Donna73

I feel like nobody really understands what its like to live with celiac. I cetaintly didn't understand until I was diagnosed and forceed to live with it. Going out, was a huge part of my life. Restaurants were a huge part of my life. Im single and that is just what you do in a big city. I have changed where I go and make sure they have gluten free options...

I am somebody who has always gotten canker sores -- a lot of them. But since going gluten free, I haven't had any. I have never gotten a cold sore. However, just last week, I sore on the corner of my mouth popped up -- it looks like a canker sore, or a split lip, or something. Ive done some research and it looks like it possibly could be caused by a vitamin...

I was diagnosed with blood tests in October with celiac. My numbers were all so positive and high, and therefore, elected not to go through with the biopsy. He diagnosed with my celiac then. However aftrr 3 months of pain , I did go though wiith the biopsy. My doctor said I didn't even need to go back on gluten which was fabulous for me. He said with...

Not only do I have dry skin, but I deal with DH and horrible itchy skin for a few weeks after accidental gluten. Im still not doing so well with the hidden gluten and forget that I have celiac sometimes. I'm not out there eating a loaf of bread, but i may take a mint when I leave restaurant and eat it before I realize. oh, crap, I probably shouldn't have...

Im just venting, I guess. I have been gluten free for about 3 months and I have been so up and down the entire time. I have been dealing with stomach pain again for a few weeks. Every day. I have pain when I wake up. I have pain all day. I have pain in the evening. I have pain right now. I sit in meetings and think about how I am in pain. I have...

I was diagnosed via blood test with celiac back in October. I originally made the decision not to have the biopsy. All my blood tests were positive, and were very high. But, I have had ongoing pain and my GI wants to do the biopsy to get a baseline on damage. As he put it, he has never seen numbers as high as mine with a false positive. He said that if...

Thanks everybody. I did not know that even gluten free granola can cause issues. I'll cut that out immediately. I eat it every day so that could be why I feel so horrible. I am not lactose intolerant and handle milk fine (at least I think so), although I am not a big fan of milk, and switched to Almond Milk a few years ago, even before my diagnosis...

I know that food is better for me. I have no interest in eating food. None right now. I have no interest in eating meat. I have no interest in eating Tuna, and have no interest in eating gluten free bread. In fact, it was recommended that I stay away from the gluten free products until my stomach heals. Food still makes me sick. Even food without...

I have the same symptoms and it just got worse before I was diagnosed. Now that I am gluten free, it is slowly getting better.

I am 2 months post diagnosis. I am somebody who did not have chronic stomach issues before my diagnosis (other than the 3 months before i was diganosed). But, i gained over 50 pounds in 3 years before that. I lost about 25 of that in the 3 months before my diagnosis. I still need to lose about 25 pounds. I have zero interest in food. I eat because I...

Interesting post. I was diagnosed with a bilateral PE -- numerous clots in both lungs, and several in my leg. This was all pre-celiac diagnosis. I starting have a lot of my celiac symptoms when I was in Coumadin, and they assumed i was having a a reacion to the medication and i was taken off of it early. No genetic predispoition to clots at all. But...

I saw another post sort of related to this, but my questions is a little more specific. I am newly diagnosed. I have a full time job, and travel quite a bit for my work. I spend a lot of time in airports, hotels, on the road, in a car, and on a plane. I attend business meetings, business lunches, and dinner meetings. How do people handle the diet restrictions...

Not yet. I'm assuming that will all happen when I visit the GI in January. Im sort of in Limbo b/c my family doc wanted to refer me out, but I couldn't get for awhile. So I feel really on my own.

I am newly disagnosed by my primary care doctor and b/c of the holidays, end of the year, etc, i couldn't get into a GI doctor until next year. So, for now,Im gluten free and winging things as best as I can. I have been gluten free for a few weeks. My stomach issues are slowly resolving. But, I have this ache....my arms, legs, neck, just general muscle...

Thanks everybody. Its all very confusing. But, I am learning. This website is great. Lots of information.