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Lissa283

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  1. Lissa283
    Thanks for all your input. I actually started eating gluten again because they said I didn't have the genetic marker and that I couldn't have celiac disease (which was after being gluten free for a year). I started getting GI symptoms again about 8 months after I went gluten free and still have them now. Has anyone been diagnosed celiac without having...
  2. Lissa283
    This is long, but I really feel at my witts end about all my medical problems. 4 years ago - I had a Positive TTG-IGG (12.5), negative biopsy, terrible bowel issues, was told I had chronic gastritis and told to take Pepcid. I had gone gluten free and mostly allergen free for a while and felt the best I had. Then I started getting symptoms again...
  3. Lissa283
    It's really more for peace of mind and to ensure that I get proper follow up. I work as a nurse in healthcare and I know how hard it is to get things you need. I also hate not knowing for sure. What if it's crohns or something else? They just stop the search and say you have gluten sensitivity, which might not be the right answer. In my gut I feel like it...
  4. Lissa283
    I know it's confusing. January-labs were done and ttg iga (negative) and ttg igg 12.7 (positive), no total iga was done or any other celiac labs february- endoscopy was negative march-was told to go gluten free I have been gluten free since then and all my symptoms resolved october- had my labs redrawn, including genetic testing, which all came back negative...
  5. Lissa283
    So, I have posted on here before and been told I may have celiac disease, but I still have questions. My labs are ttg iga (negative), ttg igg (strong positive 12.8), the total iga was normal a couple weeks ago but they never tested it originally. I had a negative biopsy and was told to go gluten free because of all my symptoms which is a LONG list and very...
  6. Lissa283
    They were wanting me to be gluten free for 2 months prior to the retest. How long does it take for the dgp to be normal with mild disease? They say I probably have mild because my endoscopy was normal, but my lab tests were elevated, so they want to confirm diagnosis with the follow up labs.
  7. Lissa283
    I just realized that they are going to check both the ttg and the dgp. Why would they check the dgp if they never checked it before I went gluten free? How will they know if I'm improved? How long does it take the dgp and ttg to go back to normal in mild disease? Will my numbers be better if I accidentally ate gluten a couple times in the 2 month period...
  8. Lissa283
    First question....I accidentally ate gluten in a marinade that was on some meat two nights ago and I'm still having diarrhea, gasiness and tiredness. How long does it take to get better? Second question....I'm supposed to have a follow up TTG level checked in about a month....if I accidentally ate gluten, will my numbers be up? How long does it take...
  9. Lissa283
    What are some of your favorite cookbooks that don't take too much effort or tons of ingredients? I really like crock pot recipes and casseroles because I have two small kids and don't have time to research tons of recipes online or to cook them.
  10. Lissa283
    So my whole story started 6 months ago when I started getting large, pale, smelly loose stools everyday, serious fatigue, joint pain in my knuckles, headaches, a "haze", nausea, bloating. I have had GI issues on and off since I was a teen (I'm 32 now). I went to my PCP, then to an allergist, then to a rhuematologist, and then to a GI. My abnormal tests...
  11. Lissa283
    Ive been gluten free for a week and I still have stomach pains and burp A LOT! When do the symptoms start to subside???
  12. Lissa283
    I don't think i'm going to do the biopsy. I can't wait another 6 weeks to find the answer when it's probably true. I feel just too terrible most days. I think I may just go gluten free and have my labs rechecked and see if there is improvement.
  13. Lissa283
    I have tons of symptoms and they all fit the celiac picture. I've been off gluten for 2 days and already feel more energetic.
  14. Lissa283
    I had a positive ttg (12.6) but a negative antireticulin...the rheumatologist said I have celiac disease....does this sound right??
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