EenieNeNe

I have itchy red bumps on my forearms ahat I have been wondering whether they are dermatitus herpetiformis or not, not sure how you can know thay for sure though.

My new doc said she will recheck my bloodwork after 3 months gluten free to see if my antibody count goes down. Janine

I know its frustrating to wait but it will be worth it to get some answers. Happy to offer support when/where I can. Janine

When I first started to read your post I had to look twice because I could have sworn it was me that had posted it. I am 59 and also have PCOS and Hashimotos and also just started having severe symptoms in the last year (severe gerd, fatigue, headaches, inflammation, brain fog, vertigo, constipation) after an extremely stressfull period at work. Although...

Ok thanks ?

Janinegrichards@gmail is there a list of ingredients you need to look for, trying to figure out what I can and cannot put in my coffee and already having a tough time. Normally I use a sugar free/lactose free creamer and vanilla flavoring. Janine

Well I went to a new gastro doc today that is covered by insurance and she said there is no reason to do the capsule endoscopy I should just go on the gluten free diet and see if my symptoms are reversed. So as of tomorrow I am going to go gluten free, very nervous about this prospect as I have no idea where to even begin. Going to check into a...

Ok this has me really worried, I take melatonin every night, I cant get any decent sleep without it ?

I found out today that the cost of the capsule endoscopy is $1977.00 unfortunately I was also told today that the doctors I had been seeing are not "in network" even though I checked Aetna's website and asked the doctors office before I scheduled my appointments. So now I am paying 40% of the three procedures instead of 20% and I really dont think I...

One thing the Colonoscopy did reveal was that I had a tortuous colon and that this caused issues doing the test, this was not something that was noted on any of my previous colonoscopies (the last one was 5 years ago). Unlike a lot of people with gluten intolerence or celiac I suffer from constipation rather than the other end of the spectrum. I am...

Thanks, I just appreciate having someone who can offer feedback. At this point I am debating whether I should do the pill test or not, worried it will be costly. May just do the gluten-free diet and see if I get relief or not, ultimately that is where I need to go anyhow. Janine

Had the colonoscopy and that came back normal as well so now I guess we do the pill camera. I sure can tell when I eat something that is heavy in gluten like bread, I get this burning sensation in my lower back that feels like my intestines are on fire and I just feel miserable ?

I get a burning sensation in my lower back that in the past I had attributed to my cysto-eurethritus <sp> but now I am not so sure. I definitely feel it the next day after I ingest a lot of gluten. I am still in the diagnosis stage for celiac so have not gone gluten free yet, I have had an endoscopy and a colonoscopy and now my doc wants to...

He did three but that is exactly what he said as well, that they can be patchy and thats why he wanted to do the colonoscopy to check the last section. He said if he cant confirm with that then we should consider the pill. I am due for a colonoscopy in the next 6 months anyhow so figured I might as well go that route, and my understanding is the pill procedure...

Sorry for the delay, but a lot going on lately. I had the biopsy done and they came back inconclusive but because I am also low in ferratin the doc is not convinced and now wants me to have a colonoscopy as well. In the meantime i had my appt with the endocrinologist and she is starting me on T3 as well as the Synthroid I was already on and asked...