Fredo
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59 minutes ago, Donna1970 said:
Thankyou for the information. That's what I thought, she also said that there is no actual test . She did say after a month of gluten free diet she would refer me for tests which seems a bit conflicting lol
she says she is celiac herself so I had total confidence in her to begin with.
I had my first gluten free meal yesterday and it has made me ill, the usual symptoms I normally have ,usually it's cramps, diahorrea and bloating but yesterday and still continuing today I have been sick yet I don't on my "normal" diet.
No other dr near me is taking patients on I can't self refer to the NHS (in the uk) as far as I'm aware though I will look into it ,I can't afford private.
Thankyou again
When I was diagnosed about 2 1/2 years ago, it was by way of endoscopy/biopsy.... The biopsy revealed the celiac with wheat allergies! I discovered that wheat and most gluten food are like twins in the realm of diet. (not all gluten is from wheat, just that most modern foods use a form of wheat gluten in their processing...ie; 'modified food starch' as being one of the most over looked ingredients) For myself, it was not until I altered my diet to ultra minimizing my intake of processed food, making myself educated as to how many different names "gluten" and "wheat modifiers" are used under, that I began to see a difference in how I felt and how my body began to heal! I was one of those people who had the dramatic weight loss over a couple of years prior to diagnosis. I went from being a 230 pound guy to 137 pound shell of a human being. My advice, eat simple foods, and take nothing for granted in terms of ingredients. One more thing... I completely agree with the above post in regard to being your own health advocate! This is not a one size fits all disease and there are ALOT of variations of symptoms with people. But when you do enough research you will find the common symptoms that align with your own and discover dietary guidelines which apply to your health! And the health professionals are not well educated across the board, and more often than not are going on bits and pieces of random superficial hand me down sources... So... Yes 100% be your own health advocate! good luck! And you are in the right place to learn as you go!
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I am one of the 'long term late diagnosed' cases... At the worse point of it all I went from being a 6'1" 245ish man to a 137 pound 6' man, I was wasted away to pretty much nothing.... Virtually every aspect of my physical existence was deteriorating... Long story short, one thing led to another and I was qualified for a temporary insurance which allowed for testing to discover what was going on and the genetic testing was done which revealed that I was wheat allergic and celiac. It has been 'bout a year and a half post diagnosis. I am back up to 'bout 195 pounds, my mental faculties are back as well as the weight! I was suffering from the lose of bone density, my teeth were rotting and at one point I was told that the dentist would have to pull all of my teeth, after eating in accordance to the diagnosis, my teeth are actually healing and my bone density is returning... My ataxia is practically none existent, and my muscle tone is returning as well, although kind of slow. My skin rashes and break down have healed and my over all health is increasing... On the functional end of it all, I am able to much more in the world now than I use to be able to to, I can stand and wash dishes at the sink and mow the lawn! LOL And believe me, to be able to do those little things in a big deal after you've been bed ridden for a period of time! I still have a ways to go before all the healing is in effect I think, but these are just a few of the effects my post diagnosis.... (there were many more issues and changes, but did not want to write a novel on here LOL)
Confused
in Post Diagnosis, Recovery & Treatment of Celiac Disease
Posted
Not to be argumentative, but to be clear... My statement was based upon first hand experience from my own discovery of the correlation between my symptom flare ups and the ingredients I found listed on food labels... And law or not... I can guarantee you that not all food labels are as clear about their ingredients as the "law" would expect them to be. I do know that there are labels that will clearly list the modified food starch as having been made from corn, but not all labels which list 'modified food starch' clearly indicate that it is from wheat... Hence for my own peace of mind and health I only consume a product with 'modified food starch' if it clearly states that it is derived from corn... Otherwise, from my own experience, it could be derived from wheat, and I prefer not to take chances.....