. It was very helpful. I'm not sure why he seems to not be taking the igG test to mean anything, I think it is because it was a low positive. He told me he was going to repeat the test, but ended up doing the iga instead. ( before we knew he had low total iga) I was hoping he would repeat the ttg igG but when I...
  13. brit16
    All the results for our 19 month old son are in, and we are still left with no answers. His symptoms are no weight gain for about 6 months ( but no weight loss) and on and off diarrhea, green stools, etc. Test results: - ttg igG 7.5 with less than 6 being normal ("borderline positive") - total iga 19 normal being above 24 ( low iga) - reducing substances...
  14. brit16
    Thanks! I do plan on giving the diet a try at some point - just want to make sure we are done running any test first. He already had the endoscopy done and it was negative.... The thing that confuses me is that the GI doesn't seem to take the positive on the ttg igG that serious.....says it could have just been an infection or something that caused it...
  15. brit16
    Don't have answers for you - just wanted to tell you that we are going through the same exact thing right now. He is 19 months - constant diarrhea and although he weighs a "normal" amount (24 pds) he has not gained any weight at all in about 6 months. We are also trying to get answers through Texas children's. Who is your dr - we are seeing a GI specialist...
  16. brit16
    Thank you nvsmom - you are so helpful. I don't know if I typed it incorrectly or maybe you just misread my post . He had a negative ttg igA and a positive ttg igG. The igG was only a weak positive (whatever that means). We also already did the biopsy which came back negative. Now we add this low total iga to the mix and I'm just not sure what it all means...
  17. brit16
    Everyone has been so helpful here.... I figured I would come back and ask for any insight on our latest test results. If you haven't read our story..... We have been trying to get to the cause of our now 19 month old's diarrhea and slowed growth. Had a positive ttg igG ( low positive), which led to a biopsy. Biopsy came back negative and at the same time...
  18. brit16
    Update: biopsy - negative He also ran a ttg - iga and it was a 1. I feel even more confused than I was before..... For some reason I knew this would be the case. Dr is out of country but nurse said his recommendation was just to wait and see and if we were still concerned later down the line we could do a colonoscopy. The main thing I am confused about...
  19. brit16
    Thanks! The one thing I was a little surprised by was that he didn't want to do anymore blood work - just the biopsy.... I even asked about running the other test besides the ttg my dr did and he said it wasn't necessary. The nurse did tell me that they biopsy multiple areas, not sure how many, but I was glad it was more than one! Thanks again for your help...
  20. brit16
    Thanks - went to the GI specialist today and he seemed very knowledgable. He was not convinced by the one "weak positive" that it is celiac. But he does want to do a biopsy - we are lucky enough to get in on Friday (they had a cancellation). It is scary thinking he has to go under but I will be glad to finally have some answers. Now I keep thinking what...
  21. brit16
    It's funny because he is never actually sick, in the sense that he does not get fever, EVER. I have never had to keep him home sick or anything like that. But at the same time he never seems completely well either.... like right now, he is fine but is starting to get the bad sounding cough again. I guess time will tell. But it is so hard to just keep...
  22. brit16
    Thanks.....I called the Dr and he wants me to see the general. The nurses words were "he wants to make sure there is nothing other than celiac going on". Which kind of worried me a bit, but I understand, he wants someone to rule out things and actually make the diagnosis of celiac first. Thanks again!
  23. brit16
    I know some of you have been very kind and responded to my thread about my little boy getting the one test (IgG tgg) back "slightly elevated. I am trying to get an appointment set up with Texas Children's. I just made the appointment for Monday with a general GI, but I noticed on their website that they have a celiac specialist. My question is why should...
  24. brit16
    Thanks! I mentioned the ear infections and constant coughing etc. to the doctor and asked if it could all be related somehow and he basically shrugged it off. He doesn't always cough, but seems to have it more often than not, and has had a few times where he said he was wheezing as well. As for the ear infections, he never had any as a smaller baby (now...
  25. brit16
    Thanks! I have read around. But some things I read I thought did not mention constipation. I am just ready to have a diagnosis, so we can start working on the changes that have to be made, and we don't even have an appointment yet!
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