eleep
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Latest Celiac Disease News & Research:
Everything posted by eleep
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ARCHIVED Great News! It Was Pernicious Anemia All Along
eleep replied to NicoleAJ's topic in Related Issues & Disorders
Oh that's excellent news! I have a friend who's sister is struggling with MS and I know how scary that possibility must have been! eleep -
ARCHIVED Im Young, Why's It Taking Sooooooo Long
eleep replied to MauriceGreene's topic in Coping with Celiac Disease
I'm not sure whether anyone's mentioned this, but have you checked all of your shampoos, conditioners, toiletries, etc....? That was something I needed to do at the 1 month mark. I also found that feeling better was a progressive thing -- there were a lot of ups and downs at first. The stress of worrying about your scholarship may be putting you under... -
ARCHIVED Cleaning Out - What Ingredients To Look For?
eleep replied to AmyTopolski's topic in Gluten-Free Foods, Products, Shopping & Medications
I found that my shampoos and conditioners were pretty clearly labeled with "wheat" or "barley" based ingredients when I was sorting through them. However, I did spend an afternoon on the board and then another one calling individual companies to check the other products. My experience was that this worked better for me as a way of figuring out what to keep... -
ARCHIVED This Would Make Sense
eleep replied to Momma Shelley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I want to say "welcome" as well -- and to 2nd the suggestion that you get tested! Autoimmune disorders, like celiac, can often get triggered by a stressful bodily event like a surgery or major illness, so it's possible that your operation might have had that effect as well! eleep -
ARCHIVED Another Success Story, With Some Problem
eleep replied to Dyang's topic in Coping with Celiac Disease
Since you're experiencing this stuff on your left side, it sounds like a misalignment problem or a problem with form to me -- you might consider seeing a physical therapist about this. Moreover, since you're having back pain, I'd recommend working on strengthening your core muscles if you aren't already -- I'm not an expert, though -- just speaking from... -
ARCHIVED Substitute For Beer In A Collards Recipe?
eleep posted a topic in Gluten-Free Recipes & Cooking Tips
I've got an excellent collard greens recipe that calls for a bottle of beer -- obviously, I need a substitute and there's no gluten-free beer on hand at the market that usually sells it (they have trouble keeping it in stock). Any ideas about what I could use instead? -
ARCHIVED Acupuncture As Part Of Healing Process?
eleep posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Has anyone had acupuncture after going gluten-free -- did you find it helped with the healing process? I know that it's generally recommended for inflammation issues (like those involved in autoimmune reactions). Has anyone found it helpful for stress and anxiety as well? I'd love to hear about people's experiences because I'm probably about to go in for... -
I use Garnier Nutrisse -- no gluten, and it seems to be a good product.
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ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
I was glutened through CC about two weeks ago -- I'd been using the patch for a few weeks after quitting smoking. After about a week of clear gastro-aftermath from the glutening (surprisingly, not much anxiety), I stepped down to the next lower patch -- that was when the panic attacks started to hit (because I was going through withdrawal). I think the... -
ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
Just a quick update because I finally had to call a doctor (and my therapist) on this one -- they think I have been having prolonged anxiety because of using the patch to quit smoking -- essentially, each time I've "stepped down" a patch, I've gone into another bout of withdrawal -- which includes anxiety irritability and crying jags -- was made worse by... -
Whoops -- Kombucha is a fermented Chinese health tea drink thing. I really think that stuff along the lines of t'ai chi, yoga, possibly pilates and more meditative stuff is where you want to go. Meditation, in particular, helped me actually learn how it feels when my blood pressure does rise and my stress levels go up -- and how to gently coax them back...
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I don't have hard facts at my fingertips, but my instinct would be to say that lifting weights -- if done gently and in moderation -- should be okay. You should actually produce more testosterone which can help with cortisol levels (I think, but again, I don't have access to my research on this stuff right here). I'm going to get back on what my ex called...
