TashaLouise

If you aren't going to go completely gluten free, you will need two of some things.  A toaster is a big one, do not share them.  Some people get different colored appliances to help keep them separate.  You will need to get rid of wooden spoons and cutting boards.  Some people get rid of their pots and pans, if they are unscratched that shouldn't matter, gluten likes to hide in the scratches and crevices.  Just keep it in mind if your daughter is getting glutened from somewhere and you aren't sure where.  Your strainer/colander needs to be thrown, you can't get all those holes clean no matter what you try.  You are going to have to get separate condiments (butter, mayo, peanut butter, jam) anything that has possible contact with gluten.  Pizza ovens can't get clean no matter what - don't share them. If you have counter top fryer, that is also a no share item. Throw out any open baking ingredients - I know I used to dip my measuring cup in the flour and then the sugar.  If you are going to keep gluten in the house, I had seen some suggest to put it in the bottom cupboards for a better chance of no cross-contamination.  And a thought on baking if you are a baker - the flour dust is bad also.  Clean your oven and microwave very well.  If you are going to cook gluteny foods in them after, make sure you are putting all gluteny foods on pans ( don't put a Tombstone pizza on the rack and then throw a gluten-free one on there) and try and cover them to help prevent CC.  Remember one thing - when in doubt, throw it out. If you don't think you can get it 100% clean, don't use it.

 

Check everything that could possible go in your daughter mouth.  I am not sure how old she is but if she is younger and puts her fingers in her mouth you will also have to check lotions and bath soaps, shampoos, toothpaste, mouth wash, medications, makeup.

 

Read the newbie thread, it's very informative.  You should also get your family tested, it's hereditary.  My daughter and I both have it. 

 

Welcome to the forum and good luck!  And if you need help, we are just a question away.

Hi,

Thanks so much for this! I have just been browsing and found this and your answer has REALLY helped! Thanks so much'!!

If you are in the UK, I use Doves Farm Active yeast, Works a charm

HI, Have you possibly got a recipe and ingredients for a pie crust? I have tried making a crust before but for some reason gluten-free flour just doesn't like it. I'm wondering if it is something else in the recipe that mixes with the flour or something? Anyhow, ingredient suggestions? Thanks so much! T.xx

I only really like Doves Farm but that is only because it is the only one available to me I do really like it though!

HI!!

I had the same thing a few weeks back. I had some blood tests for something else but the Folic Acid levels came back as lower than they should be. I always eat food that is high in Folic acid (I practically OD on avocados!) but the levels were low for whatever reason. The doc didnt read anything into it, instead just gave me a months supply of supps and it was all back to normal. I had been feeling uite lower energy wise than normal. I am a lot better now though. It is related to Coeliac disease although I cannot remember why 

YAYAYAY! Thank you!! I just hope the UK sell this/ Preferably in Tesco or Sainsburys as they are pretty much the only stores actually near us that have a gluten free section. 

I almost never go down the cereal isle as I always go to the free from section but if these are in the main cereal isle thatd be great. Do you know if these are sold in the UK?

A lot of us here do baking at home, so we are glad to give tips.  But what type of pastry are you talking about.... like puff pastry?  If you can find a picture or recipe of the regular kind to let us know what you are going for, there should be someone here who can give tips.  (Also don't know what squidgy means... lol)

 

Looks like being in the UK some availability may be different, but it looks like Schar does sell frozen puff pastry in europe.  Open Original Shared Link

 

Puff pastry is all about the technique, and with gluten-free flours I can totally see it going wrong.  Looks like Bobs red mill has a good, well researched recipe: Open Original Shared Link

 

Also, this recipe looks more realistic for a home cook, they have the recipe for the flour blend used so no specialty products to buy.  Open Original Shared Link

 

The recipes probably use more eggs than a traditional dough, and definitely do not skip the xanthan gum.  Also, rolling anything out that is gluten-free is greatly aided by using parchment, like they do with the Bobs Red Mill Recipe.

Hi, thanks for your reply. 

Firstly, squidgy means soft and spongy. like a soft, spongy, moist cake

Now onto the pastry The sort of pastry i want to make is for pasties, pies and tarts. Hope this helps 

Hi Everyone!

I have never met anyone who has had the lucky experience of being able to make homemade pastry with gluten free flour.  I have tried it on numerous occasions and it has never worked out. It always crumbles and breaks apart. It never goes anywhere near squidgy which is what it should be like. Has anyone else had any luck and if so, how did you do it and what did you use?

Going vegetarian (or staying vegetarian) is perfectly safe for a celiac. The main thing to watch if you don't use many (or any) animal products is your B-12 levels. It doesn't hurt to take a B-12 supplement if you have any doubts that you are getting enough.

