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peppyking

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Everything posted by peppyking

  1. peppyking
    My three year's blood tests showed high levels of antibodies on all celiac tests, and we are awaiting her biopsy results (taken today). My husband seems to be very symptomatic with cramps, diarrhea, gerd and brain fog. However, his blood tests were normal. He was on "gluten lite" for a 2-3 weeks before the blood tests, not no-gluten but definitely reduced...
  2. peppyking
    My three year old recently had a celiac panel with high levels of antibodies and has an endoscopy scheduled for this coming Wednesday. GI said that with such high levels, he thinks it very likely the biopsy will confirm the diagnosis. Previous symptoms were mild and chronic complaints of her stomach hurting, but it would pass quickly. Her appetite and...
  3. peppyking
    Her symptoms seem to be getting worse. About two weeks ago, she was up all night with stomach cramps. Last night, she was up cramping for hours and vomiting. So sad!
  4. peppyking
    I do get that it's a necessary convo with the GI. Since his nurse was pretty confident he will order the endoscopy, I just want to go in prepared. Especially, since it is our first visit and I have no knowledge of his bedside manner and thoroughness in answering my many questions. The different experiences and perspectives certainly will help shape the conversation...
  5. peppyking
    Oh, StephanieL! That sounds terrible. I hope you get answers for your little guy.
  6. peppyking
    Ugh! Well, I guess we'll see what happens at the GI appt and likely biopsy. I'm sure I'll have more questions then. Meanwhile, I'll keep trying to get more educated on the subject. It's hard to wait.
  7. peppyking
    StephanieL - so most docs would still diagnose her as celiac even if the biopsies were normal, right? All of the negatives in your last sentence got me flipped around;) I appreciate all of the information. Her GI appt is Thursday, so it helps having knowledge going in. Thanks for the welcome! This is not a group I would have wanted to join, but as...
  8. peppyking
    I'm new to this. My three year old daughter had what I understand to be high #s on her celiac blood test: Tissue transglutaminase ab, iga >100 (> or + 4 antibody detected) Immunoglobulin A 126 (reference range 24-121 m/g) Gliadin (deamidated) AB (IGA) >100 (> or = 20 units antibody detected) endomysial antibody screen (IGA) positive Endomysial...
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