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shanasun

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Everything posted by shanasun

  1. shanasun
    Dear Mommida, Thanks for the post. So are you saying your daughter has EE and celiac, and the EE only resolved when you eliminated all the allergens and peas? And when her symptoms resurfaced at the age of 6, it was from EE, not from other kids cc'ing her food with gluten at lunch? When you say EE symptoms are gluten-like, could you clarify? Do...
  2. shanasun
    Dear greenbeanie, I found an independent gluten testing service, and it looks interesting. But they don't retest products if they come in under 20pmm, so how do you know that something that you bought last year and was at 5 ppm is still that low? I use all Bob's stuff and I trust that their flours are really under 20ppm, but I realize that it may...
  3. shanasun
    Dear All, Goofed on the last one. Trying again! Thanks so much for the great feedback---the site recommendation and specifics on your daughter's recovery, (@greenbeanie), the DGP explanation (@nvsmom), and the solid advice (RMJ). I am a scientist and have read deeply in the literature, but (shaking head), a year in I'm still learning stuff all...
  4. shanasun
    Dear All, Sorry it took me so long to respond--on a trip
  5. shanasun
    As you say, the Fasano diet is for helping people get their ttg down. But she HAD it down. And judging by her symptoms, she had it down for at least 6 months. She is not getting any more gluten than she did while having a negative ttg. So my questions are more concerned with: 1. Has anyone had the experience of their child developing a super...
  6. shanasun
    I really appreciate that you are trying to help, but this is tangential to the questions that I asked in my post. While mistakes are always possible, they do not explain a mildly elevated ttg for the last 5-6 months, because probabilities say she would also have been glutened by similar mistakes in the months prior, which she wasn't, because her ttg was...
  7. shanasun
    Well, that's always possible, but it's actually more unlikely than the other possibilities, because her pre-school situation and her mornings with her grandparents did not change over the course of the year---in other words, she dropped to a ttg of 2 and was symptom-free while at pre-school and spending time with her grandparents. I have an excellent relationship...
  8. shanasun
    I am struggling with similar issue as greenbeanie and would love some advice. My daughter's ttg dropped from 207 at time of diagnosis to 97 at 3 months-post, and then 2 after 6 months of being gluten-free. Then at her 1 year bloodwork she was 28. We had permitted her to play with play-dough at school starting about 6-8 weeks before the result of 2...
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