Lily
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Latest Celiac Disease News & Research:
Everything posted by Lily
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ARCHIVED Painful To Sit For Very Long
Lily replied to LindaB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Linda, I have this problem also. I've been gluten free for several months and still having problems on my right side. My doctor thinks I have additional food allergies which is why it won't calm down. I'm in the process of tracking it down. The discomfort went away while I was only eating potatoes and rice, but since adding other foods back in,... -
ARCHIVED Very Ill
Lily replied to Rikki Tikki's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I also had a reaction to Midel cookies. A single gluten ingestion can take up to 3 weeks to heal, so don't give up. You'll be feeling better soon. For me it takes 3-4 weeks to feel better. Lily -
ARCHIVED Racing Pulse?
Lily replied to nicolespeanut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I get a racing pulse if I am eating foods that are contaminated with the things I'm allergic too. Lily -
ARCHIVED Foods Eaten Most Often (gluten Free)
Lily replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
I am doing the same thing as Tarnalberry. As soon as I added processed foods back into my diet, even though they were gluten free, my health took a downturn Lily -
ARCHIVED Why to get a diagnosis?
Lily replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Arcy, I decided to go through the agony of all the testing for confirmation of Celiac Disease. Personally for me, I was tired of going to the dr. and telling them I didn't feel well and for them to tell me I was fine. Like I was a hypochondriac. I wanted the diagnosis in my charts so I don't have to go through the whole thing whenever I go to the doctor... -
Sara, Your recipe is a Godsend! Thanks. Anyone have ideas how to flavor taco meat? Lily
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ARCHIVED Achiness/fatigue
Lily replied to tammy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I get the achiness and tiredness. My joints will inflame something terrible along with muscle aches at times. For me, this is my signal that I've picked up gluten somewhere. After I've accidentally ingested, I'll start the aches a few days later and it will last 2-3 weeks. My doc says these are classic celiac symptoms, because when we ingest that poison... -
ARCHIVED Vision
Lily replied to PaleoMan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My night vision is improving since going gluten free Lily -
ARCHIVED Are There Any Other Celiacs That Are Overweight?
Lily replied to Jules's topic in Related Issues & Disorders
Hi Everyone, Just wanted to let you know there is hope. I have lost 25 pounds since the first of February. I went on a total allergen elimination diet and am beginning to feel better. I too am trying to follow the Eat Right 4 your Blood Type per my nutritionists instructions. I recently had to travel for work and took some processed gluten free foods... -
ARCHIVED Bruising
Lily replied to pjohn0457's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have bruising problems, both before the diagnosis and even wheat free it's still happening. Lily -
ARCHIVED Gosh, I Miss My Soy-milk!
Lily replied to Dejaunee's topic in Gluten-Free Foods, Products, Shopping & Medications
Eden Foods makes a Rice/Soy blend that is free of sugar. Soy dream agrees with me, but so far those are the only 2. Lily -
Mario, I've been gluten free for 2 months now and am just getting enough energy to climb the stairs without getting out of breath. My energy is returning in tiny increments, but I am noticing a difference. Hang in there!!!! Lily
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I like Crispy Brown Rice by Erewhon. Tastes just like rice krispies, but there is no gluten in them. I eat a bowl of these with soy milk and also 1 banana. I"m not a breakfast person either, but it satisfys me until lunch. Lily
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ARCHIVED Oatmeal
Lily replied to culpusa's topic in Gluten-Free Foods, Products, Shopping & Medications
Mystery, Oats give me a terrible stomach ache and any type of tomatoes make me feel like I drank a poison. The acid kills my intestines. I'm hoping once I heal more that I can re-introduce them and just not overdo it. Hope this helps. Lily -
ARCHIVED Gluten-free Anti-depressants
Lily replied to Mayam's topic in Gluten-Free Foods, Products, Shopping & Medications
My doctor checked with the drug rep at our hospital and they swear Zoloft is gluten free, although I've been scared to try it and it's still sitting unopened. Good luck! Lily -
ARCHIVED Going Gluten Free ?
Lily replied to SteveW's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My nutritionist has me eating off of the Blood type diet...........I am type B. Chicken is not allowed, it contains something in it that agglutinates the blood, whatever that means, but it will slow me down and make me feel icky. I do feel better and haven't had any chicken for about 6 months. Chicken and pasta used to be my staples before Celiac........ -
ARCHIVED Food Labels
Lily replied to gf4life's topic in Gluten-Free Foods, Products, Shopping & Medications
I sent my letters off too, a big THANK YOU to whoever set it up to make it so easy Lily -
Hi Renee, I have had to quit drinking coffee along with everything else and I feel much better. Sorry. Lily
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ARCHIVED Gf Cold Cereals
Lily replied to aldociao's topic in Gluten-Free Foods, Products, Shopping & Medications
I found a wonderful gluten free cereal by Erewhon called Krispy Brown Rice, tastes just like rice krispies. They make several gluten free cereals. My nutritionist recommends them to all her celiacs with no adverse affects reported. They make a couple cereals that have gluten, so be sure to check the labels. Lily -
HI Yankee, I've had problems with my feet and hands (and now my shoulders) for about 15 years. Since being completely gluten free I am feeling much better. Good luck, Lily
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Hi Yankee, I am on that type of diet per my nutritionists advice and am starting to feel better. I have been on a very strict diet to start out with, but am gradually adding a few things here and there back in to see how I feel. I highly recommend this to anyone - it helps you detox and break it down to see how it feels to feel better before you add anything...
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I haven't found any rice milk except for Rice Dream, which has gluten in it. Eden Foods has a rice blend milk that my nutritionist recommends although I haven't tried it yet. Good luck! Lily
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ARCHIVED Fantastic New Bread Mix
Lily replied to barbidoll8's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for the info, can't wait to try it! Lily -
ARCHIVED Short Of Breath?
Lily replied to Interval's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Interval, Yes, I have the exact same problems as you. The shortness of breath has been a problem for a while. Celiac disease is an autoimmune disease which can really cause everything else to go haywire. I was assuming when things swell up inside it gives your lungs less room to expand. My nutritionist says my pulmonary readings are all out of whack... -
ARCHIVED Recovery From Accidental Gluten Ingestion
Lily replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My doctor tells me it takes 3 weeks to heal from a single gluten accident I hope he feels better soon. Blessings, Lily