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ARCHIVED Beets, Pink Urine And Celiac Connection?
eleep replied to Jennas-auntie's topic in Related Issues & Disorders
That's exactly what I was about to say -- everyone I know reacts that way to fresh beets -- I've been in a room full of people sharing beet-toilet-scare stories and I'm fairly confident that they weren't all celiacs. I also don't have that reaction to canned ones from the salad bar -- perhaps because a lot of the juice has been drained out of them? Dunno... -
Hey Carla, Is not getting enough sunshine and outside-time something that can contribute to adrenal fatigue? This just occured to me because, in April, I was actually under orders by a doctor to spend as much time in nature as I could for a while when they were concerned that I was going to collapse from fatigue. I wonder if too much celiac...
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ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
I always feel extra-tired after massage or any kind of energy-clearing bodywork, so I'm not surprised you feel that way after acupuncture. If I go home and nap and drink lots of water I always feel like I'm walking about a foot above the ground for a good week or so afterwards! The only thing I've got brewing right now is trying to get comfortable with... -
ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
I actually doubt I'm going to start smoking again -- it's been my dearest wish for years to quit smoking for good and the major celiac-related symptoms were part of what kept pulling me back in every time I quit. I was also spending a lot of time among people who do smoke and I honestly don't feel that will be an issue any longer either. I was less of... -
ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
Okay -- caffeine definitely sets the panic attacks off right now -- I only drink about a cup of coffee a day, but even that seems to have become too much since I quit smoking. I'm just getting more and more sensitive, I guess -- I don't really crave cigarettes, but I just get rather wreck-like. I'm not eating any sugar outside of what's in the fruit I... -
ARCHIVED If You've "recovered" From Lactose Intolerance, How Long Did It Take?
eleep posted a topic in Food Intolerance & Leaky Gut
Had a couple of tough days and, on impulse, bought a really good, hard, aged, extra-sharp Cheddar which can sit for a few months in my fridge before I open it, if need be. I'm able to eat yogurt, butter and buttermilk with no problem (although, they don't generally have lactose anyway!). Any estimates on how many months gluten-free I should go before... -
ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
Well, I'm not consuming any sugar and I've cut my coffee consumption down to 1/2 mug a day -- none this morning. The two psych. people I consulted with today said that this is probably most clearly related to the nicotine withdrawal -- particularly because I'd amped myself up to about a pack a day habit for a couple of months there and then just quit. The... -
I'm also very interested in this -- and it's great that you're getting somewhere with this stuff!
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ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
Funny you should mention bio-feedback -- before I went into a meditation class, I'd spent about six months playing with a biofeedback meditation "game" called Wild Divine -- that's what taught me that I should really get into a meditation class to take things any further. Meditation was how I became able to isolate the fact that there was something going... -
ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
I have had crying-jag anxiety fits in the midst of brain fog/celiac symptoms that were clearly reactions before I knew they were reactions -- usually, I dealt with them through exercise -- they also usually came during times of extreme stress -- like my mother's funeral -- and were accompanied by insomnia. I also had quite a bit of this in the first month... -
ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
I'd checked about gluten already, but I checked again with the company and it does contain lactose monohydrate -- I am lactose intolerant right now, but I suspect that I can head problems off by taking two lactaid with the 1/2 Ativan. Spoke with my psychiatrist today and he said that, indeed, this is probably coming up because of the quitting smoking... -
ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
Yeah, it's .5 MG that I'm taking -- not a lot, although I did take the other .5 half of the pill about three hours later and I now feel kind of yawny and draggy, so that may have been too much. I'm tiny, so a little may go a long way with this stuff. The prescription is for 1/2 to 1 tablet as needed for anxiety -- kind of vague, but the doctor who wrote... -
ARCHIVED Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat
eleep replied to eleep's topic in Coping with Celiac Disease
Does anyone know how best to take the Ativan so I don't overdo it and risk becoming dependant? I've kind of been under-estimating what I needed because I'm concerned about that -- today I finally took the 1/2 tablet after two earlier panic attacks which I dealt with by napping/meditating and going for a run. I knuckled under because I just HAD to get some...