Protein is not usually an issue, as long as you're not living on junk food or doing a more extreme version of a vegetarian diet that omits a lot of food groups.

Protein is very easily had from non-meat sources. 

 

I think that you misunderstood Cyclinglady, I believe that she was saying that she wouldn't consider Quorn safe for celiacs (at least in the U.S.), not that celiacs cannot be vegetarians.

Hi, Thanks for your reply. I'm not going to cut out sweets that have gelatine or anything in. I'm only cutting out the things that have actual meat in- whole meat: (chicken/pork/beef etc). Will also cut out completely things like pate that is made from pigs liver and things like that but little bits I will still eat.

I don't eat junk food. I like vegetables and eat healthily. Stir fry and cheese/tuna/cucumber sandwiches.

I think I did misunderstand her. Thanks for clearing that up.

If you go vegetarian, strongly urge you to:

Keep track of your B-12 level.

Keep your TBP (Total Blood Protein) in top half of normal range (6.2-8.3 g/dl)

Thank you for letting me know. I had no idea about this. I don't eat that much dairy so will have to eat eggs more than I do now. (Which, to be fair, is quite a lot already). I haven't actually heard of the TBP (I don't do/ know that much stuff about the body- believe it or not!) so will do a bit of research. Thank you so much!

She's in the UK. I think they have some stuff there that is gluten-free. Products can differ soooooo much by country.

Thank you. The Quorn chicken and quorn mince in Tesco (are you in UK?) is gluten free. Not sure about the other stuff but would imagine the plain quorn meat alternatives are mostly gluten free. Thanks

I was just in a Grocery store and saw this product. I would not consider it safe for celiacs at least in the US.

You mean you wouldn't consider going vegetarian safe for a coeliac? Why only in the US?

Don"t those things contain LOTS of wheat?  Do they make gluten-free products?

Not all of them. The plain chicken, mince etc is gluten free. There are pies and things which aren't but as the quorum is in the frozen section, there is a free from section right next to it and some of spit actually overlaps. I.e. There are gluten free quorn products.

I've decided to go vegetarian and was wondering if anybody else had done this after they have found out they are Coeliac? I'm planning on eating Quorn or just no meat at all if needs be but as there is a massive stock of Quorn supplies in Tesco (Quorn Chicken, fillets, mince, pies, steaks, etc) it won't be a problem. Anyway, what have peoples experiences been?

I'm in the UK by the way

Although I rarely get glutened now when I do it is bad. I have extensive abdominal adhesions and it feels like my intestines are being ripped apart. I will also end up with a GI bleed and hours of explosive D. Because of this and because it takes up to 3 weeks for all the other effects to go away I am very careful. 

Have you had any celiac testing at all? If you had positive blood tests then, as was already mentioned, have them rerun to see if your levels are coming down.

Do go over the Newbie thread at the top of the coping page to make sure that there is not some gluten sneaking in somewhere. I noticed you use the European spelling for celiac. In some areas there the Codex Wheat starch is considered safe. Do you regularly consume items with this ingredient? If so drop them for a bit as many of us do not tolerate it. It would also be a good idea to drop oats if you are consuming those. You can add gluten-free certified oats after you have healed a bit.

Hope you are feeling better soon.

I have been blood tested a few times but it has all come back negative. However, the doctors have said that the blood test is not always conclusive. I had one that showed something was different but the doctors where so useless that they didn't follow it up at all, no matter how much I asked. Yeah, I am in England, UK. I am always careful when buying food stuffs and never buy anything that has wheat in. I've never heard if codex wheat starch but will keep an eye out. I also never eat oats. If i do, I buy the smallest pack of gluten free oats from the health food store as I will end up throwing them away. I pretty much never use/eat oats.

Thank you

Hard to be diagnosed with Celiac if you are eating gluten free.  The blood tests and endoscopy need you to be eating gluten to get positive results.

 

I hope the doctors figure out what is wrong with you soon.

I had an endoscopy and it was negative. I tried introducing gluten 6 weeks prior to the procedure but I ended up in Hospital for 3 nights due to sever pain and actual passing out from the pain. I then tried again 3 weeks later but the same thing happened. It is simply too painful to introduce for a test that they should have done when I was still eating gluten but they didn't. (My doctors are so useless).

Thanks. I do too!

Have you had your Celiac blood work re-run?  A follow-up.  See if you are still getting gluten or if it is something else.  

 I am currently still waiting for an actual diagnosis. will get the results within the next month or so. 

