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Maddi

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Latest Celiac Disease News & Research:

Everything posted by Maddi

  1. Maddi
    At least that gives me hope in gaining weight. I've never been overweight. Always have been skinny. But this is beyond my normal weight... I'm too thin. I hate it. /: Wow you've been struggling. So sorry.... I know how that feels. Hopefully you get everything sorted out! I'm sure you have but have you gotten your antibodies checked again? Maybe you're...
  2. Maddi

    Tell me what you want, what you like. It's okay, I'm a little curious, too.

  3. Maddi

    RT @nog_uk: Unfortunately only 15% of people with celiac disease have been diagnosed. However, we are … http://t.co/FHE7SKGUtQ http://t.co/…

  4. Maddi
    Thanks a lot. Unfortunately I seem to be one of those who test negative with blood work. Sigh I'm going back to my doctor on Thursday and I'm going to request the gene test. At least that way I can eliminate the possibility of having Celiac or confirm that it's a possibility. I'm also going to print out some stuff showing people's Celiac stories and those...
  5. Maddi

    RT @thefamilychef: #CeliacAwarenessMonth Many people test negative for celiac disease (& test negative multiple times) so their doctor.. ht…

  6. Maddi
    Honestly, I've been tested for Celiac three times. First time was 2years ago when I had low vitamin b12 and low vitamin D and folic acid for no reason. (I had just had the stomach flu). I tested negative. Then in Feb of this year... I tested negative again the tests that were done that time were: IGA serum: 250 range:91-414 Deamidaded gliadin IGA: ...
  7. Maddi
    I'll look into that lotion! Thanks. (:
  8. Maddi
    Sorry one of my newest symptoms that happened during this glutening was urinary incontenance.): If I sneeze I'll pee a little. It's happened 3 times for the first time in my life. ): I'm too young and have never even gotten pregnant to have these types of symptoms!
  9. Maddi
    While on gluten the symptoms that bothered me the most were neurological (my GI symptoms aren't super bad... just frequency but not the big D... and well the weight loss is very disturbing)... now I was glutened a few daus ago and I'm finally feeling better today (not 100% but at least I'm functioning... I'm painting the pantry!! Superrrrr happy bc before...
  10. Maddi

    So next week I'll go to my dr and request the ig6 antibodies to test for ataxia. And celiac gene tests.

  11. Maddi

    I'm going to get to the freaking bottom of my stupid symptoms.

  12. Maddi
    You guys are awesome! And of course very, very right. As of today, I've started washing my hands. You've given me strength and I have ZERO excuses since my hands are not bleeding, just very dry and rough. I will also listen to your advice of sleeping with coconut oil on my hands with gloves on!!!! That's a very good idea! I'm officially determined to do this...
  13. Maddi
    In case you haven't seen my posts, I haven't been diagnosed with Celiac (negative blood tests) but I do have many of the symptoms. Well I was feeling pretty good when I first started now I'm back to feeling a bit crappy. My neurological symptoms (tingling, burning, hot flashes) are back. And I'm tiredddd so tired. Well I'm new to this and I've now realized...
  14. Maddi

    My memory is getting a bit better though. I'm finally remembering more words. But this is going to take a longgggg time.

  15. Maddi
    I'm so mad that I had that piece of chocolate bc I actually read the label before taking a bite! My bf even said it was just chocolate that it wasn't going to kill me...of course now he see's how I feel and has apologized... that he just wanted me to try it. /: It sucks that he would have to apoligize for that. From now on I'm determined to not assume or...
  16. Maddi
    Yes, but the neurapathy had gotten better. I'm not sure if I was glutened by that meat. My bf also had me try Lindt's white chocolate which apparently can have cross contamination. This diet is very, very hard. My hot flashes had disappeared and now they're back. (Cross contamination?) My GERD also started acting up again. I'm going to try to be a bit more...
  17. Maddi

    My mood is getting better. (: No more anger attacks! !!!!!! Until I get glutened. lol

  18. Maddi
    I really do appreciate your responses because I feel so tired of being sick and then also tired of not being listened to. I'm 26 and I just want to be feel healthy. I guess I just have to be patient. Now that I got my period I'be been fatigued on andoing off (but not asure bad as before). /: And I have crazy leg cramps and weird feeling in my body, the best...
  19. Maddi
    If you've gone gluten free and have noticed a difference when reintroducing gluten then you could have some sort of sensitivity / celiac. However, to know for sure you should get a Celiac panel. (Like cyclinglady has posted). If it's negative maybe you just have a sensitivity or maybe they can do a biopsy of your small intestine (endoscopy). If you do get...
  20. Maddi
    Thanks so much for your response. The more I read and the more I listen to the symptoms of gluten sensitivity/Celiac the more convinced I am that I have either of the two. I have two questions. 1. I barely had any symptoms last year in August when I had my biopsy. I only had a pinching pain next to my belly button and a lottttt of gas and excessive hunger...
  21. Maddi

    I've turned into someone else.

  22. Maddi

    I read about someone not feeling more consistently better until 6 months so I'll give myself 6 months. (:

  23. Maddi
    This is what i found online: Increased numbers of plasma cells in the intestinal mucosa produce IgA, IgG, and IgM antibodies directed against grain peptides and connective tissue autoantigens (Open Original Shared Link). The antibodies are secreted as secretory IgA into the intestinal lumen and are also detectable in serum (Open Original Shared Link, Open...
  24. Maddi
    That the IGM is elevated bUT not too bad. That could be bc of a virus. But then why do I get better off gluten? Why have I lost weight? Ughh.... he tested me for Espstein barr virus today. I doubt I have that bc my bf is fine.
  25. Maddi
    He told me that I don't have Celiac. That if my biopsy last year was negative that I don't have Celiac. That my symptoms could be a sensitivity but that in accordance to my tests, my results were negative. I asked the secretary to mail the results. .. aND I'll let you know more specifically what they looked at. /:
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