ysali
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Latest Celiac Disease News & Research:
Everything posted by ysali
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So I'm fairly new to being gluten free (3ish months) but I did an insane amount of research pre and post-diagnosis because I am exhausted of being sick and tired all of the time. Right after the diagnosis I ordered myself a 'baker's rack' and set it up with new pans, plates, bowls, utensils, toaster, etc. I keep most of my food there and wash everything separately...
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ARCHIVED Positive blood test, but told "probably not celiac"
ysali replied to sstar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This definitely seems odd to me. My scopes/biopsies all came back clear (two endoscopies, one capsule endoscope, and colonoscopy) but my bloodwork came back positive for celiac so my doctor put me on a gluten free diet immediately. Everything else in my labs was fine too, no anemia, none of that, just some elevated inflammation markers. -
ARCHIVED 7 Months in, still having "off" days :(
ysali replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been gluten free for a little over three months and I think a part of me was hoping to get better right away but it's been a roller coaster. Never in my life did I think I would get excited over fully formed stool (nor that I would be obsessively inspecting what was in the toilet) but here I am. For the most part, I relate very much to what you described... -
I know I'm probably over-reacting because I'm an obsessive googler which I know does more harm than good since it just makes me even more worried but it's a habit I can't seem to break. The fever was one of the red flags that caused me to go to the GI in the first place. I'd be in the bathroom for 2-3 hours a few nights out of the week and it would end...
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Hello all, I was diagnosed with celiac a few months ago and have been on a strict gluten free diet since then. One of my initial symptoms that led to testing was elevated inflammatory markers discovered during blood tests. My three month follow up was last week and I had just gone through a really bad reaction after some unfortunate cross-contamination...
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ARCHIVED Experiences with diagnosis
ysali replied to ysali's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The second EGD definitely made me a little uneasy but at this point I just want to find out what is going on so I agreed. Biopsies came back all fine according to the phone call I received today but she put me on a six week gluten free diet immediately following the procedure to see how I felt. Now I just have to wait for my small intestine CT and the follow... -
ARCHIVED Experiences with diagnosis
ysali posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
About a year and a half ago I started having stomach issues which finally culminated in me going to see a GI doctor this past October. After a round of testing there is still no clear diagnosis aside from 'unexplainable' inflammation in the small intestine and high inflammation markers in blood work. Endoscopy came back fine, colonoscopy came back fine...