hazelnutty42

I found I had to eat one or two things at a time, more often throughout the day. It was the only way to see which food was the culprit if I had a reaction. So I would have sausage with a sweet potato, for example. It has helped immensely. If you have a larger meal mixed with several things, it's anyone's guess.

I have Celiac and colitis. GI says the colitis is probably a result of the Celiac. As a result, I cannot just be "gluten-free". It goes way beyond that. I have had to be VERY strict in my diet while healing. For me there is no ordering "gluten free" at restaurants. I have to make most of my food at home. I love going out to eat and I don't want to miss out...

After going gluten-free, do you notice that you are even MORE sensitive to gluten? Last night I made my kids tacos and I can't recall if I used my knife to cut their flour tortilla but I must have because I was sick the rest of the night. I was not usually so sensitive before but now I think I should be more careful. Anyone find this ultra-sensitivity happening...

I realize blood in the stool is never normal, but is it common with celiac or colitis? This is something new I noticed and wondering if I need to call my doc.

Yes, it's pretty much the same. I have chosen to treat the LC through diet. Since the diagnosis, I have been following the "Anti Inflammatory Protocol (AIP)". It's not easy but I'll take that over steroids any day. I feel like I'm going through the Stages of Grief. :-)

Talked to my doc yesterday and the Celiac was confirmed. Fine. But I was also told I have Lymphocytic Colitis. After some research, I see those two are often related but I'm wondering which came first? Did one cause the other? My main question is will the celiac diet also relieve the symptoms of the colitis? The doctor would like me to take a localized steroid...

This board is so helpful so I figured someone may know about this. I just had my endoscopy and colonoscopy to confirm celiac and one of the things listed on my "findings" sheet to take home was Non-bleeding Erosive Gastropathy. I'll get results Friday and will surely follow up with the doc but just wondering if anyone knows what this is really. Thanks!

Thanks! This is helpful. I'll wait for my biopsy results and def have them tested based on that. This forum is very helpful. Thank you!

Thanks everyone. I was thinking the genetic test because I know my kids don't currently have celiac. They are 7 and 9. So a TTG IgA would be useless right? I don't need to confirm a diagnosis, but was under the impression the gene would let us know that we have it coming up.

If you've looked into this test, did your insurance cover it? If not, what was the cost out of pocket? Just curious. If my biopsy confirms Celiac I want both of my kids to have the genetic test. Thanks!

I've seen people mention they have the "classic symptoms" of Celiac and I'm wondering what they are? I know about GI issues (Diarrhea!) but what else is there? Are they different for everyone? What are YOUR symptoms or things you noticed went away after going gluten-free that you didn't know were related? Thanks!

Thank you everyone. These are the blood tests that I know where done: Celiac AB: Deamidated Gliadin IgA--? TTG IgA --14 Serum IgA Quantitation--? I wasn't told any answers except TTG IgA . My primary doc was the one to call me and say the "gluten test was abnormal and you'll need to follow a gluten free diet". Then at my GI appt yesterday that...

I'm new here and have been reading through posts trying to find answers but didn't see anything about this specifically. I've had GI issues for a few years and finally had blood tests done and my TTG IgA was 14. I know that anything greater than 10 is positive but seems like most people here have numbers WAY higher (100+). I have an biopsy and colonoscopy...