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Gardenmamarama

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gardenmamarama

  1. Gardenmamarama
    Is there any update about this restaurant? We are going to a party there. Just seeing if I can safely order a meal for my daughter. I called and they assured me they can do a safe gluten free meal and they've had no complaints.
  2. Gardenmamarama
    It is a very hard situation for my daughter. Having to say "no thank you" to the kindness someone extended to her. Missing out on the cupcakes. Being the only kid who can't have one while everyone else is diving in. It breaks my heart. She knows and understands but still - you wish it wasn't so. It's also a perfect example of how misleading labels...
  3. Gardenmamarama
    I tested a Gigi's "gluten free" cupcake with a Gluten Tox home testing kit. The cupcake had over 20ppm gluten. Gigi's labels these cupcakes gluten free with a disclaimer that they are made on shared equipment, stored in the same case and are cross contaminated. At over 20ppm and with cross contamination they aren't permitted to call these gluten free at all...
  4. Gardenmamarama
    Thanks! We haven't tried this brand but good to know!
  5. Gardenmamarama
    Here's a reply from today- June 2016. Sounds like cross contamination is a risk for all of their products because of the shared "kitchen" facility. Anyone use Lush products and have experience? Thank you for your email, I'd be happy to help you with this! It is so wonderful that your daughter is looking to try Lush. We are a unique company...
  6. Gardenmamarama
    Thanks so much for all off your feedback on this! I wanted to post an update after latest doctor appointment. The doctor was very happy to see my daughter's ttg came down to 9 from 72 in six weeks. Probably she was still getting gluten from somewhere, which we eliminated when I got "crazy" so part of this is learning for me- and we are avoiding eating...
  7. Gardenmamarama
    Tell me if I'm going overboard- but I feel like she could be getting glutened from trace sources on surfaces. I'm a crazy person over it, like extreme germaphobe only it is gluten not germs. She's supposed to wash her hands and wipe the table before she eats. Being nine she's not always going to do that if I'm not there reminding her. Just an an example,...
  8. Gardenmamarama
    Thanks so much for your reply and the encouragement! She has not had the dgp test. I will ask her doctor at the next appointment in two weeks. Her doctor is out of the country now for a family emergency so I can't talk to her before her appointment. Her thyroid is good. The whole thing has been tough - logistically dealing with the dietary change and how...
  9. Gardenmamarama
    I need help. ? My 9 year old daughter was diagnosed with celiac one year ago. Her recent blood test shows iga 9 (normal is 0-3) and ema positive. The iga is down from 72 six weeks ago (normal 0-20) and over 100 one year ago. We have strictly adhered to the gluten free diet taking every measure I know to prevent cross contamination (no gluten in the house...
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