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Jenny

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jenny

  1. Jenny
    I have to sheepishly admit, I was aware that some celiac's can't handle oats. Since my daughter and husband (not formally diagnosed with celiac, but highly suspected) haven't had immediate reactions to oats, I assumed they were okay. That's what I get for making assumptions! I'll eliminate oats, Cheerios, and anything containing oat flour. Thanks for bringing...
  2. Jenny
    In the five years since diagnosis, her TTG has NEVER budged. At diagnosis her TTG & IGG results both came back >100, meaning her levels measured greater then what the test measured. It took three years on the GFD for IGG to get below 100 and has been decreasing steadily since then...IGG is currently at a 29. Her TTG, however, is still >100. If it...
  3. Jenny
    Let me ask you all this: If she's basically symptom free, how concerned should I be about extremely high TTG levels after five years? Are there any long-term risks?
  4. Jenny
    Yes, she eats oats on occasion...maybe 1-2 times a month (Bob's Red Mill gluten-free Oats and sometimes Cheerios). Since she is pretty in-tune with her body and knows when she's feeling 'off', I asked if she has stomach aches after eating oats (her celiac symptoms come on very quickly after she is 'crossed'). She said she never gets sick after eating Cheerios...
  5. Jenny
    Thank you all for your input! I only have a few minutes to write, so I might not get to all of your comments right now. The first couple years on the gluten-free diet, my daughter still had regular symptoms (GI distress, extreme fatigue, pounding headaches, muscle/joint aches, and much more). Two years into the diet, we made our home gluten-free, and all...
  6. Jenny
    Good afternoon wise celiac experts! Please help me, I need sound advice! My ten-year-old daughter was diagnosed with celiac (positive bloodwork & endoscopy results) nearly five years ago. During that time, I have been vigilant to eliminate gluten: we don't allow other people to cook for her (with one/two exceptions), we don't allow gluten in our home...
  7. Jenny
    Are you nursing? If so, are you gluten free? Gluten from my diet seemed to effect my nursing baby's skin. (I don't have celiac, but am rather a mom and wife of two celiacs). When I went totally gluten-free, his rash totally cleared up.
  8. Jenny
    If you are willing to drive, pediatric GI, Dr. Daryl Fish, is the best. He is at Marshfield Clinic in Marshfield, but also travels to Wausau and Eau Claire. Besides being a wealth of information, he is very caring, an exceptional listener and great with kids. Whenever my daughter has an appointment, I am impressed by the amount of time he spends with us...
  9. Jenny
    I agree with Southpaw13. Your child didn't cheat, had a great attitude, and washed his hands after the craft. He deserves praise and a big reward for making the tough choice to stay healthy. When my seven year old was in a similar situation and made the right choice, we celebrated by having dessert before supper. She loved it and felt proud of her actions...
  10. Jenny
    I shop at Aldi's all the time and purchase many of their canned beans products--garbanzo, black, and refried. No on in my household has ever had an issue with them. Hope this helps!!!
  11. Jenny
    My daughter was five when she was diagnosed through a biopsy. The week before the prep, I talked up the fact that on the prep day, she could only have lots of sugary things--soda,jello, popsicles. She helped pick out all of her prep 'goodies' and we rented a couple movies for the big day. On prep, the entire family fasted to support her (even her three...
  12. Jenny
    Thanks Ladies!!! I can't wait to try the recipe! I think I will also go back to fluffing the crust by hand. I hopefully won't have to bring out the steak knives for my next pie
  13. Jenny
    Does anyone have a fool-proof pie crust recipe? Or any tips for making the crust flaky? I have been using Carol Fenster's recipe for pie crust, but can't get it to turn out. It's a good tasting crust, just tough. I have made other recipes by Carol Fenster with great success, so I'm pretty sure the problem is me, not the recipe. I use a food processor...
  14. Jenny
    Thanks for the advise. I, too, was a surprised that her teachers were asking her stop. I always viewed it as something she couldn't control. Now that I have (hopefully) found the source to her throat clearing, she'll be able to stop before kids mock her for it. She is a really sensitive kid, and getting made fun of for something she may not be able to...
  15. Jenny
    Hi All, My seven year old daughter was diagnosed with celiac 1.5 years ago. Although we have taken the gluten free diet very seriously, her IgG levels remain extremely high-->250. Her iron levels have normalized and she is basically symptom free, so her Doctor isn't too concerned, yet. Well recently I started to suspect that she has an intolerance...
  16. Jenny

    ARCHIVED Could this be DH?

    Jenny replied to Jenny's topic in Dermatitis Herpetiformis

    There's more... The IgA test was ordered by our GP a year ago, and the entire family tested negative. (Our celiac daughter is IgA negative). No other blood work tests were done. Last month he went to a GI Doc. They talked about the abundance of my husband's symptoms (only a short version listed above), but no tests of any kind were done. The doc recommended...
  17. Jenny
    My husband has had a chronic rash for many years, which never fully goes away. It is located on his back, chest, thighs, and has recently spread to his face. The rash can be characterized by fluid filled lesions that are some what symmetrical across his body. The lesions form white, flakes of skin when healing. Once healed, the skin's pigmentation will...
  18. Jenny
    Thanks, Cycling Lady! My husband has felt awful for a long time. Whenever he eats gluten, he has to fast 1.5 days until he can handle food again. The blood work is a year old and he was eating a gluten heavy diet between fasts. Since June, he has drastically reduced the amount of gluten he has consumed--two gluten based meals/week. His biopsy was performed...
  19. Jenny
    Hi Celiac Community, In the summer of 2014, my daughter was diagnosed with celiac disease.Though she was IgA deficient, the process to get her diagnosed was quick and easy due to an amazing team of doctors. Since the diagnosis, my husband has suspected that he too might have celiac; however, his experience trying to get an accurate diagnosis has left us...
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