dwhite42

Its on 24th July. I am going to ask about the tests and say that some people have failed all others but them and see what he says.

I cannot understand with all the tests that were ordered also why the tTG IgG. deaminated gliadin peptides tests (DGP IgA and DGP IgG) wasn't. I am not sure whether they do them in the UK. Just wondering if any UK people have had these done? All they seem to talk about is all the other tests. I will bring this up when I see him, just trying to gather...

Open Original Shared Link Thanks for that. All very confusing these two types! B12 and thyroid all are normal, so nothing springing up there. I have uploaded another test sheet, some of the tests are duplicate but there is a "coeliac screen" one. Now my daughter was 0.60 and the range is 0.0-0.69. Would anybody say that she's nearer the top end, also...

Thank you very much, that was very helpful. We only have a couple of other tests to come in so am hoping something will come up but it seems unlikely at the moment!

Thanks for that Squirming. I totally agree with what you say. I do feel there is two things going on with the skin. We are back to the derm on Saturday and will follow her procedures. It has helped with the oozing and its nice to have something to wash with. When we go I shall push saying that ultimately my aim is for a biopsy of the skin to rule it...

Thanks very much!

Open Original Shared Link Well I have updated my library with some of the blood tests results that are back (still awaiting vit D and blood screen and also thyroid from the GP). Just really confused it it all. Especially the Total bilirubin and CRP results (are they normal??!!). Also not sure what the difference between IgA Immunoglobulins is and IGA...

Thanks you!

All thanks

Thanks very much.

I have read a couple of things about Dapsone and am not overly sure I want to go down that route. I am hoping that if she stops eating it that it would clear, (that could just be really silly hopeful thinking on my part) but I am also not sure how long that would be either. Would an antibiotic be better than Dapsone to start on? What an EVIL thing it is...

Gosh that sounds so painful. I will try that. I just keep thinking, so wonder she has been so miserable recently!

Thanks Squirming Itch, this week has been an emotional whirlwind, sleep seems like a distant memory, for both of us! I was so worried about her and her lips etc that I have slept in with her for the past two nights, she only wakes me up otherwise needing more medication! Today has thankfully be cooler and they seem to have reached their peak. I have not...

Thanks very much, thats good to hear that there can be both! Thought I was going extra mad for a minute, can't wait for Saturday but shouldn't get my hopes up too much as things just seem to take soooooooo long!