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binkman

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Everything posted by binkman

  1. binkman
    Hi zs1994, I had the same symptoms as you before my diagnosis. I'd been having them more and more frequently in the weeks leading up to my diagnosis but looking back now I can see that I'd been developing them on and off for a few months. They got really bad, and I started to get headaches and nerve pain in my feet, but I started to recover almost immediately...
  2. binkman

    ARCHIVED Lupus?

    binkman posted a topic in Related Issues & Disorders

    I haven't been on the forums much recently, but I was dx with celiac after positive blood and endoccopy results in June. Since then I've been gluten-free and have had really good results. All of my fatigue and neurological symptoms have gone away and I can eat most things again with bloating and discomfort. But recently new things are happening. At the...
  3. binkman

    ARCHIVED Day 7

    binkman replied to binkman's topic in Coping with Celiac Disease

    Just wanted to share my experience so far. AFAIK, and I've been militant about it, I've been gluten-free for almost 9.5 weeks. The first couple of weeks were tough, and it took a while to get my energy back. At its worst, I couldn't hardly even cook for myself but I'm feeling pretty much back to normal now. I've even gone a little more liberal with my...
  4. binkman
    Hi guys, I've got a quick question. Has anyone ever experienced an enlarged supraclavicular lymph node? I developed a cold about two weeks ago and noticed an enlarged submandibular node. I'm mostly recovered, but still having a bit of snot and phlegm, especially in the morning. I assume the submandibular node is related, but a few days ago, while looking...
  5. binkman
    The doctor is at a loss, supposes it must have been the metronidazole. Recent blood tests didn't even hint at any kidney disfunction and urine tests a week before, and now a week later, are absolutely normal. Weird.
  6. binkman

    ARCHIVED Day 7

    binkman replied to binkman's topic in Coping with Celiac Disease

    Thanks gluten-free Lover, I have indeed made a lot of changes in the house, and spent quite a lot of time and money replacing a lot of cookware and food, cleaning cabinet surfaces, countertops, etc. The only reason I went out was because the restaurant was a dedicated gluten-free restaurant. I was hoping that I'm not too bad off, because I've only...
  7. binkman

    ARCHIVED Day 7

    binkman replied to binkman's topic in Coping with Celiac Disease

    I have been having a bit of 15 month-old cheddar and 24 hour yogurt most days, but maybe I will stop altogether for the next week and see if that makes any difference.
  8. binkman

    ARCHIVED Day 7

    binkman replied to binkman's topic in Coping with Celiac Disease

    Day 14! The weight loss has reversed itself and I am now gaining at almost the rate I had been losing. But it's not been a steady improvement. I wonder if I glutened myself recently by accident, or if I am just having a relapse, but after improving through day 12, the last two days have been rough with C&D, and once again the burning feet have...
  9. binkman
    It's all about the hookworms, kids. Open Original Shared Link Open Original Shared Link I would totally do this if it were an offered therapy.
  10. binkman
    I've been gluten-free for a little over a week. Today I was driving all day. After about 6 hours in the car, I had to get more gas and urinate. I was surprised to see that it was a dark brown! I can't tell if it was cloudy or not. It was in a urinal, not in the bowl like usual, so it might have seemed a bit darker, being undiluted. It was not dehydration...
  11. binkman
    Haven't heard from the GI yet, but the results posted online from the biopsy (4 duodenal samples) notes increased epithelial lymphocytes and villous blunting. It doesn't give a lot of details. I suppose blunting means not atrophied, so I guess Marsh 3? If I call, would they give more details or should I wait for the GI to call me? Not that it matters, I guess...
  12. binkman

    ARCHIVED Day 7

    binkman posted a topic in Coping with Celiac Disease

    So far, so good, I guess. I've been gluten-free since the day before my endoscopy (when I didn't get to eat anything)—seven days now. Since then, some of my symptoms seem to be improving, but one week is probably not long enough to establish a trend. Strangely enough, its the neurological symptoms that seem most resolved. The tingling and burning in m...
  13. binkman
    Well, my food is traveling quickly. Only 18 hours and theres lots of undigested bits recently. I think all of my food has been going through me this fast recently. Could stomach acid production be low? Can that be from celiac?
  14. binkman
    Well, my food is traveling quickly. Only 18 hours and theres lots of undigested bits recently. I think all of my food has been going through me this fast recently. Could stomach acid production be low? Can that be from celiac?
  15. binkman
    Also, not sure if it's a side effect of the upper/lower endoscopy, or the first flagyl pill, but I had a bowel movement just 18 hours after my first food following the procedure yesterday...
  16. binkman
    Okay guys, here are the results from the endoscopy. I really don't know how to interpret them, so if anyone has any insight, it would be great! Upper endoscopy Quoting findings: "The upper, middle, and distal third of the esophagus were carefully inspected and no abnormalities were noted. The z-line was regular & well seen at the GEJ at 41 cm from...
  17. binkman
    Thanks again for the encouragement and support everyone. Over the last three days, the weight loss has stalled out, thanks at least to my mom's cooking and all that Boost. I have a feeling (or at least a hope) that I might have had something else going on this month that was just made worse by celiac. I guess its a blessing if it allowed me to catch the fact...
  18. binkman
    Thanks everyone for sharing your experiences, advice, and wisdom. It has really helped to relieve (a lot of) my anxiety. Living with celiac disease will be a challenge, but as long as it's something that I can manage then so be it. I was (and still am, somewhat) just worried that this sudden weight loss might not be explainable by celiac disease alone...
  19. binkman
    The only issue that I have is that I am STILL losing the weight! If this takes 2 months to even out, at this rate, I will have lost almost 40 pounds! I was 6'2 and only 175 when this started. I already have absolutely no energy during the day, I suppose as a result of losing 3.5 lbs a week. Can I expect the weight loss to slow down at some point soon...
  20. binkman
    I have a whole long story, but it basically boils down to this: About three weeks ago I had some recurrent watery diarrhea with ruq pain, just under my right ribs. Both came on at the exact same time. Since then, I've not really had D, but somewhat abnormal and more frequent movements. I've had multiple blood tests. The more common blood test markers...
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