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sella

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by sella

  1. sella
    A doctor told me that the protein structure in casein is similar to gluten. I also remembered reading a study or two about it before he told me that. I just want to know if it may damage my gut like gluten. I assume lactose intolerance doesn't damage your gut like gluten, but I don't know about casein?
  2. sella
    "Gluten and casein have a similar molecular structure and the by-products of their metabolism form substances known as gluteomorphin and casomorphin respectively. We discuss this in our book The Gluten Effect.These “morphins” refer to a morphine-like chemical, though it is much milder than morphine itself. The substances attach to opiate receptors in ...
  3. sella
    Since casein in dairy has similar protein as gluten which your body can react to, do you eat milk, butter, heavy or half and half cream, yogurt, kefir or cheese? Do you think one can only heal from celiac disease if these foods are avoided? Although I no longer eat gluten due to celiac disease, I still eat milk and butter in recipes, yogurt, kefr, and...
  4. sella
    I always thought celiac disease involved inflammation of the small intestine, but a GI doctor told me this was not true or it's not an inflammatory bowel condition. Was the doctor wrong?
  5. sella
    I've had undiagnosed celiac disease for decades. As a child, I suffered from constipation and still do. After being on a gluten-free diet for 3 years, I'm not sure if I gained 20 lbs due to having a hysterectomy or gluten-free diet at the same time. I know that women often gain weight during menopause. I also still lose lots of hair like I have in the past...
  6. sella
    I've had constipation instead of diarrhea myself. Oh, there's no way I'm going back to this doctor. I didn't know how she was until I read her report at the end of testing, which took her 2 months to finally write. Why is it that doctors react like your'e a smart a** when you suggest for them to learn more about a condition (if they are making incorrect...
  7. sella
    I received the amended records in the mail. I don' think the doctor even read my email with the amendment request since she only corrected one statement I never said...the statement I gave as example while briefly talking to her on the phone the other day. So, I called the office to inquire why the other statements I never said were not corrected. Fortunately...
  8. sella
    Actually, there is a place I could complain to about how my request to amend my record was handled. zthey really messed up onthis one. I think this doctor was too careless to set a HIPPA policy in place or doesn't pay attention to generic forms included to fill out with new patient forms. I'm debating whether or not to file a complaint. If the doctor adds...
  9. sella
    The following link might be helpful for others experiencing simlar psychosomatic issues with doctors. Although it's only for psychiatrists, I think it should be for all doctors! Open Original Shared Link The neuropsychiatrist I saw might fall into this category? I can checkmark: Falsified medical records No Biological Test for "Mental Illness" ...
  10. sella
    The office is located in another city than where I go. There is no receptionist at the location closest to me meaning patients wait for the doctor to open her closed door to call their names for a consult. So, I would have to knock on her door which would really make her say that I'm sick since I keep writing letters AND showing up in person. The main office...
  11. sella
    Thanks. I'm not sure if the doctor will read another email I send and that's the way I'm told by staff to contact her. It will just confirm that I keep writing her letters although I only sent her one email about it! I already told the staff and her that I didn't want my medical records sent to any doctor's office, but I don't know if they will do it out...
  12. sella
    I called this doctor's office again to inquire if my medical records have been corrected. When I called to amend my records because there was inaccurate information, the staff member told me that I need to write my complaint in email to doctor. So, that's what I did. The doctor wrote things I said that I didn't say, which changed the meaning of what I said...
  13. sella
    I'm frustrated that many docgors still don't know as much as they should about celiac disease. Maybe they don't make the effort to study it since they think it's rare. Which test(s) confirmed Non Hodgkin Lymphoma? Does it show up in CBC with differential blood test? Since I have gone undiagnosed for decades. I don't know if I have it. It's good to...
  14. sella
    What about ordering a salad at a pizza chain? Is flour flying around onto the salad, too?
  15. sella
    Many pizza chains warn me not to order their gluten-free pizza if I am very sensitive to gluten or have celiac disease. I don't understand why they bother to make gluten-free pizza if it can't be eaten by those who need to avoid gluten. How do you know which pizza chains to trust? If they only cook gluten-free pizza in an overn dedicated to gluten-free pizza...
  16. sella
    Does celiac disease still prevent the absorption of iron if you are on a gluten-free diet? Since my MCHC blood levels are low, I was wondering if it is because I will always have a problem absrobing iron due to celiace disease. I had to take iron supplements in the past or that is when I found out I had celiac disease. But I have been off the iron supplements...
  17. sella
    Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
  18. sella
    I guess it's the "natural flavoring" which throws me off. It could or could not contain gluten and it's in so many products. I haven't been on a gluten-diet for as long as you...6 years. I may have bee undiagnosed and untreated for more than 25 years since i had signs that went back to chidhood. Yes, I have balance/anxiety/neuro issues. I know anxiety...
  19. sella
    I know what food products are. Probiotics was a recent example I saw on the news about things labeled gluten free that were not gluten free. So, supplement labels in addition to food labels.
  20. sella
    As I stated, i have seen news reports about food products not listing trace amounts on gluten on labels. I wasn't referring to fresh produce.
  21. sella
    It is true about hidden guten. I have seen news reports that even products claiming to be gluten-free often times contain traces of it. For example, there is gluten in several gluten-free probiotic brands. So, I have been considering not taking probiotics.
  22. sella
    I'm mad that doctors aren't more educated about the symptoms celiac disease causes. Or they think it only causes diarrhea. I had other symtoms instead of diarrhea.
  23. sella
    Sometimes I develop rashes, but not on a regular basis. I think celiacs have varying symptoms. But I heard how someone else with celiac often develops these strange rashes. It's probably due to ingesting hidden gluten. Food products don't always label gluten.
  24. sella
    I was diagnosed a couple years ago and started gluten-free diet then. Test also showed damage to my small intestine. I explained to this doctor how I was barely able to get out of bed when I ate gluten in the pastand my intestines are still recovering from the damage. I only discussed this briefly. I consulted with this doctor concerning my dizziness explaining...
  25. sella
    I read a summary report a doctor wrote about me. I thought doctors were more knowledgeable about celiac disease these days, but I guess not. The doctor diagnosed me with psychosomatic disorder when I told her the symptoms (including anxiety since the intestines regulate this) I had from years of undiagnosed celiac disease that affected my ablity to function...
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