Are there any Shower gells, bath soaps, Toothpastes etc that should be avoided on a strict gluten free diet? Toothpastes mostly. 

Hi Everyone,

I just really want to create this topic in the hope of slowly building up and creating a list of foods that are gluten free.

So far I have got Pom Bears. As far as I am aware all the flavours are gluten free.

If you could put the name of the country that you are in or that you know they sell them that will help tremendously.

Lactose intolerance is quite common in adults.  Many cannot process the lactose in the milk.  Celiac can effect that ability, too.  When the intestines are damaged with untreated Celaic - the part damaged is the part that makes the lactase that helps digest the lactose in the milk.  Onec the gut has healed, many, but not all, Celiacs can digest lactose again.

Thank you. Will keep this is mind.

I'm wondering - what are you doing to get "glutened"?  I have been a Celiac for quite a few years and have maybe only been "glutened" 1 time in the last year.

 

I ask because if your reactions are this  bad - I would think you would be extra extra extra careful about what goes near your mouth.

Hi, thanks for replying.

I have no idea what sets it off. Maybe my dad eats something that is gluteney and doesn't clean it. After all it is my mum that has to deal with it. I always have stomach ache. All day everyday. People don't believe that that is possible but I Promise you it is the truth. I don't actively eat things that are gluteney. I am extra extra extra careful but somehow something is still getting in.

Hi everyone,

Just wondering, I used to drink a tonne of normal (full fat or semi skimmed cows milk when I was younger (I'm 18 now so I'm talking up to the age of around 121/12). I used to drink a few pints of milk a day. Anyway, my stomach aches got to the points where they were so bad that I have had to give uP a lot of food. I can no longer drunk cows milk as dairy really irritates my stomach. However, the last few months I have been drinking coconut milk. In my local Tesco's there is a really good free from range which has a fridge section (milk, cheese, yoghurt etc). I have been drinking the coconut milk from there ( the gluten, wheat, egg and dairy free coconut milk). I am able to drink that by the gallon and not have any effects. However I drink a small glass of normal milk and I have a VIP ticket to the bathroom. Does anybody else have this effect? Also, any ideas why the cows milk really irritates me? I am a very bad coeliac meaning it affects me tremendously badly so could there be a link between what the cows eat? Also, I have a sought problem with eggs? Could this also be related to what the chickens eat? Any info and ideas are very much appreciated.

Thanks,

Tash

Hi everyone.

First of all, disclaimer. I am assuming that all other coeliacs have had very bad experiences and will excuse me for my outward talking. I am slightly autistic meaning that I don't always have restraints on the amount of detail that is appropriate. For this, I can only say read on if you are a true coeliac and are not overly squeamish to specific details

I am writing this after spending 7 1/2 hours in the bathroom throwing up, crying, screaming, clenching and a lot more which I will spare you the details

I had dinner at about 8 and by 8.15 I was in absolute agony. My stomach was cramping and spasming. I was crying and trying to be sick but couldn't. It's very rare that I throw up during this time. It is usually only the other end. However tonight was a fairly normal night. Albeit a very bad night. I usually end up in hospital for about 3-5 days because the reaction is so bad. My stomach cramps, I feel sick, I feel like someone is pulling the insides of my stomach inside and out and in every direction at the same time. Sitting in the bathroom for 7 hours screaming is the only way (non hospital) that I can get through it. If I'm in hospital, I am dosed up with a lot morphine and gas and air and that usually does the trick eventually. I have heard other people saying that they drink tea, watch TV and 'simply ride it out' and I straight away think 'you haven't got it that bad'. Is there anybody else that has it this bad? I cannot think straight. Usually my mum comes in to try and calm me and stop me hyperventilating. I also always have a hot water bottle. All day every day. I have quite bad erythema ab igne (sever burn marks) on the stomach thanks to the over use of the HWB. When the episode has 'finished' so to speak, it takes me half an hour to work up the courage to get up and move for fear i might not be able to stand up without screaming in pain. Normally, after about 2 hours, mum will call the out of hours surgery and I will usually end up being taken in to the hospital. However tonight leaving the house was not an option so I really did have to ride it out.

Basically, my question is what happens when you personally get glutened and how do you deal with? Don't spare the gory details (that's what disclaimers are for). Also roughly how old were you? I'm interested to know life stories of experiences if you feel like sharing. I am only 18 and to be honest, I am petrified that this is going to happen for the rest of my life. The doctors have been useless to say the least and when I finally get my results back from a dietician that I have had to self refer myself to which confirm that I am coeliac, all h**l is gonna break lose at the doctors surgery. anyone else had these issues? Looking forward to hearing from you,

Tash