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celiacgeorigapaeach

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  1.   On 11/13/2006 at 12:55 PM, almostnrn said:

    Most salon quality products have wheat clearly listed in the ingredients and it is tough to find any that don't have any in them somewhere. Because of my hair type I"m forced to use salon stuff or I look like a mess!! I have found that many (if not all) Aquage products are safe to use. I have DH as well and my scalp goes crazy if I use anything unsafe. Just before I was diagnosed, my hairdresser couldn't figure out why my hair was thinning so badly...at that point I was using Aveda (which I miss dearly) but it was LOADED with wheaty stuff. They Aquage works just as well and I think it smells really good too!

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    Which Aquage products are safe for us? I have been having the hardest time finding a good quality gluten free shampoo that does not make my blonde color treated hair greesey and gross. 

  2. Thank you everyone for your help! I had my endoscopy and colonoscopy done yesterday. I was put under anesthesia this time and it was an overall good experience. My doctor did end up diagnosing me with Celiac Disease because of the blood work and my symptoms. I should hear about my biopsy results within the next few days. I am very sore today, but in better spirits now that this is done and over with! 

  3. A lot of products and companies can be very misleading. A lot of them do not understand the complexities of Celiac Disease and how serious it is. I think these labels are like this because of the "fad" gluten free diet. Those are the people that do not have to necessarily worry about cross contamination like we do. If it is processed in a facility that also processes wheat it is cross contaminated and not safe. It is very frustrating that the labels can be very misleading like this. I only eat certified gluten free products at this time because I don't feel comfortable trying anything else. Good catch. Hope this helps!

  4. Hello Everyone,

     

    Thank you for your responses. You have given me some very helpful advice. I am actually a little confused now. I have been told by my doctor and other Celiacs that a blood test was and is enough to diagnose me. While the gluten free diet has been difficult, it is not that much of an inconvenience for me. I was first diagnosed with Fibromyalgia with no hopes of getting better. Not eating gluten for the rest of my life and the possibility of getting better in 6 months to a year is obviously very worth it to me. I do not really feel comfortable going back on gluten for 2-4 weeks just to get a biopsy done, especially if that will set me back after all the hard work I have been doing to recover. Have you had the same experience with blood work being enough for a diagnosis? 

     

    Also my bad experience was that the doctor was actually pretty rude to me, horrible bed side manor. I have been having Celiac Disease symptoms for almost all of my life. When I got that endoscopy (before diagnosis) about 4 or 5 years ago they did not find anything wrong. The anesthesia was horrible and I felt everything. I am more nervous that I am going to put myself through this to hear that nothing is wrong again. They blamed anxiety for all of my symptoms then, which was not the problem. 

     

     

  5. I was diagnosed with Celiac Disease back in October through blood work. I have an appointment with Gastroenterology at the end of this month. I have heard horror stories that doctors not finding the villi damaged will make them not diagnose you with Celiac Disease, when in fact you still have it. I have had a upper endoscopy before  and it was the worst experience. (This was years ago when I first started having severe stomach issues. But also before I got severely ill like I am now.  He did not take biopsies and did not find anything. Of course, again he blamed all my pain and symptoms on anxiety) Now that I have been diagnosed with Celiac disease my whole life and symptoms make sense now. Anyway I wanted to meet with the doctor first, to see what he believes when it comes to properly diagnosing celiac disease.  What are some questions that I should be asking this doctor and how can I make the next endoscopy a better experience? Any advice would be greatly appreciated. 

     

    Thanks,

    Shelby

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