trents
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trents's post in Best Lab To Get Full Panel Bloodwork For Accurate Celiac Results was marked as the answer
The antibody blood tests used to diagnose celiac disease are standardized in the sense of what is being measured. How the tests are conducted and the scales used (as well as the units used) to express the results can vary from lab to... -
trents's post in blood test parameters was marked as the answer
I think is is significant that you say your symptoms are worse after consuming gluten. Your next logical step would be to request a celiac panel including IGA and, since your total IGA is deficient, IGG antibody tests:
TTG-IGA ... -
trents's post in Advice needed was marked as the answer
Okay, so two issue here:
1. Your brother is creating CC (Cross Contamination) problems by using your gluten free food items and mixing into them gluten containing food. I would suggest you consider keeping your gluten free food... -
trents's post in Tested twice and feel like my doctor has told me wrong was marked as the answer
Welcome to the forum, @Scochran!
You have had two antibody tests designed to detect celiac disease:
1. Tissue Transglutaminase Ab, IgA (aka, "tTG-IGA")
2. Endomysial Antibody IgA (aka, "EMA")
The tTG-I... -
trents's post in Advice for Drs appointment for 3 year old was marked as the answer
Ask for a more complete celiac panel that includes more than IGA antibody tests. Young children have immune systems that are immature and they often don't respond the same way to IGA antibody testing as adults do and so it can be valuable... -
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trents's post in Hello everyone, i think ive found what is wrong with me! was marked as the answer
Welcome to the forum, @Tjweston!
First, I want to caution you about going gluten free before getting tested for celiac disease. If you decide you want to get tested for a formal diagnosis of celiac disease you would need to have... -
trents's post in Questions about CBC history was marked as the answer
Welcome to the forum, @GeneticMess! The answer is yes.
Celiac disease damages the mucosal lining of the small bowel which is the area of the intestinal track where all of our nutrition is absorbed. This "villous lining" is composed... -
trents's post in Coeliac Disease vs wheat intolerance was marked as the answer
Welcome to the forum, @Rageagainstthewheat!
First, let's deal with terminology because you may not be using the term "intolerance" in the same way as it is normally deployed when referring to gluten-related disorders. Gluten is... -
trents's post in Celiac Disease Test results was marked as the answer
Welcome to the forum, @minkgurl!
Your normal Immunoglobulin IgA means you are not IGA deficient which means your IGA-based celiac antibody tests should be accurate. The Immunoglobulin IgA is not a test for celiac disease itself... -
trents's post in Please Help! was marked as the answer
Yes, missed that. But still, no TTG-IGA? No total IGA? Who ordered these tests anyway? Doesn't seem like they know what they are doing.
At a bare minimum, an initial celiac blood antibody testing panel should include a test ... -
trents's post in Weak positive was marked as the answer
Welcome to the forum, @lorishaw!
One factor you are likely not aware of is that your low Immunoglobulin A (IgA) (what we typically refer to as "total IGA") would cause the TTG-IGA test score to be artificially low. Low total ... -
trents's post in Swollen abdominal lymph nodes from celiac???? was marked as the answer
Yes, I think it could or at least account for some of the problems you are experiencing. You report a positive change already in stool consistency with just a short trial of gluten free eating. There are also third party celiac disease... -
trents's post in Is the Celiac diagnosis correct?? was marked as the answer
It was a pleasure to be able to help you, Maureen!
You will be aware of much of this already from working with your son's celiac diagnosis but there may be some areas you hadn't thought about such as gluten in meds and oral hygiene... -
trents's post in Growth stopped was marked as the answer
Welcome to the forum, @Gabriellas mom!
Although you don't use these terms, it sounds like celiac antibody blood tests were done and were strongly positive. That is normally the first stage of celiac diagnosis. The second stage... -
trents's post in My husband takes my venting about food as a personal assualt was marked as the answer
Sounds like counseling support might be in order at a couple of different levels. It sounds like your physical/psychological health is at risk and your marriage is also at risk if you husband isn't watching out for you in your need to... -
trents's post in Struggles eating enough was marked as the answer
Jodi Lee, I'm thinking it might be a good idea to seek counseling for what might be a long standing eating disorder that has been complicated by your celiac diagnosis. When we hear the term "eating disorder" what immediately comes to... -
trents's post in Wanted advice of if I should have an EGD/biopsy to check for celiac... was marked as the answer
Many of your symptoms are classic celiac symptoms. Your history is complex and timing with respect to periods of being gluten free and being tested for celiac is critical. Also, it is unfortunate that no biopsy was done when the upper... -
trents's post in Violent reaction to gluten after going gluten-free? was marked as the answer
This is not abnormal at all, Mary. I get almost exactly the same reaction as you do when I have an accidental ingestion of gluten to any extent. Before my diagnosis 23 years ago, when I was consuming gluten daily, my symptoms were very... -
trents's post in Am I IgA deficient? was marked as the answer
Welcome to the forum community @tummytroubles777!
Your symptoms scream either celiac disease or NCGS (Non Celiac Gluten Sensitivity).
You may very well be IGA deficient. Physicians should always order a test for total... -
trents's post in Positive biopsy, negative blood test was marked as the answer
Welcome to the forum community, @Mrami023! Your experience is very common. Many people don't get tested for celiac disease until after they have started eating gluten free or at least started cutting back on gluten. They don't necessarily... -
trents's post in Bad Reaction To Regular Ruffles Cheddar and Sour Cream was marked as the answer
Yes, the yeast could have been cultured on a wheat substrate. But another batch may use a yeast extract cultured on something else that did not contain gluten. These food companies will switch suppliers according to what is the cheapest... -
trents's post in Blood Test Results & Experience was marked as the answer
I certainly would not conclude that you are in the clear. There is a big question mark about whether or not you are consuming enough gluten to render valid test results. In addition, you have a family history of celiac disease, you have... -
trents's post in I think I may be Celiac was marked as the answer
Welcome to the forum community, @Georgiajafa!
Yes, we do have anecdotal reports on the forum of those with celiac disease who seem to go into remission for a period of time. My observation is that most of these cases are with... -
trents's post in Celiac and anxiety was marked as the answer
Welcome to the forum, @EmilyZ! Yes, it does get better. In time you will develop a sixth sense of what you should avoid and you won't have to think so much about it.
Are you getting good support and understanding from family ...