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irish11

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by irish11

  1. irish11
    I may do that after everything..but heres the deal....the guy who DOES know what it is....he's the one who i went to 3 times begging for him to take my skin and he wouldnt actually do it...still not sure why...he doesnt want to get in trouble for ethical reasons for charging too much i guess.....he keeps sending me back now to not bright dermo who spent all...
  2. irish11
    oops meant to say i DO think dads shins were related to this.....i missed a typo...ha
  3. irish11
    Yup, I read that in a few books but the first one was that peter green i guess? But yeah, THATS what gets me. Not a ONE of these docs (including intelligent doc by the way) asked me my family history, nota one...and i did SO want to share it because... cousin has lupus, bro died of non hodgkins lymphoma, mom is type 1 diabetic with failing kidneys,...
  4. irish11
    oh yeah...love the brownie link too...couldnt find them in my area.....but i'll keep looking...i'm keeping the link
  5. irish11
    I am going to order this cookbook..thanks...it doesnt cost too much either...I had already bought a few...but this one does look good. What the heck...would prob accumulate a few anyway...I will also check out the shampoo link thanks.... Its like right now....i have this huge blister just under my hairline....driving me nuts....trying to keep my hands...
  6. irish11
    Thanks for the hair dye advice. Yeah, at least YOU understand...all year, when i was trying to tell friends why i couldn't dye my hair...they just did not get it....or didnt want to...or thought i was lying...i dunno...but i could sense like "well why not....what does hair dye have to do with anything?" well they dont have open burning blisters under the...
  7. irish11
    also, thanks for the raisins advice too....dang it....I LOVE RAISINS....one of my fav things was raisin bran (giving that up has been hard....but next week i intend to have some....LOL), but thank you for helping me with what things and what not. I have a cafeteria here at work....and I feel pretty safe getting the "peanut butter and apple slices" thing...
  8. irish11
    Thank you once again Squirm:) for your sage advice! Sorry I didn't respond for a bit. I was busy with my other life..ha .. care giver for mom and working full time.....adding THIS stupid thing has been a trip! But it is what it is. So thank you for the Cliff notes....cuz at this point, before i study up on all that, I need the condensed version...
  9. irish11
    Thanks Squirming. I wanted to ask, since I'm NEW I hope y'all don't think these are stupid. I ordered several books that just haven't arrived yet so... For example...on my recent "baked lays" kick....cuz i love potato chips so tryin to take it down a notch....are those bad too? Cuz it says SOY in there. And I guess what I'm confused about is...
  10. irish11
    YES....I have to tell you I LOVE fried scallops, hee. So theres my excuse! I love fried shrimp too....last chance for that! So its interesting what you and others have said about iodine....as in iodized salt right? Because I find that to be correct! I have noticed, if I eat a bunch of stuff WITH SALT, even if its "gluten free"....I still get aggravated...
  11. irish11
    Hi all, and thank you SO very much for helping me. Its funny because, originally when i called my insurance about what they may or may not pay, the lady i had the phone said one of her friends went gluten free "just for health", nothing particular. But she did tell me that the person said the first 3 weeks was HELL but after that it got better. So thanks...
  12. irish11
    Thank you squirmingitch, I really do appreciate it and I could use and do love the hugs:) so here is my update: I know how correct you are, I was in SO much pain the past few days, I couldn't even look at the food on christmas, I just wanted to cry. I drugged up. I know this is it, I have to stop. truly. So I am giving it ONE more last ditch effort...
  13. irish11
    By the way I WILL try the cold compresses......i have been self medicating this whole time...lol... You give me courage...I still don't know what to do about tomorrow, i may just call the office first and say "hey, can you ask the doc what he is PREPARED to do on me? is it scrape or punch?" even though i kinda already know. Cuz its like....all the...
  14. irish11
    Thank you cyclinglady:) you are really too kind to respond to me.....i'm thinking of doing that...unfortunately i think it means ANOTHER 40 buck copay to find out he cant do it...lol....and these are the guys acting like they care about ethics. Altogether since april....lessee...two trips to primary.....4 trips to hmo guy.....1 trip for second opinion...
  15. irish11
    thank you so much for that link...i will tool around it now... ya know? I just read the lil thing on the net for my hmo dermo...who has never done it...that they want to send me back to tomorrow.. it says...he only does SHAVING biopsy....isn't this supposed to be a PUNCH biopsy for the best result. I really want to cry. seriously? He prob doesnt...
  16. irish11
    and just to add....i have probably damaged my LIVER beyond beyond... cuz i have been suffering this pain MOST of the year...with not ONE pain med from a doc....not...ONE.. so what do i do? what a lay person CAN do....4 benadryls a day on average, motrin, aspirin....maybe i should do weed next... THAT would get their attention wouldnt it......
  17. irish11
    its not a POLITICALLY CORRECT disease...thats it....i think i have it! diabetes is the in thing, obesity is in, and some cancers are in DERmatitis Herpetiformis? not in....not enough money in it? is THAT it?
  18. irish11
    sigh. thats the rub aint it? right NOW my arm is burning so bad...and a part of my back...i dont think i can TAKE another week, let alone month, when i know what the answer is. Its just not fair. And i am still not getting why they treat it like this? Jeez, if i was obese or something...i could prob get someone to do the whole gastric thing in less time...
  19. irish11
    Actually, I DID do that last week...got the run around there too....when i tried to find out about DH doc specifically, didnt get ANYWHERE...got celiac GI stuff and everything else, and oh by the way THAT first opening was next March. yeah, not gonna eat gluten for 2 more months for a consultation about a consultation about a consultation...OY VEY. but...
  20. irish11
    Thanks for responding. yeah, I figured it wouldn't be recognized, I realize that. I was just wondering if anyone has DONE it regardless and what they thought of results? or their experience if the results matched or not. Obviously I was hoping for better from the medical community, but sadly, looks like the dermo industry as a whole isn't too up on this...
  21. irish11
    ooops...one last thing i wanted to ask...before my week is out....have any of you done Entero labs? and what do you think....i know its not the same....but it would be SOMETHING i could have on paper....shoud a fecal test show ANYTHING related..... i think my primary should have OFFERED that to me as well.....but he doesnt seem too keen on offering anything...
  22. irish11

    ARCHIVED Shins?

    irish11 replied to oni's topic in Dermatitis Herpetiformis

    I have often wondered.....if my dad was celiac without knowing? He had this unexplained rash on his shins...both sides...ever since I could remember as a child...i would ask my mom about it (it would come and go in intensity, not always the same) and the picture i can give you is this....it looked JUST like the ones i have seen here and elsewhere of people...
  23. irish11
    WOW...i know its a few years old...the topic post....but yes this was ALL me... thats why I couldnt figure it at first.....I originally got the big, raised, elongated type OVER AND OVER in the same spot....for months....i showed this to the docs...to no avail.... then the clusters....also the description of it eventually looking dried up....its kinda...
  24. irish11
    I forgot to add....by these docs i was similar to most of you....they thought eczema, folliculitis and the like... the hmo doc i was speaking of had me on doxycycline for 4 MONTHS...till i just stopped them..they did nothing....it wasnt till i read books and you guys and stuff that i realize...i should have been on dapsone i guess for comfort this whole...
  25. irish11
    Hi there. Sorry if I make this long, but will try to encapsulate. The background to all this....I am 51, caucasian. In my 20's i had 2 courses of accutane for cystic acne. Took care of it. Problem free for more than 20 years. Around April of this year...started getting "things" on my back, back of neck....top half mainly.....hurt, itch, all that. ...
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