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J3C

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by J3C

  1. Wow. I'm interested in your comment that the DH went crazy AFTER you stopped gluten. That's exactly what's happening to me. I can't understand it! It wasn;t even classic DH UNTIL I had been gluten-free for about 1 month. Now it's all over the insides of my elbows, armpits, back, collarbone, behind the knees, groin. I'm as gluten free as I can possibly...
  2. I'm a new member, and newly diagnosed, so I don't know a lot yet, except what I've read and experienced, but I have the identical lip thing. It happens to me when I eat sugar. I originally thought it was gluten, but having eliminated all glutens, 100%, even the cat's food!, I'm still having it from time to time. It happens when I eat sugars of any type...
  3. Thank you. Well, you're right, I don't have 300, but I have 63. On my way to GI doc tomorrow. This list will help.
  4. Would you know where to direct me for a list of all the symptoms? I'd like to see that. Thanks in advance.
  5. Oh, meant to also say, thanks for the well wishes and the book references. With regard to stool testing, there is a test available through Enterolabs that uses stool to test for celiac. Are you saying that's unreliable? They also have a DNA panel that tests for the gene that predisposes to celiac. Blood work has already come back negative for me. Which...
  6. Thanks for the welcome. Yes, I did start a food journal, and yes, I would only use these discussion groups as a reference. But I have to say, I’ve found more answers here than on any medical site so far where they’re just quoting text books. Thanks for the tip on lactose/lactase. I find I’m as symptomatic with dairy as gluten now. Good to know I may...
  7. Thanks for the feedback. However, I have disagree on the mercury amalgam issue. I don’t believe for one second that recovering health after removing them is an internet myth. I’ve seen at least two friends recover from strange illnesses after removing their amalgams, and I have been slowly, as the teeth fail, over time, replacing amalgams with other mat...
  8. I wasn’t speaking about other celiacs when I mentioned these. Just me. I guess I am following the typical pattern in that I react to almost everything during this initial period. That includes almost all fruits, dairy, natural sugars, and strangely cauliflower. This was not something I decided to avoid based on research, it was personal experience that I...
  9. Many foods are apparently difficult or impossible to digest while the villi are healing. Fruit sugars, lactose and some veg trigger bad symptoms. Experience has taught me the hard way this is true.
  10. Thank you for this post. This has been the most awful, exhausting, heart sickening period of my life. I am just at the beginning of the journey you've been on for 5 years, and I have no idea how I'm going to do this for the rest of my life. But this glimpse into the future is very encouraging. Thank you for that.
  11. Hi... I just joined. I have not been officially diagnosed (no way I'm having any intestinal biopsy or deliberately inducing further reactions) but I'm certain I have celiac. I figured this out pretty much on my own from history and symptoms and about 3 months of night and day Googling. To every question, the search results invariably lead me here. So I...
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