Highflyer

I think were haggling over words. Healed vs. Cured. I guess for me cure is defined by evidence. I have arthritis and if my body no longer showed evidence of the disease I would consider myself cured of it. I have a skin disorder that is healing itself...once I have fully recovered from it I will consider myself cured. Likewise, Dr. Haas had patients who...

I think it was 1952, unfortunately there is so much more to learn about this disease and we, along with millions of others, are proof that the conventional treatment for Celiac Disease is grossly inadequate. The current conventional treatment for Celiac is antiquated and ineffective long term...There is a real need for more research to be done. ...

I hope that works for you. There is also product called Open Original Shared Link that is very good, tolerated well and more nutritious than boost. I add celery, carrots, garlic, as well to my broth and strain them out to drink it. Sea salt adds minerals. I also made pureed soup out of the things I could tolerate to make it easier for my system...

Ya, SCDiet doesn't work for everyone, the author of the modern book on it was a biochemist who spent 12 years studying the science behind the diet. She says if you aren't improving after a month on the diet to discontinue. There are people who just don't respond well to it and you are clearly one of them. I hope the kefir helps you and that you can find...

What helped me at that stage of things was sticking with meats, fish and poultry (the most nutrient dense foods) and well cooked veggies (the ones you can tolerate). Make sure to get some healthy oil in your diet as well for calories which means energy (ie. cold pressed olive and coconut oil). If your energy is low adding more oil will increase energy. Start...

Great stories...mine usually involves a huge piece of pizza ooozing with cheese (which I was not able to tolerate either for a long time). Phew...what a panic to wake up to that. Oh we're a unique breed aren't we? lol Da big bad PIZZA monster!

I haven't tried store bought kefir. It's very easy to make at home if you are into that sort of thing and want to know more about that there are youtube videos and many places to buy the starter online. I've been advised to start slow on any probiotics. (I can tolerate as much as I want now and feel great on them). Start with a tablespoon/day and see...

I forgot to mention I have been gluten free since 1998...will stay that way for life likely, but then who knows...I will continue to read about the experiences of others who have walked this path before I decide to retry it. I was also dairy free for 25 yrs and am now tolerating and thriving on certain kinds of dairy. Remember I'm sharing my experience...

Ya, there's likely more to it than what this guy is saying...I think he's only got part of the story on the cross reacting stuff, but for me reading this was confirmation that coffee causes me problems and this might be the reason way.

Well apparently it worked for Dr. Haas' patients...and those who continue in that kind of treatment today. I offer the information for those who are interested in researching it for themselves, not to start an argument. I was offering that as an explanation for my relapse, and for me personally coffee is not good. Others clearly are not bothered...

Forgot to add the link about coffee cross reacting ... Open Original Shared Link

You are right coffee does not have gluten in it...it has a protein that is similar to gluten protein and for many with Celiac Disease it causes problems...I'm apparently one of them. For me it was a factor. In 1952 the mainstream of medicine took the approach that gluten protein alone was the problem underlying celiac disease but the problem is more...

I personally think that's an awesome plan right there...lol...course I'm kidding. The topic is 'best leaky gut diet'. I personally believe that leaky gut syndrome underlies almost all gut issues as well as a number of other autoimmune diseases. What's worked best for me in combination with an scd diet (please never assume you can eat everything on any...

Well living in the boonies is not beneficial to one's health...I was to see the gastroenterologist yesterday...gave him my story...he suggested I do a gluten challenge for 2-3 weeks and have a biopsy to confirm celiac...I said "NO" well he said it is your body...indeed!!! I said I don't need to get sick for you to tell me I am sick...and you know I have...

Thank you for your responses...It is amazing to me that I have not made the connection until now but this is making some sense...I had no idea that all this neurological, joint, and muscle pain could be related to celiac/casein...just such a lack of info out there when it comes to this stuff especially from MD's. Looks like I am going back to the drawing...