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mitchgam

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  1. mitchgam
    It is possible, although not common to have an allergic (histamine) reaction to the DH reaction. Two separate things, even if simular.
  2. mitchgam
    I know this might sound silly being on a Celiac/DH forum, but you are on a strict gluten free diet, right? You have looked into and stopped eating all foods that contain gluten, meaning things like regular soy source, gum, corn flakes, blue cheese and so on? Even some products labeled gluten free are not really, you have to still read each label. Nothing...
  3. mitchgam
    I have DH BUT, I also seem to have a histamine reaction to the DH reaction. (I am sure there is a better way of phrasing it but thats how it has been explained to me) If I eat anything (including Oats and Barley) that contains gluten within minutes I know it, I feel adrenaline and itchy. If I take 2-4 Daphsone pills it ends within minutes. (and yes I need...
  4. mitchgam
    Do you take the pills in the decreasing amounts 5 pills the first day and 4 the second and so on? and then repeat? or just one shot by the doctor (I have tired both ways and find the pills more effective). Dapsone only seems to work for me if I take it as soon as i feel the attack coming on, it stops the DH attack immediately, but if I am not quick enough...
  5. mitchgam
    Low dosages do nothing for me either. I take the high dosage 5 pills the first day 4 the next and so on. Sometimes having to do it twice, before the attack ends a few days latter. If I catch it early enough Daphone works wonders, but once it continues a few days I switch
  6. mitchgam
    Yes, as do the 3 GP and one Dermatologist I have been to, Two other GP's and 1 allergist didn't have a clue. But, go ahead and suffer with the itch for as long as you can take it, knowing that there is relief out there.
  7. mitchgam
    So, please let people like that suffer for years and years, not taking the short course of steroids necessary to stop the reaction. The fact that I refused to get into a battle of medical studies with you to prove my point, makes you right. My advise stands, take the steroids, then the next time you feel the symptoms, take Dapsone. If Dapsone stops...
  8. mitchgam
    Yes, of course you are right and all of the doctors I have gone to are wrong. Or it is ONLY me that has that problem.
  9. mitchgam
    Welcome to the wonderful world of DH, were all the Doctors can do is guess what you have half the time. First deal with the rash, which has possibly become a systemic histime reaction. Got to a doctor. Take a course (or 2) of steroids to end the rash. Then embark on a lifetime of strict gluten free eating.
  10. mitchgam
    No matter the ultimate diagnosis something needs to be done about your current symptoms, you are having a histaminic reaction, before they also start to effect your breathing. Maybe ask your doctor to give you a steroid or a series or pills (pregnasone?) No, this is not a cure, but at least you will feel human again.
  11. mitchgam
    My skin lesions are typical DH like in any text book to start, they form trails sometimes, just like it says in the text books The fact that Dapsone stops the reaction in the opinion of 3 different doctors is proof enough that I have DH All confined the fact that due to how my body reacts to DH, giving me gluten so I can take a blood test is life threatening...
  12. mitchgam
    I have had biopsy's, 5 of them to be exact, none proved anything, nothing was found. You are caught up in medical semantics. LIke the example I gave you about pulmonary disease. The ONLY thing i can say for certain based on MULTIPLE doctors who I have seen is that i do NOT have a Wheat allergy (which also is a "Celiac disease")
  13. mitchgam
    Sorry, I am not going to argue with you, I have been to too many specialists all of whom agree with what I say to continue a discussion on semantics with you. My brother has no symptoms, yet tested postivie and my son has DH too. When and if your systems get worse as you age, you might rethink your opinion.
  14. mitchgam
    I and every single doctor I have ever been to about this, and I have traveled to specialists in the field would totally disagree. You are welcome to believe that, but it is not true from a medical perspective. DH and Celiac disease are classified as Celiac the same way Pneumonia and TB are pulmonary disease. Both have the same root cause but both effect...
  15. mitchgam
    Years ago, before I figured out what was wrong, I thought I had some form of skin parasites. I found a forum where people who thought likewise would talk about their symptoms, many similar to mine (though some claimed to talk to them). Upon finding out what I had I wrote on the forum about DH and that it might not be Skin Parasites. I was immediately banned...
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