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Brit1612

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Brit1612

  1. Brit1612
        Yes, he has come back twice positive on the reducing substance test, which apparently means he is lactose intolerant. But he has been dairy free for about a year now, he does drink a lot of lactaid though. Could this still be affecting him even without the lactose?
  2. Brit1612
    I have always wondered how these students are financed. I always thought it would be great to host, but we couldn't afford to feed / entertain a teenager. Do they receive money from their families or do you have to pay for all their needs? Thanks.
  3. Brit1612
    So, I had a thread a couple weeks ago about my son not seeming to get over a stomach bug / or possibly being glutened. The diahrrea finally ended a few days ago, at which time the constipation kicked back in. Now he is having just slightly loose, close to normal stools. But I have been wondering about the color of his stools. He has never (since all this...
  4. Brit1612
    Thanks everyone..... he is still suffering and this is a week and a half now. My ped said to come back if it wasn't gone in a couple of days, but I am pretty sure that will just be a waste of another $35. It has gotten somewhat better, but is not gone. For example, instead of watery loose stools, it is now on to ribbon like explosions, but he is crying...
  5. Brit1612
    I ended up taking him to the dr on Friday because he threw up that morning and he has never ever thrown up. So I was figuring it was something else, not gluten related. The dr said that there was a bug going around and that it was lasting about 5-7 days (he was already day 7 at that point). The dr thought he had the bug because of the throwing up.... ...
  6. Brit1612
    It is still continuing. He is having small amounts of diarrhea every time he is put on the potty (which is often since he is only 2). Then in the evening when I put him in a diaper leading up to bed he has a large very loose stool, and then repeats a few times. Sometimes waking up during the night to do it. But this morning, right after he had a big really...
  7. Brit1612
    First off, we don't even know for sure that my son has celiac disease, so we are currently in a trial period of being gluten free (a little over a month now). The odd thing is that he was NOT having symptoms(diarrhea) for months while eating gluten daily (leading up to biopsy). But since last Friday he has had numerous bouts of diarrhea every day. It has...
  8. Brit1612
    I am not the expert that most of the people on here are, but I just wanted to say welcome and I am glad you have found relief. Since no one has answered yet, I will attempt to answer you to the best of my knowledge . How serious are you about wanting / needing a diagnosis? If you don't mind treating yourself as a celiac for the rest of your life ...
  9. Brit1612
    At this point we have so many medical bills and can't even tell you how much of what they paid for. But I know they atleast paid a portion of it because I wasn't asked to pay upfront or anything. Our son came back positive for both of the main genes.
  10. Brit1612
    That's great to hear that her symptoms are doing better, and that she is growing. It seems as though the diet is helping her; I guess the only question is "NCGS" or "celiac". One thing I am not sure of, maybe someone else can answer this, is do kids have the growth issues with NCGS that they do with celiac? Since growth has been an issue for us as well...
  11. Brit1612
    Wow, that is great to hear that she is growing well. Do you feel confident that the last height check was accurate as well? Am I understanding right that the growth has come since going gluten free? We were told by our immunologist, if our son's growth picks back up again after going gluten free, that would be enough for her to diagnose him (along with...
  12. Brit1612
    Thanks for the encouragment . I do have the range that was given by my lab.....It was 533 - something high. His number this time was a 513. He only had it tested once before and I believe it was a 566 then. I just wasn't sure if I should be trusting this range or if he is really ok with this number. So many of the other ranges were much lower for a ...
  13. Brit1612
    Thanks for the information, you are always so helpful. I googled and looked at numerous "normal reference ranges" and they all seem different. Some of them have him being low (out of range) an some of them have him being normal on the lower end of the range. I am just having a hard time understanding why he has those positive ttg igg test (twice - once...
  14. Brit1612
    So sorry to have to start yet another thread, but I am pretty sure y'all will have some insight for me on this one..... (by the way, sweat test results will hopefully be here today) After talking to the nurse and her re-assuring me that "everything was normal, except his low iga", I requested a copy of his results. I was pretty suprised to notice that...
  15. Brit1612
    Ya, I agree, it is. Today I was reading something about celiac can cause a false positive....."Oh great!!!" Thanks for your support.
  16. Brit1612
    Thanks y'all. Sorry for so many questions, I just worry that we are somehow missing something. They finally did get back to me about the results, but the nurse really didn't know anything either. His tetanus result was in range according to their standards. But his prealbumin was low (12.8 with a range of 18-45), not sure how significant that is. ...
  17. Brit1612
    Nobody has any insight? I still can't get the dr office to call me back....
  18. Brit1612
    Did you get my message reply? Just making sure it went through since it was so long! I meant to ask you if she had the gene test done? If you did that and it was negative, it could at-least let you know it was much less likely..... We had the gene test and he has both of the main indicators.
  19. Brit1612
    Any of the test that have iga after them would be unreliable. For example the ttg iga, or the dgp iga would be unreliable. The test with an igg after them could be trusted; for example.....ttg igg or dgp igg. Although the doctors seem to trust the iga test more, in our case anyway. We had a positive ttg igg twice and were told it could have been caused...
  20. Brit1612
    Was anxious for you to get the results back. It is great that you had negative results, but I feel bad that you are now in the same boat we are in..... I feel like I am reading our story each time you post! My son's IGA at 18 months was a 19 and I was told that it invalidated the IGA based test. A few months later his IGA was a 9 and just last week...
  21. Brit1612
    I just called to ask about my son's bloodwork from last Monday. I was so anxious to see if any of his celiac levels would come back abnormal this time.....they did not. They were negative (even the ttg igg that was once positive). The nurse basically said that the Dr would go over everything when I came in for our 3 month check up and that everything...
  22. Brit1612
    That's a great idea! The only thing is he is a picky two year old and I'm not sure if he would keep it on or not?
  23. Brit1612
    I did, thanks. It is good, just geared to school-agers who can speak up for themselves. They will have to handle the food I send him, keep him from accidentally grabbing someone else's food, etc. I guess I will just write one myself today. I have already talked to his main teacher, but I know at daycare there are plenty of times that other people are...
  24. Brit1612
    Is there such a thing in daycare? I know to do that once he is elementary school, but I was really just worried about the daycare setting. I have been reading "letters to teachers" but they all seem like they are for a "big kid". I was just looking for something short and informative to let them know about how serious they should take cross-contamination...
  25. Brit1612
    Yes and No.....I don't know ! We are still just as confused as ever, but we recently went to see an immunologist, to learn more about his low iGA. I had no clue I would leave there being told "he is celiac with or without the test saying so; you need to go gluten free". The immunologist seems great, and she happens to be celiac herself (as well as two...
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